Just got the call

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KimYR
KimYR Member Posts: 3
edited October 2017 in Just Diagnosed

Hello everyone. I’m 43 and the mom of an awesome six year old boy. I had architectural distortion on my mammogram and after two biopsies I got the dreaded call. The only radiologist said was it’s type one and small. I have to go for an MRI and find a breast surgeon. Since my first biopsy came back benign I wasn’t expecting this. Should I have got more information. If I call him back what questions should I ask or do I just have to wait until the MRI to find out more?

Also my husband was out of town when I got the news. I am so scared and devastated. I know stage one is “good” but I don’t want any cancer. I don’t even know how to go about telling people. I don’t want to be the sick mom or the cancer mom. Just so many emotions right now

Comments

  • Meow13
    Meow13 Member Posts: 4,859
    edited September 2017

    Sorry to hear, you will want to know more the kind, size, grade, hormone status and her2 status. I was never sick after my diagnosis 6 years ago. Hopefully, your surgery and treatment will be uneventful too.


  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited September 2017

    Hi Kim, at first the emotions are high. I found when I had the details I felt empowered and ready to run the fight. I would call back and ask for a copy of your pathology report. Maybe they can email it to you, my doctor did for me but only after knowing I had a handle on it emotionally. :)

    Once you have that, come back with the details. Reading the report will be very over whelming. I felt like I was trying to jump in the middle of a collage course. lol I posted mine here and LOTS of ladies jumped in and started getting me pointed in the right direction.

    With out that report as well as the MRI, forget your stage right now. You basically hit the tip of an iceberg, as you get more info from your doctor, the MRI, and more tests....you really can't count on your stage. I know my doctor refused to stage anything until I had surgery and he could clearly see the size of the tumors, if they were touching and if my lymph nodes were clear. There is a LOT of moving parts....even after all of that I am Stage 1 as well, but it can change very quickly.

    Keep us updated. You are not ALONE. Hugs.

  • Trvler
    Trvler Member Posts: 3,159
    edited September 2017

    You don't have to tell anyone until you are ready. I told my husband and sister and that's it. You get to decide how you want to handle it. I am a very private person so I didn't tell many people even later on. I never went public on Facebook but many people do because they want the support.

  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited September 2017

    Trvler, going public or private for each person is for their own unique reasons. Not always for support or due to a need of support. :) I went public because I refuse to let others around me not know it is real. I am taking ever opportunity to share in the hopes it saves someones life. For me, I am detirmined to see the good regarless if this dang thing kills me. :)

    Some people need to deal with it privately and for their own reasons. Just be cautious assuming that people sharing is for support. :)

    In the end, everyone should with who they are comfortable with, no more no less.

  • beach2beach
    beach2beach Member Posts: 996
    edited September 2017

    I agree with the above. Sorry you are here, but welcome. Ask for a copy of the pathology report, your entitled. I also was very tight lipped on whom I told. That's just me. I know anyone I would tell would be supportive, but I just can't deal with the oh, I'm so sorry words and look.

    Do what feels comfortable for you.


  • Trvler
    Trvler Member Posts: 3,159
    edited October 2017
  • GardenGirl11
    GardenGirl11 Member Posts: 26
    edited October 2017

    KimYR, I don't have any advice but I know what you are going through because I just got diagnosed. I am also Stage I but that doesn't make it any less scary because cancer is cancer. I'm sorry you were alone when you found out, I was also alone. I really thought that it was going to be just a cyst or a benign tumor. I've only told my immediate family and one friend. I'm not sure who I want to tell about it either because I don't want to be the cancer mom either. It is all starting to sink in though and I do think the more support you have the better.

    Hugs.

  • EastcoastTS
    EastcoastTS Member Posts: 864
    edited October 2017

    KimYR:

    SO sorry you are here but you've found a great place for advice/support/understanding.

    Tell whomever you want -- or not. I've told some colleagues but no neighbors, for instance. Nothing on social media. Zip. But it's what makes you feel better and helps you cope.

    Agree with Meow: you need the path report from the biopsy sample to tell you about hormone status, HER2 status, etc. Greeneyes has it right, too. You are hitting the tip of the iceburg. More info every day, more knowledge. A plan will slide into place. It does get better. I'm not kidding. I know you can't believe that but I'm almost 9 months out and in such a better place.

    Take care and know we're here for you.

  • karentwriter
    karentwriter Member Posts: 156
    edited October 2017

    Hi Kim,

    Sorry you had to join this group. I got the call last week. I'm 39 with a 4 year old, about to be 5 year old girl. I get, as we all do, the emotions running. The day of my call, I had to leave work for the day. I couldn't do it. The next day was a bit easier. I was better around people, it's harder for me to be sad when people are around. I make inappropriate jokes instead. Once I had that day of not dealing, then I started to feel a lot better about what was going on and what was going to happen. Not better as if it didn't happen, but better than the day before.

    Like another poster said, you don't have to tell anyone. I'm more of the writer, so I made it apart of my blog and shared it through social media. That's how I cope. You have to figure out what makes it easier for you to get through the day and if it's people not knowing quite yet or until you are all done with this, then that is what you do. :) Good luck!

  • msphil
    msphil Member Posts: 1,536
    edited October 2017

    Hang in there sweetie I felt those feelings and more But Hope kept me going and Praise God I am a 23yr Survivor. msphil idc stage2 0\3 nodes 3 months of chemo before n after surgery Lmast diagnosed while making wedding plans got married after chemo before rads 7wks then 5yrs on Tamoxifen.

  • misbehavinggirls
    misbehavinggirls Member Posts: 18
    edited October 2017

    Agree with above, you can't stage at this point, they may have meant grade 1. Grade is the aggressiveness of the cells (grade one is low grade, closest to normal in cell division), while stage 1 means it is local and hasn't spread to lymph or other parts of the body.'

    Tell who you are comfortable. I started a messenger group with my closest of friends (because I have moved a LOT and they are everywhere, but not with me lol) so that I could repeat my stories once and not over and over. But everyone is different. Just make sure you have someone to talk to, it might not end up being the person that you think it will be either. My very best friend who is far away felt very helpless to be there for me and it was causing her so much anxiety I finally quit telling her much. Others were much more supportive for me in the moment.

    Try to take it day at a time. Make sure you do lots of self care. This is stressful.

    And yes, you need the MRI and a breast surgeon. Make sure you get references and feel comfortable with them. If not, find another.

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