Neuropathy from exemestane?

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teach6
teach6 Member Posts: 54
edited October 2017 in Hormonal Therapy - Before, During, and After

Made it through chemo and radiation without neuropathy but now having foot burning, pain and swelling. Most noticeable at night after I take my exemestane. No injury or reason for this. Since it has been ongoing for over 2 weeks, I'll get it checked out but would love your input. Anyone else have this and is it the medication? (Chemo was finished a year ago)

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  • Falconer
    Falconer Member Posts: 1,192
    edited July 2017

    I have had significant joint pain, mostly in hands and feet. I don't recall a burning sensation at all.

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  • Falconer
    Falconer Member Posts: 1,192
    edited July 2017

    I have had significant joint pain, mostly in hands and feet. I don't recall a burning sensation at all. Sorry you're having difficulties- some people do report that they feel better after time.

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  • doxie
    doxie Member Posts: 1,455
    edited July 2017

    I didn't have issues with overall foot burning, pain, and swelling. I did have intense pain and swelling in two toes, localized to the joints. It was some arthritis type flair up that was systemic and went away after a year. I was on exemestane for 4.5 years.

    Swelling could trigger the pain and burning sensation. What might be the cause of that? You had a rather intense chemo. I wonder it this is a delayed SE from it? Heart problems maybe?

    Switch taking the exemestane to morning and see if you have the same symptoms still at night or if they switch to mornings. This might be a clue.

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  • teach6
    teach6 Member Posts: 54
    edited July 2017

    Thanks for your replies. I was prescribed duloxetine (Cymbalta) to help with hot flashes, neuropathy, and joint pain. I started 3 days ago- at bed time. 1st day noticeable decrease in joint and nerve pain. Loose stools and airhead feeling. 2nd day -Did not sleep well-woke up with migraine and flu-ish feeling all day, but pain still decreased. Hot flashes decreased. Waited to take pill until this morning instead of night time- joint stiffness back. My fingers crossed this helps. Soft hugs to you all! I have an EMG test Friday to see if it is nerve related.

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  • frogprof12
    frogprof12 Member Posts: 1
    edited September 2017

    I'm having horrible tingling and less strength in my right hand (the side the cancer and radiation were on) and I've just been switched back to Tamoxifen from exemestane (with instructions to take a week's breather between the two). I'm wondering if it's going to go away after I've been off the exemestane for a while. Tingling and pain seem to lessen a bit if I dangle my hand down. No sign of lymphedema but also wondering if I should call the surgeon and/or her physical therapist about it.

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  • exercise_guru
    exercise_guru Member Posts: 716
    edited October 2017

    After being on Arimidex for 3-4 weeks I went to bed and both hands went numb and one foot. After going on Tamoxifen for 5 months the tingling in my foot and leg disappeared but the hands still didn't totally improve. I was on Gabapentin which helped and also helped with the hotflashes. Eventually they sent me to a neurologist and I had hand surgery but it only improved 90%. I think that it is due to lack of estrogen combined with the after effects of the treatment.

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