Well, I got that dreaded phone call
Hi all,
I've been lurking on these boards for several days now waiting for test results. Looks like I'll be hanging out here a bit longer, unfortunately. My doctor called this morning to let me know that my biopsy came back as invasive carcinoma and poorly differentiated. Ultrasound measured my tumor at 1.6 x 1.1 x 1.7 cm. I have not seen the pathology report, so that's all I know right now. Next step is deciding on a surgeon and scheduling an MRI. I guess the MRI is standard after being diagnosed to see if it has spread? I'm a 45-year-old mom to three. This feels surreal. Wish I could hit pause on life for a minute so I can catch my breath. Whew.
Comments
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Hi!
((Hugs)) No one likes those phone calls! I remember mine came on a Saturday afternoon. In my breast care center, a breast MRI is standard operating procedure after a positive biopsy. But, many women (especially if their lump is small) may not get an MRI. A breast MRI can help with sizing (my MRI scan was more accurate than my ultrasound for detecting the size of the lump), but not always. A breast MRI might also be helpful in determining whether any lymph nodes are affected, but not always. To tell whether or not your cancer has gone elsewhere, (bones, lung, liver, etc.) a PET scan is more useful. I got a PET before surgery, but that's because my tumor was big (5 cm+) and I had one compromised node. Hopefully, that won't be you!
Depending on the type of cancer you have, you may also see an oncologist soon. I had triple positive cancer (ER+/PR+/HER2+), and ended up doing chemo before surgery (neoadjuvant chemo).
I was 46 when diagnosed, and I also have three children. Nope, cancer isn't fun, but you can do this! ((Hugs)) Take care of yourself!
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Sorry you find yourself here, but welcome. You will find much support. Unfortunately that phone call is one that you remember forever. Once you find out all the prognostic factors, ER/PR/HER2 , you will have a better idea of what lies ahead. I know its easy to say and not do, been there, but take a deep breath, cry, do whatever to let it out. I'm 51 and though my kids are older, my youngest is in HS and two in college, it hurts just as much at the thought of all the "what ifs". I still feel its surreal 2 months later. Feel like I go through all the motions still, but it's not quite sunk in even after all this time.
Plenty of people to support you through this.
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You are in the hardest part right now - knowing you have cancer, but not having a plan in place.
Once the plan is in place, some of the anxiety lessens. Speaking of anxiety, I always wished I
had asked my doctor for an anti-anxiety drug in the beginning. When my sister was diagnosed after me,
she took my advice and had Ativan on hand. It was invaluable to her to take it on the high stress days.
She only needed a few, but she was sure glad she had 'em!
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Hi and I am sorry you are here....but hopefully you will find these boards helpful...I know, I have. I was diagnosed in May - and I think another post stated she still feels it is all a little surreal...and agreed. I have been going top speed since diagnosis that when it gets quiet and I think about the passage of time since May....it still seems surreal. So be good to yourself...and patient with yourself. I found out about my diagnosis about 4 days from my actual appt, because they scheduled me with a breast surgeon and an MRI in my online medical chart, and I got appointment reminders. So I knew...I just didn't know what kind of breast cancer I had... dear lord HARD 4 days....but once you get more results it becomes easier, because you understand "your ball game."
The MRI is ordered to typically show extent of the breast cancer - and some ladies do not get them/are not offered them....they can be a great tool in assisting with treatment/assessment. I found my breast surgeon by phoning friends and asking around and went with someone that was not given to me by my breast center. I used a large cancer center out here for my second and third opinions. (next appt Oct 17th) Women's support groups in your area for breast cancer may be good resources as well!! I met a group of survivors in my area and asked if I could come to their meeting, and they all gave me the "low down" on breast surgeons/treatments/tips/etc. Treatment is individual and sometimes surgery is not the first step...
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I am sorry you are here also, but welcome! I could not imagine doing this without this forum of information and non judgemental support. I am 36, my main requirement was that I had an MRI. Not everyone gets them. I STRONGLY recommend if your doctor won't give you an MRI, find a new doctor.
Prior to my MRI, I had one small lump and looking at a lumpectomy. Had I done that, I would have left 2 more IDC tumors and TONS of DCIS. My MRI found the other two lumps and the extent of the DCIS was found after surgery.
It's going to start moving fast. Like the others said, once you have a plan and start understanding your specific cancer there is empowerment. Ask questions, you are in control. You do not have to jump hoops and do what ever a doctor says right now.
We are here! Hugs!
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I'm sorry that you find yourself with us, but you have found a safe place for yourself-- to express your feelings, to ask questions, and to talk about feelings you may find yourself experiencing that others who are not taking this same journey may not understand. It will get better -- not to sound corny. When I came here in late July after my diagnosis, many told me the very same thing. And now here I am, saying the same to you. I'm still early in my journey, but everyone is right when they say it gets easier once you have your treatment plan in place. The more information you learn, the better it will start to feel-- because you will feel more in control. The early days of diagnosis are toughest because we usually have very little info except for the fact that we have cancer. I never knew until now that info would seem to reveal itself over time and not all at once. Anyway, your BS ordering an MRI is good. He should want to check and see everything before performing surgery. That was the first thing my BS ordered before following through with the surgery plan he had in mind-- it also provided me more information so that I could make sound decisions.
I know it's scary. Believe me I do, but it will get better and you will be able to do this. I say this to you because, as I said, others here said the same thing to me only 6 weeks ago, and here I am doing this, and enduring things that if you would have asked me three months ago if I could endure, I probably would have said 'no'.
Keep coming here and asking questions too as they come up. There are others who have been through this and who have been around for a longer time and they will for certain be able to provide you with more insight as you move forward.
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Thanks everyone for your kind words. I appreciate them very much. The past week has been hard, but I'm starting to cry less and come to terms with my new reality. I'm triple negative, which felt like another huge blow. I went for genetic testing this week and also met with a surgeon. I'm meeting with my oncologist on Monday. You guys give me hope, and I'm grateful for that.
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Hi Jamorcar, I was 44 with 2 little kids (2 and 3). It really, really sucks, but it's possible to get through it. Do you have a good support system? Kids make it a lot more complicated - both figuring out how to take care of them and figuring out how to explain the cancer to them. I used a ton of picture books.
Sounds like you're getting in to see your doctors quickly - I think that's good for mental health reasons.
Edited to add: my diagnosis was a little over 7 years ago. I was stage III, with disagreement about a vs. c because of inconsistency of reporting about whether there was a positive node near my sternum. We do get through it. I was ER+, so the risk of recurrence never really goes away, but I have done well and been grateful for all the time I've already had.
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Outfield, you give me hope! Thank you. My friends and family have been wonderful so far. My kids are 17, 14 and 9. My oldest son seems to be taking this the hardest. My 14-year-old daughter isn't saying much, and my 9-year-old son has a lot of questions -- such as whether he'll get cancer from touching me, what causes it, etc. My husband works 70 hours a week, so he's already overloaded. And unfortunately, he can't give up his second job right now because of my health insurance and all the upcoming medical expenses. This will be hard on him, too. I'm self-employed, but I'm able to work from home. I hope to keep working throughout treatment.
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I remember that phone call too. Tuesday night at home. I was already braced for the news but still upset of course. I think I was in a fog after that because I just went through the motions. Friends gave me the name of a breast surgeon who they used and one of the best in town. I recall sitting there with his assistant listening to the kind of BC I had and all the gory details. Lumpectomy, meeting with Oncologist, Oncotype test, 33 radiation treatments and 5 years on Tamoxifen. That's been my life for the past 6 years and here I am, so far, so good.
This forum is a godsend and has been my lifeline. It's the only place you can go where everyone is going through the same thing in various stages and grades. I have made some friends outside the DX because no matter what BC doesn't define you.
I don't have small children but my youngest son took the news very hard. I managed to keep my game face on for him. I took my fears to my friends esp ones who had had BC. My SIL and sister both had BC.
You can do this. We are testaments to that. Research and treatment has come a long way even since my DX in 2011.
Keep the faith and keep us posted.
Diane
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Hi Jamorcar, sorry you find yourself here. I am just a little over a week ahead of you. It's such a shock. I am a 45 year old mom to a 5 year old who just started kindergarten. This was suppose to be my year to go back to working (at home). I have a husband who works all the time and really can't handle childcare (stresses him out).
I start chemo on Monday. So scared! So need it to work! Worried about how I will feel and manage day to day life.
It will be a whirl wind of appointments for you to get to your treatment plan. Seems like so much of it is just showing up and trying to take it all in
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hello sweetie I was 42 n planning our 2nd wedding when I found the lump working in the medical field I went 2 work needle biopsy was done I could see the doc n nurse both my friend's look at each other n knew. Diagnosed with idc had 3 months chemo before n after surgery Lmast we got married after chemo and before rads which were 7wks I am now a 23yr Survivor Praise God You can do this with Hope n Positive thinking is what I did. msphil idc stage2 0\3 nodes Lmast chemo rads n 5yrs on tamoxifen
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