INSOMNIACS place to talk in the wee hours
Comments
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MammaRay: my sympathies! Can SO sympathize with being ready to go home (I just got sprung from four days in the hospital, and I was ready after day 1) Let me know if you need help digging an escape tunnel (joke from a previous stay)
JunieB: pasta and sauces sounds grand--hospital food sucks big time--though I'd probably go for the "cupcake" style sweet breads; chocolates go down a treat, but something homemade is special. Definitely taking notes for my next hospital stay.
FeelingFeline: huh, I could have used one of those cards. Sigh. All I knew was that that patch on my leg looked funny.
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Feline that is a perfect summary of the problem of the HPV vaccine. Do you mind if I copy it to Pain and Other Things. Then maybe I can pull up the original trial and the pro-con about fast tracking. There was a documentary some years ago about what you described. It highlighted several families where the girls had untoward effects.
The vaccine was one of the first drugs fast tracked by the FDA. The FDA effectively changed the process of how a drug was approved. The discussion at the time was the < 1000 girls in the study. length of the study(short), not sure what else.
The extension was how would this apply to other drugs. The fast tracking negated allot of the safety mechanisms. Considering that a % of approved drugs are found to be unsafe after the approval. Perceived reduction in the safety of the pre-approval process was of concern.
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Junie - Our dogs loved to have them around, very entertaining. Sadly, our last pet skunk died about three autumn ago.
MamaRay - does the defibrillator make you feel better? How long to get used to it?
Queenmomcat - my daughter had some wild accidents. Only one minor one was her fault. Others were at fault, conditions of the road and not being careful enough, imho, so her fault on those. Within two months she rolled a car and an SUV. My heart! I can go a lifetime without another day like the accident Hubby and I were in, worst day of my life. I prefer to drive, be in control, let the craziness go around me. But cannot drive for a long time due to the cough and so I don't.
Up late, drinking herb tea for cough. Took a slug of apple cider vinegar for throat congestion. It worked last night, hope it does tonight.
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MammaRay - Sure hope the defibrillator works for you and you get to go home soon.
Queenie - Feeling any better today?
Bluebird - To bad that you don't have your skunky friends any longer. I hope the apple cider vinegar works again tonight.
Kirby gave me quite the scare Wednesday morning. It was 3 a.m. when he stuck his nose in my ear to let me know he needed to go out, and I am glad he does that, but when he tried to go #2 he howled in pain and couldn't go. We have an emergency vet for night time calls here, but without a car and no buses running I had to wait until 7:30 to call his vet. So I get up, take a shower and take him on the bus at 8 a.m. We get to the vet and she does the exam (finger up his bottom and checked his belly) both were fine, thankfully. He does have some diarrhea though. No temp and still eating though. Yay!
When I took Kirby to the park yesterday I met a woman who was surprised to hear the name Kirby because she hadn't met a dog with that name since she was growing up. She also told me that her family had had a pair of German Shepard's whose names were Kirby & Hoover. Funny!
Anyway, that's all for now. Off to bed for me. Goodnight everyone.
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Sas no problem at all. I went back and edited typo. (Why do I always notice the typo AFTER I post?)
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Feline, I'm the same way. Often looking for an old post, I find a post with a typo and am compelled to fix it. Thanks for the repost permission. Your post is truly perfect re: the thoughts of a mother protecting her child from harm.
Susie M Your welcome on the storm stuff. We share allot down here. Everyone has tidbits tp make it through. Another thing that we share is how to manage bugs. Up north, I was mortified to see a bug truck either at my home or someonelse's Here we sit and chat with total strangers.
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Blue I looked at Vinegar one time it's fascinating. 5000 y/o oodles of uses. A gift from God.
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Blue another thought on the cough. I recently 5 weeks ago went on CPAP. I had trouble breathing for more than a year. One of the problems was mucus membrane swelling. I managed it for awhile with Listerine and Biotene. I knew the source though was related to mouth breathing after I feel asleep. DRY as a dessert. Caused a dry cough. Ask your hubby is you snore? You can pull up other questions easily. Might be worth alook
The CPAP has humidified airflow. Not only are the mucus membranes recovered, my sense of smell has improved. Whoooooooohoooo . I was shocked at first. It keeps getting better. Silver ling behind the cloud--again
Even if you don't try a test for apnea. Maybe a room humidifier would help.
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Googled sleep apnea and Lupus answer " In addition to the effects on the skin and the joints,it has been proven that SLE can cause restless leg syndrome and sleep apnea." on a forum site
This is another doc forum type site. He sites several cases related to autoimmune things. His last sentence said he found some anecdotal studies , but didn't cite them in a bibliography.
http://doctorstevenpark.com/can-sleep-apnea-cause-lupus
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Blue: Here we go Evidence based research
http://www.arthritisresearchuk.org/news/general-ne...
"Participants were followed for five years to see whether they developed certain autoimmune diseases - rheumatoid arthritis, ankylosing spondylitis and systemic lupus erythematosus.
During that time, 1.76 per cent of the participants developed an autoimmune disease.
"There was a noticeable difference between the two groups of patients, with 2.91 per cent of OSA sufferers being diagnosed with an autoimmune disease, compared with just 1.53 per cent of non-sufferers.
Once certain geographic and socioeconomic factors had been taken into account, the researchers concluded that people with OSA were almost twice as likely as those without the sleep condition to develop an autoimmune disease over the five-year period."
YOOOHOOOOO Blue you should ask for a sleep study
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I followed the breadcrumbs to see if there was a link between cancer and Obstructive (OBS) sleep apnea. This longitudinal study found that there wasn't, but the main researcher did admit they didn't have access to all the data related to the patients that had cancer at the beginning of the study and those that developed cancer during the study.
IMO What that means is that there are still some unknowns. So, the conclusion of the study that says OSA is not related to causing cancer still is open to further research.
https://www.medicalnewstoday.com/articles/280617.php
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Bluebird: one rollover into a ditch, one slideoff into a ditch and dunno how many "slithers" due to winter weather. I'm with you in preferring to be the driver at this point! Good luck with your cough; my lung congestion sends your lung congestion sympathies.
JunieB: slowly but surely getting better. Or at the least, reducing my sleep deficit. (My teacher sent me home early last night; he knew I'd been in the hospital.)Thank you for asking!
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Feline, good for you Mama Bear. I hope they continue to make it optional here. So sad for the kids in Rhode Island.
Queenie, good to hear you are on the mend. I would get panic attack driving in your winter weather. Nice to have understanding professor.
Susie, maybe we came from the same "tribe". We can tease each other here and be serious when necessary.
Junieb, wonder if Kirby had gas. Poor fellow.
Ms. Sas, thank you for checking on my niece.l (although I felt like you were checking on me😊). For that I thank you! Both she and SIL told me to tell you thank you. There you go connecting the dots again. Haha
BlueB, I hope the apple cider vinegar continues to help your lungs. It's an amazing fluid....almost liquid gold.
Mommy, hope you are doing ok.
MammaRay, sorry we couldn't chat this morning. Was looking forward to hearing your beautiful voice.
Hello to my other Sistas.
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Sas - Thank you. I will read the Dr. Park information soon, bookmarked to follow him on some points too. ANAs go up and own with the tide, unfortunately. That is why lupus is so difficult to actually diagnose. But when it is down, one tends to feel better as there isn't an ongoing horrific flare.
I did have a sleep test in March, very low degree. And that was when the cancer was closing off right bronchial tube and the main airway and superior vena cava vein. I tried the CPAP and hated it. I coughed all the time anyway. Such was the plastic smell all over my face when I removed the mask that I got another mask of different plastic and it did the same. So I gave it back. I do snore if on my back but I am a side sleeper.
There is a feeling in my throat - that of a cool rush of wind - it never stops. I sleep on my side with my head tucked down and a warm blanket over my face just enough to not feel snuffed out. Drink apple cider vinegar before bed now along with an herbal tea called Breathe Easy and I add 2 drops of bloodroot extract. Powerful dangerous stuff, only two drops 2x a day if internally dosed. Until last few days I never used it except for poison ivy right on rash or a gum issue once. Am hoping this will do it in a few days, if not there is a 'cough syrup' of bloodroot and vinegar and sugar I will try.
Am also trying some blue green algae (spirulina) for inflammation. Ordered some Phycox Max for my dog and decided it can't hurt to try for me, only a people product.
And yes - a cooling humidifier would really help. It is on the list for October.
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Doing okay
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Good very early morning ~ just had to be a proud mama and show off my 6 a.m. wake up call.
This is Miss Pris's first birdie and first mammal. While I'm glad she's moving up from reptiles I wish she would skip the birds and go directly to rodents; specifically moles. And not bring her prizes Into the bedroom again.....
PS...... I did bring bird outside and set it free
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Oh how fortunate the bird was ok.
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Mommy, good to hear. How are you handling Perjeta/Herceptin? I realized you are also ER/PR-
BlueB, looked up bloodroot...interesting herb. So much we don't know. I hope you feel better today.
Oh Pris. Tsk tsk tsk. Is that a sign of affection? Beautiful but scared bird. And yes Anna was the one that made us all seem out of shape.
Saw this sign and it reminded me of the time I was in 6th or 7th grade. We had two guys with somewhat similar names. The teacher was doing the roll call and you can figure out the rest. Even the teacher couldn't hide her laughter.
P.S. The two boys were among those of us who couldn't stop laughing.
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It's going good.
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LoverOL - LOL. We had two parakeets. Tweedledee and Tweedledum. One day Hubby was cleaning their cage and Tweedledee got out. Hollister, the cat went after it and Hubby after them "Damn! cat!!!!" as they literally flew up and down the stairs through rooms and back until Hubby got the cat. I got the bird later. But it was a Hubby moment I will never forget. So the man can run, right?
Which reminded me of the day the cat got a bath. Long long ago. Hubby still has that head of hair and he is 64, no gray. I look like a cougar.
Which reminded me of the day the next cat, Snuggles, brought a chipmunk into the house, alive and well but most displeased. The chipmunk got free since Snugs wanted to play with it before he kilt it dead. And it ran around then out the open door, safe from cat. So yes, the dead or alive animals brought to their person is a sign of affection. And they wonder why we are not so impressed.
The aged Snuggles. He lived to well over 20.
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Lover of life - Adding, on the bloodroot. I found a lot of information from ancient doctors dated 1883. A book of materia medica where they relate the experiences and house calls and all which is relative to each herb. This is before penicillin and pharmaceuticals. They had bottles of tincture and extracts that were made by them and the herb people of the day. Bloodroot is a narcotic and highly poisonous. I am using two drops extract twice a day whereas the bottle reads 4 - 6 a day is all right. But not going to push it. And I do not suggest anyone else use this on their own. I have to say that.
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Bluebird. Sorry the CPAP didn't work for you. I knew I needed it for a year. SNAFU's delayed the result which was receiving the unit. A whole friggen year of SNAFU's.
It was not easy the first week or so, but it was worked out. I am, however, going to try another mask. That requires an 2 hour trip for a fit, but I linked it to another doc visit the same day within a few minutes of each other.
BUT BUT but, Hahahaha I did feel good that with the following symptoms and dx of cough, sleeping trouble, and lupus that after reading came to a conclusion you should have a sleep study. Whalla, you had it, but had you not, it may have been a viable chase. I love the chase, I must admit. Look for that puzzle piece that was dropped under the couch.
Many are to young to remember snafu. It's original meaning was from WW2. "Situation normal all fucked up". It was down graded in Merriam Webster's to " situation normal all fouled up". I like it's original meaning.
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Blue damn " There is a feeling in my throat - that of a cool rush of wind - it never stops" " I sleep on my side with my head tucked down and a warm blanket over my face just enough to not feel snuffed out." Two extremely interesting statements. Particularly, the first statement. "cool rush of wind- it never stops". Have a thought. Be back
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Blue, " There is a feeling in my throat - that of a cool rush of wind - it never stops". My thought was a problem with the epiglottis. Similar to what Chance Sensi's dog has. That could be a problem, but first Gerds
Interestingly, and didn't expect this is GERDs could be a problem.
With the connective tissue disorders of Lupus and Scleroderma , Gerds is a problem b/c of the esophagus problems. A dear friend has scleroderma. You know longevity is cut short with these diseases, but they are differently managed now than in earlier times. My friend was given 20 years to live when dx'd at 19. She's 72 now. Vibrant and irritating the world(activist). She has been very active in the Scleroderma group for many years i.e decades.
One dietary change she made based on recommendations, was no meat. She eats salmon and nothing spicy. Salmon exclusively is her choice b/c she doesn't like other fish. I'd have to call her and see what the recommendations to her group other than what she has done.
If GERDS is already apart of your known things. Then this is irrelevant. But the way you describe positioning it fits.
http://www.healthhype.com/throat-burp-knot-in-throat-difficulty-swallowing-small-burps.html
But this study which is very technical also fits
https://www.ncbi.nlm.nih.gov/pubmed/7075127
What I recommend is a Swallowing study with Real time Fluroscopy with a Speech pathologist at the study.
What they look at is how all the structures work in the swallowing and function of all that happens in the throat.
Concurrent to that, it is reasonable to have a GI guy do and endoscopy which is a look into the esophagus, stomach, first portion of the duodenum. Your interest is the esophagus. That would show if Gerds were a problem b/c evidence of regurgitation undx'd previously i.e tissue inflammation. That can be controlled with drugs and diet. Drugs are another discussion.
BUT BUT but and another but the cider..........Oh the cider
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This site has much to offer
http://homeremediesforlife.com/apple-cider-vinegar-for-acid-reflux/
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For those that have done a roll over. DH Greg did a rollover. He walked out of ER that night and we applauded him. He survived b/c of his seatbelt.
But there was a time he wouldn't wear it. I had to pull the "I won't get in the car if you don't." It then became automatic after a time.
But must admit if there were a passenger in the van they would have been squisshed
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Oooh the light bulb just came on. May I add my thoughts....,some drugs can actually cause reflux ( calcium channel blockers, potassium supplements for example).
From Mayo:
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Thanks Loverly. YAY Drugs that help and create problems. Polypharmacy. is close to the top of all hospital admissions.
Then there is cider vinegar. No clue and not going to look about the blood thingy. I once was talked into wormwort(d). Never took it after buying. But I did take notice in a potions class in a Harry Potter movie when it was brought up.
We as humans survived b/c we paid attention to animals that survived on things i.e vegetation.. Those things grew to include other things like cider vinegar survived over thousands of years. Flaxseeds were found in casks in tombs 5000 thousand years old, still viable b/c the husk wasn't broken. In Charlemagne's time, he declared that all subjects should take so much flax per day. I forget the amount. It was by observation that it was good. Empirical science, but they didn't know those words then. They just knew it was good. It was Omega3. What do you here today? Omega3. Oh getting on a tangent Hahaha. Wine. Wine has a wonderful long history too.
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