Titanium allergy?

We are really sorry to hear about all your wife is experiencing. Have you considered talking to your doctor about the possibility of having the clip removed?

I am currently having the same type of issue. I have a biopsy in June 2017 and starting in July 2017 I started with fatigue and now major joint pain and swelling. I feel like I'm 90 but I'm only 42. They have run all kinds of blood work with no definitive answers. Rheumatoid factor negative, lupus negative, Lymes disease negative. The most they say is inflammation. I have never hurt this bad ever before. My joints and bones just hurt. Not muscle. I do have a titanium marker in my left breast. I've never had a problem with metals before but this seems to make the only sense for my sudden onset of symptoms.

I have titanium throughout my body, from the pre-lumpectomy clip, to a spinal fusion , to two total hip replacements. I've not had a problem, thank goodness! People can be allergic to anything though.

Just found this thread.

Just because titanium is the most unreactive metal within the body, doesn't mean it's not the causative source.

Let's just accept that weirdness happens.

I learned through observation and good detective work that I'm allergic to polyurethane IV catheters. Was it stark no. Just caused tissue necrosis at entry. Looked like a three to four day old entry site after 24 hours with the insertion only being from 5-30 minutes. Took weeks to heal versus < than hours. I'm fine with Teflon.

Is this happening nationwide. Unknown. Hahaha I'm superlative at detective work. What does poor Jane doe know about IV catheters and questions to ask and how to evaluate IV sites.

The point being jdp, is you are in the ballpark. Recent cause and affect application of trouble shooting after all has been ruled out is a reasonable approach. If the titanium is removed and symptoms disappear within a year without any other factors being altered. Then you have a causative agent. A year is arbitrary. The immune system once disturbed is/ can take time to calm down. Sometimes it never calms down. BUT if the titanium serves no present purpose. Then removal is an option

They may state that removal may cause further problems i.e. infection potential by a perceived non reactive agent. Just because it is the most nonreactive metal doesn't make it an absolute.

For those that object to that statement, relook at the detective work that has been done on her case. If you can offer suggestions for other things to be studied, do so.

I was given radioactive Iodine in 2014 for thyroid cancer. I think I'm through it's side effects. I did make a declaration at one point and was proven wrong. Was my reaction normal. OF COURSE NOT, but was I able to potentially change the world, yes. Because I alerted the controlling body on the drug that wrote the protocols for use. It was fun. No one picked up on the absence of skin protocol since the late 40's when it started to be used.

Can one person make a change? Can on person ask the right question? Can your wife be one in a million with this complaint? Possibly, but then if it works out for her, someone will write a paper. It falls under the category of case study. From case studies, others look. Either doc's in specialties or researchers that do studies.

Go for it, if she's willing.

i have a form of cancer esthesioneuroblastoma, on removing the tumour they closed the gap in my cranium with a titanium plate, ever since i have had joint pains, fever, headaches, reduced cognitive responses, blurred vision , constant itchy skin and to top it off i now react badly to the contrast fluid they use in MR scanner. Now 1 year down the road the doctors conceive that all my problems are a reaction to the titanium plate. I am now scheduled to have it removed and replaced with some plastic polymer. I see how it goes

OMG, yeah..my breast was itching like crazy and I'm pretty sure it's from the titanium marker, but no one at the Imaging Center believed me.

I hate when Drs. think you're making stuff up.

SWG Hi I saw you on a different thread There are two itching threads going right now.

Itching can be normal as a healing process and it can be abnormal. One tissue disruption, or two can be a symptom of something else.

2012-On my craniotomy incision with the tissue disruption. The whole thing the way it was done, caused just awful itching. Forehead and scalp. Now 2017, not so much. The first year was lots and lot's and , more lot's, but I expected it and worked with it. Less each year after the first. Probably sucked for the first several years. Yes, sucked big time. But now I'm beginning to forget what I call the "troubled time" Other's may say whatever about my phrase. But if you heard the story you'd puke. I'd rather just say the troubled time.

This is your troubled time, If you really think it's the Titanium that was left in as a marker. Hells bells it's your body. It could be just a healing thing or it could be a sensitivity/allergy thing.

SWG I know we talked something let me go back and look. I know it's within the last couple of days Duh. Memory that used to be wonderful now sucks.

https://community.breastcancer.org/forum/83/topics/813169?page=1&post_creation=true#post_5127182

The above link is to another thread that discusses Titanium allergy.

Multiple cases where metal testing did in fact show Titanium as the causative factor.

Once a drug or device has been shown to cause an Adverse Event, please insist that the following be done.

IMPORTANT: next step in the process is that the FDA reporting paperwork for "Adverse Event" Should be sent in by the provider. It's a requirement, but how compliant docs are who knows. Reporting of adverse events with drugs and medical devices is under the oversight by the FDA.

Once a threshold level of reports are received by the FDA, they send out a warning and or add a warning to the paperwork related to the device or drug.