TRIPLE POSITIVE GROUP
Comments
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Thank you, LTWJ! My cancer rehab PT wants me to try medical yoga so I am awaiting for an appointment.
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My oncology nurse Marie. This picture was taken after I rang the bell one time and broke down, she hugged me and encouraged me to go on ringing - if I wanted to . During this whole detour in my life, she has supported me and made me laugh.
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Thank you SpecialK, for some reason I could not answer the phone today when people called to celebrate me but I wanted to tell all of you here, because I know that you will understand how it feels and I have half of chemo left.
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Thank you coachvicky!
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Melanie, congratulations! This is really great news!
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moody - yay for you! You look great and surrounded by love, and have such a happy smile!
cherry - yes, we certainly understand - and have either been there, or will be.
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Please remind me how long the Herceptin should be infused per treatment. Brain fog. Is it an hour? Thanks in advance.
Melanie
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Melanie,
30 minutes is the shortest and they can extend it to 90 minutes if that works better for you.
Vicky
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Yay, moodyblues! Beautiful pictures; thanks for sharing!
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Happy birthday, Cherry. I had my birthday coincide with my last day of radiation on Feb. 14. So I brought in heart cupcakes. I think that special occasions can be particularly challenging, so don't feel badly if you're not "in the mood".
Moody, you look marvellous. Congratulations on being done chemo. Sounds like you have a wonderful husband who loves you very much (and mine just served me dinner while I'm in the bath - he's good too
)
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Happy birthday Cherry 🎂🎂🎂🎂
Ding ding ding .... congrats Moody 🎊🎊🎊🎊
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Yay Moody! Well done!
Cherry - I had tooth problems while on Taxol, and my Onc gave me a very strong antibiotic which had augmentin with it. It messed with my liver so much I had to stop chemo for a while. I'd had a milder antibiotic earlier in treatment that was fine. So - just in case, I would say an antibiotic that is just penicillin, without augmentin, maybe just to be safe.
Trish
xoxoxo
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Yippee Moody 🎉 Congrats, you look beautiful, happy and ready to move ahead to the next chapter. What a wonderful day, God bless
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Thank you everyone for the congratulations and your sweet comments, I am so glad chemo is over!
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Vicky. Thanks for the information!
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Happy birthday Cherry and many, many more. I didn't feel like celebrating my last birthday either since I was only a few months in but my husband, kids and grandkids insisted so I put on my happy face. It was worth it because the extra hugs made me realize I had a lot to fight for!
I wish you a peaceful day however you want to spend it. Hugs
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Thank you Posey! Your birthday is Feb 14th, this is a nice coincidence in itself. I really hope I will have much better birthdays ahead of me and I will never ever take them for granted anymore. My last three I actually did enjoyed very much even though I was not in the mood for a couple of years.
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Thank you Paulette, KB870, deni19901!
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Trisha-Anne, thank you for advice. My tooth feels better today but I have 6 treatments left and in case it will get worse I will need to go to the dentist.
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Happy Birthday Cherry~
Congratulations Moody!
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Thank you, Kimberbir!
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Thank you Kimberbir!
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All- I know there's been a lot of talk about being able to search for side effects of drugs as they're reported by doctors and patients. Well, the FDA has made their FDA Adverse Event Reporting System (FAERS) available for searches. I'm not sure how long it's been available, but here's the link. https://www.fda.gov/drugs/guidancecomplianceregula...
I wasn't able to try it on my phone so I have no idea how easy it is to use. Hope this helps.
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Hi Ladies
I am new to the triple positive group. I didn't find out I was HER 2 +ve until I was 7 months into treatment after my lumpectomy results came back...the initial biopsy results were inconclusive.I've come to this site often to find relatable information and encouragement through neoadjuvant chemo, surgery, radiation ...figured it was about time I chimed in 🙂 I have been on Herceptin since August and doing well, surgery scars are healing and lymphedema is under control. For the most part I have been optimistic throughout treatment until recently.. I confess..I am an obsessive researcher and have recently been on some oncology treatment websites where oncologists talk to each other about recent studies and new treatments. Much of what I've read about triple positive, currently, has been sobering information and has created more fear in me than ever before. I am grateful to see many survivors here living long and without recurrence. I am hoping to live a long life despite the stats I've seen. Having breast cancer has changed me in so many ways. I've realized it's time to take care of me, although I was sorta forced into it. Lol.... I've had incredible support from people I least expected and very little from some of my family members which has been the hardest part of this experience. My husband has been incredible, understanding, and empathetic although this year has taken its toll on our family which I'm sure all of you can relate to. I look forward to hearing how you all are doing, which treatments are working and how you all are staying mentally strong 💕
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Hapb - You're right. The information that come out is only as good as the information that goes in.
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Welcome Jagger, so sorry you have joined us in BC. I can say that this group will encourage you, give you tips, high five you from miles and miles away, cry with you and pray for you. I researched as well without end at first, but only very reputable sites (no Dr. Google at all). I stayed here and Susan G Komen site and also the several spots that several ladies pointed us to. There are times I backed off in fear and stopped looking all together because of it being so overwhelming. There have been times I dumped every feeling I had right here on breastcancer.org, I cried and whined. EVERYTIME I was met with open arms and love.
Although this detour sucks, I have found so very many survivors here and it gives me hope.
((hugs)) Melanie
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Hi Jagger, I see you also didn't know you were her2 positive until after your surgery. That was the same as me. I was wondering if you had chemo prior to surgery? If so, did they give you additional chemo when they started herceptin?
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Welcome Jagger2015!
I believe most of us always thought "another woman" would end up in this club and not us. So welcome to the place you maybe thought you would never be.
This a GREAT group of loving and supportive women. I count them as my friends and as people who "showed up". I have been on here early mornings / late nights and found someone to lend a caring ear.
It is a surprise at who shows up and who does not. You will know at your journey's end who loved you. That is a gift most people will never have.
Your post reads that you are strong and doing well. It is wonderful that you have your husband's support. Please watch his stress level. Sometimes, they can hold too much inside. We get all the attention so I have found it important to give my husband some alone time. I scheduled regular massages and facials for him during the rough times of this journey. I can be a bit much 24/7.
As for the research, I am OCD about it. I limit my searches to breastcancer.org. I go to WebMD to get a definition of something. That is it! Otherwise, I'd be a basket case with all that is out there.
Let me know if there is anything I can do for you.
On a happy note to share with ALL ... I went pretty bra shopping at Victoria's Secret! I measured out a 32DDD. I thought that was my size but it sure was nice to get pretty bras that fit well and not just sports bras and cami tops. The new girls sit in the bras like coconuts! I was nervous with the salesperson. Come to find out she is in her last year of nursing school. Did I luck up or what?
Hugs to all. Have a great weekend.
Vicky
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Vicky...that is so hilarious; you have coconuts! And I have one raisin lol. Glad you got some pretty bras!!
Jagger, I tried writing you once before, but my message didn't complete. I have a similar diagnosis to you and live just 2 hours from you...I, like you, did a ton of research. I still do. May I ask what research you're referring to regarding oncologists communicating with one another about triple positive? I haven't seen anything like that as yet. It's my impression from all my reading that, while aggressive, triple positive is not the worst bc you can have. It's basically "the best" out of the aggressivecancers. The best bc anyone could hope for would be an indolent hormone positive cancer.
Is this the site you go to, Jagger? I found this panel discussing neratinib. I know several ladies here have talked to their doctors about this, and they say no to neratinib. Dr. Blackell is a top oncologist in the US, and suggests that for women with node positive Her2, who responded well to chemo and Herceptin, and who can tolerate the symptoms, she'd suggest neratinib because she'd rather over treat.
Here is the link:
http://www.onclive.com/publications/oncology-live/...
I feel like I need to pursue more info about Nerlynx
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Happy birthday Cherry. It's okay to let this birthday pass and plan to double-celebrate the next one! Sending you a virtual hug!
Congratulations Moody! Just love watching us all finish up chemo. Rest up this weekend!
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