Radiation before or after reconstruction?
Hi everyone!
This is my first post. I've had a double mastectomy with immediate expanders in August 2017, and currently doing chemotherapy. After that, the plan is radiation, then final reconstruct/exchange.
There's been alot of discussion between my doc's due to my concerns, but it all boils down to my decision. It's driving me insane, as I'm sure you can all relate to.
My PS and Radiologist have conflicting feelings about the outcome of radiation with expanders in. Because of this, My radiologist wants to reduce the left breast(No cancer) to get a better angle to the right(where cancer was). He says that the left will receive no radiation this way, and avoid any other organs being affected unnecessarily. The right will stay at full capacity. My PS says that it WILL still get radiated. No way to avoid it, thus making the outcome of reconstruction less desirable.
Now I'm wondering why we can't just go from chemo to reconstruct, to radiation. Has anyone done this? My thinking is that both breast will be filled during radiation, and the outcome more desirable.
Laaawwwddd! I cannot wait for this to all be behind me!
Hope you all have a beautiful Sunday,
Jodi
Comments
-
I love my PS and that's his plan for me I'll do exchange before rads. Some people have been surprised by that but my guy is good and I trust his judgement. Also RO says damage doesn't happen like it used too as technology has improved a lot. If I were you I'd seek a second opinion from RO.
Best wishes
-
I'm on the same boat. I have one more chemo and then will meet with RO. I'm almost fully expanded but only want to be a small C. I had cancerin left breast but had bilateral mastectomy. My PS warned me that radiation might be an issue with the expanders. I didn't realize that both breasts would get the radiation! After all this I don't want to be deflated! What questions should I ask RO?
-
I think it depends on each case for me I had skin involvement also so that has an impact. I would ask if both breast would be radiated in my case it would not. The main issue seems to be shrinking and Harding of the cancer side breast. Ask what their experience has been with both implants and TE's . Also your skin pigmentation has an impact. I'm dark year round ( native and white ) so I was told my skin should do better than someone who is fair skinned.
-
OMG. I'm gonna ask them to explain again!
Thank you!
-
I'm gonna ask them why i can't do reconstruct before radiation. I'm already doing chemo, so I should be fairly safe right?
Good luck!
-
I would think that will delay radiation? My MO wants radiation to start 4 weeks after last chemo.
-
It is important all your doctors agree on the plan - whatever plan you eventually choose. Remember that radiation might be targeted to different spots depending on the specifics of your particular case, so in my opinion your RO has the last word how (s)he wants to do that. If you don't like or don't understand what your RO is saying seek a second opinion before it's too late.
Radiation can be done on expanders and on permanent implants too. Radiation does not impact expanders or implants but it does impact the tissues and no matter how good your RO and PS are, radiated breast will be slightly impacted. In the past, they recommended doing radiation first, then waiting at least six months or more before doing the exchange surgery. Reason: tissues don't heal well after radiation, so the odds of complications after the exchange surgery are high. Nowadays, some institutions and plastic surgeons are open or even prefer doing the exchange surgery first and radiating when permanent mplants are already in.
When faced with the same decision about four years ago, I decided on having the exchange surgery first and radiate with the permanent implant in. My medical oncologist was initially against it because she was afraid my rads could be delayed if any complications arose from the exchange surgery but my PS and RO managed to convince her. Everything worked out pretty well and 3.5 years later I am very happy with the looks and everything else. Just remember, this is not going to look perfect as the radiated breast is usually a little perkier than the other one. In my case, a small difference in shape can only be noticed when I am naked.
Best to all.
-
Muska how long after implants were put in did you have to wait for radiation?
-
All the dates are in my profile below, rads started 4.5 weeks after the exchange surgery and 8.5 weeks after the last chemo. Studies have shown radiation is most effective if started no later than nine weeks after chemo, it's effectiveness starts to decline from week nine but it is considered acceptable to start radiation up to week 12 post chemo.
-
Thanks Muska
-
Thanks for posting to ask, and thanks to others for sharing their experience. I got a call today that RO talked with MO and PS and they want to do my exchange surgery before rads. This would put rads start date at 5 weeks PFC (which is within clinical guidelines).
I had initially planned implant surgery, then switched to a DIEP flap when I found out I needed radiation and heard about the high potential failure rates. Now they want to do the exchange surgery in between, mostly because the button on my expander poses an issue with proton therapy, which is what I'm currently scheduled to have (reduced risk of radiation exposure to the heart).
As a constant planner, these changes are throwing me for a loop.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team