Raising a child through Chemo

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Jennifer522
Jennifer522 Member Posts: 254

How much have you been able to maintain your normal life through chemo?

My daughter is 5 and just started Kindergarten. This was suppose to be my year to transition from being a stay at home mom to getting back into the work force, before finding a lump in my breast through me a curve ball.

I am just wondering if I am going to be able to maintain normal life. Taking my daughter to school/picking her up, taking care of her needs, taking care of pets needs (with chronic kidney disease and lots of vet visits) and my home's needs. I am someone who is always walking around doing something. I get 8,000 steps a day without exercise. I don't want to lay in bed all day, watch tv and wallow.

My mom will come help during surgery when I assume I will need it. But she is 64 with her own health issues, so I am trying not to ask for too much. My husband is a work-a-holic, who of course needs to keep his job for income and insurance.

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  • Flynn
    Flynn Member Posts: 307
    edited September 2017

    Well, it's probably going to depend on which drugs you take. I have 7 yo twins and a husband who works all the time, too. During AC, I had a lot of nausea and the meds made me very drowsy so it would have been hard to manage without help. I had family come for 3 of my 4 treatments. The week off, in between infusions, I felt much better and could pick the kids up and supervise them at home as long as we stayed inside. (We live in FL where summer is crazy hot!) Now I'm doing Taxol & Carboplatin. The Taxol weeks i feel pretty good, the weeks with both drugs, I need more help. I always want to be as involved with my guys as possible but some days are hard. I will say that little kids are a great distraction from focusing on every ache & pain!

    My approach to lining up childcare was to plan for the worst but explain that the schedule might change depending how things went. It took me several interviews to find somebody that I liked and I think it would have been hard to start all on my own and have to scramble for help at the last minute. Good luck! The hope you have a smoothe experience and get to keep up with your activities




  • Autum1031
    Autum1031 Member Posts: 31
    edited September 2017

    I have a 6 year old who is in 1st grade, and I started chemo on August 1st. It's just me, hubby and my son -- we moved away from family and friends a few years back for my job,( which has turned out to be a really bad thing!). Since we've made no real friends out here yet, we have no support system to help during this time.

    So far, I've been managing pretty well -- I'm doing a lot more than I want to be doing, but most importantly, I am capable. I work full time, except on my Wednesday treatment days. (Right now I have weekly Abraxane). i drive myself to/ fro the chemo, although my husband came with me the first two weeks to make sure I'd be OK. He works hourly at a small business, (no FMLA), so he can't miss that much work. I am the breadwinner and carry the insurance.

    I get my son to the bus stop, do shopping, chores, Open House at school... we moved to a new house 3 weeks into my chemo, and I managed that, too. My worst days are Friday and Saturday, so I work from home on Friday, and try to lay low on Saturday and rest.

    One caveat: My doctor tells me repeatedly that 'Abraxane is typically well tolerated" and that "you will feel much worse on AC" so it's very possible this will all come to a screeching halt on October 25th when I switch meds. I'm prepared to take medical leave from work if needed, but I've no clue what we're going to do with all the school stuff or other things when my husband cannot take time off work.

    Also, the hardest part for me has been my son. I've been very open and honest with him about "Mommy taking some very strong medicine that will make me tired and not feeling well sometimes but it will make me better" and he understands that I have cancer. I was matter of fact with him and honest, and that has helped. However, he is simply not processing that I am not feeling well, or that I can't do normal things. He Only Wants Mommy all of the time, and there is no understanding or acceptance that I am not well. I'll be honest, it's been really awful. I'm actually going to talk to one of the social workers at my dr's office to see if there is a support group for kids, or even someone who can talk to him one on one, because I am at my wit's end. Your daughter may process it better, but I would be prepared for the opposite. I'm sure it's a scary thing for the kids, even though they don't really understand what cancer means.

  • Mojojennijo
    Mojojennijo Member Posts: 173
    edited September 2017

    I had spent all of the last year in school to start working on my new career when my son (our youngest started kindergarten. I started working in July and he started in September. However, I was having trouble with the annount I was being scheduled and took a leave from work. I think I am on call. But anyways I knew I wouldn't be able to keep up. Very demanding job physically.

    So I start dd ac Wednesday for 8 weeks. The. MRI and if all is on track then start 4 months of perjeta and herceptin after.

    I'm curious too about my ability to be the mom I was. We also have two teenage daughters. One starting college and one starting highschool. I'm going to be spread thin I think.

    Then with the mastectomy and radiation after it's going to be a seeming long interesting road. But my teenagers are helpful!

    It's good to know I'm not alone in this worry

  • Mojojennijo
    Mojojennijo Member Posts: 173
    edited September 2017

    autumn, when I try to tell my son he gets mad and says “stop talking about it"!inwanted to prepare him and used words similar to what you did. I even got him a coloring book about it and he threw it away.

    My teenager daughters and I share a strong bond. We are very open. My son is my mamas boy and very attached to me. Just so interesting how they all react so differently. But his breaks my heart cause I know he is having a hard time accepting the change coming. I’m gonna try my best to not make it as big of a change.

  • Wonderwoman386
    Wonderwoman386 Member Posts: 48
    edited September 2017

    I’m so glad I found this feed.

    I’m 31 and my daughter is 5 months old, i had surgery first(double mastectomy and reconstruction) and it’s not nearly as bad as I had anticipated.

    3.5 weeks post op and I was able to pick up my daughter out of her crib. I sobbed tears of joy when my doc told me I could scoop her up.

    I start AC next week (oct 4th) I’m doing DD AC then DD Taxol.

    Anyone do standard dose Taxol? I’ve read ofwomen getting Taxol weekly x12 weeks and the side effects aren’t nearly as bad, one woman blogged that she still worked through Taxol at her desk job.

  • Castigame
    Castigame Member Posts: 752
    edited September 2017

    wonderwoman,

    I had 4DDAC followed by 4DD Taxol. The entire bleep was brutal. But I am a lot older than you. Taxol was a lot harder for me than AC.

    After DD taxol #1, I contemplated switching to weekly. Glad I did not bc I honestly threw the entire kitchen sink at BC. DD does 2.5 times wkly dosage. So it is shorter. SEs are cumulative so whether wkly or DD, it takes its own time to leave our system.

    Either way, minimal SEs.


  • lynae23
    lynae23 Member Posts: 85
    edited October 2017

    Hi ladies..I had Taxol weekly for 12 weeks followed by AC & worked the entire time. I worked from home on chemo days & usually only a few hours then rested. I took it easy on weekends and listened to my body and rested when i could! I have an 8 year old and my hubby works alot so there were days when we just watched tv and I didn't do much after work. The taxol made me very tired and the AC just made me feel bad like i had the flu but i took the neulasta shot after each AC chemo and that helped but it does make you ache. I began chemo in feb & done in june and I must admit it went by fast for me because I worked and that was a good distraction! Hang in therr ladies & hugs to you all

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