Question About Periods, FSH, and Fertility?

Have you asked your doctor to have your AMH tested? The AMH number is another data point that will tell you about your ovarian reserve. It's still kinda soon after treatment and you didn't mention whether you had your ovaries suppressed during treatment. A lot of those factors could be contributing to your numbers, so I wouldn't lose hope yet. Having been in the same exact spot, I know it's easy to get looped into that cycle of stress.

My FSH was not as high as yours after chemo (TCHP) but the reproductive endocrinologist thought that the tamoxifen which causes high estradiol numbers could be artificially suppressing my FSH numbers. My AMH number before chemo was pretty low at .5 and after chemo was at .25. I did have lupron shots while on chemo and about a year after chemo resumed my periods which considering my low ovarian reserve, the doctors didn't think that was going to happen.

On a side note, totally unexpectedly, I became pregnant a couple of months ago, unfortunately I miscarried. But, it gives me some hope when considering that I am in my 30's, have had chemo, have been on tamoxifen for over 3 years and have a diminished ovarian reserve. On paper, it would seem highly unlikely that I would be able to get pregnant at all.

Any updates on your fsh? Your post said you were going to retest this month.

I'm currently going through IVF post treatment. I did TCHP, double mastectomy, and then ACT after treatment with a year of Herceptin. I finished ACT in May of 2016 and Herceptin in March of this year. After that I waited the required 6 months, and then met with a reproductive endocrinologist. She said my fsh level was 49. Not as high as yours but well above the ideal requirement for fertility of 10. This meant we headed straight to IVF. I froze my eggs before treatment and got 11, so we are hoping the thawing goes okay as well as fertilization and implantation. So many things that could still go wrong and it's pretty stressful. Cancer is the gift that keeps on giving, eh?

Did you decide (or have the option) to freeze eggs/embryos prior to chemo? Have you been given any advice on next steps?

Btw, your post is the first one I've seen (literally anywhere on the internet) that answered my question of if fsh levels will decrease again after chemo. So, for that a huge thank you.

Mrsayala24 I am just starting to go through this process as well. I was 38 at diagnosis (ER+) and recently married. Did not preserve eggs. Did a couple rounds of TC and a couple of AC then tamoxifen. My onc was comfortable with me going off at 18 months to attempt pregnancy. I'm seeing a reproductive endocrinologist. I've been off tamoxifen for 6 weeks. FSH has been high for the last year (35-60 so far) and AMH low though just up at 0.5 last time, which is better than the zero I started with. So, I'm headed in tomorrow for day three blood work (estrogen, FSH, etc.). Next period in for a hysteroscopy to check the uterus. Then depending on all these results (and the husband's) we look at next steps. If the FSH stays super high my eggs will likely be out of the question. Hope that helps a little, and keep us updated. I'm looking for another thread that is related to this, and if I find one I'll report back.