Pregnancy

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alrz1980
alrz1980 Member Posts: 47
edited September 2017 in Lymphedema

Does anyone know how pregnancy affects lymohedema? If you don't have LE, but had a lymph node removed, would pregnancy increase the chances of triggering it? I can't find any info/statistics on this online. Thanks in advance!

Comments

  • carol57
    carol57 Member Posts: 3,567
    edited August 2013

    alrz, that's an interesting question!  I've never seen anything that comments on that either. Those of us looking here but not posting, let's bump every so often to make sure the question stays in view for a while. There may be some who check in infrequently, who have some thoughts on this.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2013

    alrz - yes lets hope someone will chime in on this for you. There's some pretty knowledgeable ladies here!

  • BeckySharp
    BeckySharp Member Posts: 935
    edited August 2013
  • Binney4
    Binney4 Member Posts: 8,609
    edited August 2013

    alrz, I'd bet there are no studies of pregnancy and upper extremity LE. There's more information about women with leg LE and pregnancy, but those are usually women with primary LE. They do have a bit of a bumpy road with pregnancy, but staying alert to it and on top of self-care makes it possible to manage the nine months with good control.

    If it's any comfort, there have been many women on the bc.org boards over the years who have had babies after breast cancer treatment (many were pregnant when diagnosed, in fact, and since they were young their bc was treated agressively), and not one of them has ever shown up here on the LE board. If they had, we'd have welcomed them warmly, empathized with their diagnosis, and then helped them find their way back to mothering with joy. LE is a bummer, but it's not a deal breaker.

    If you are concerned about developing LE with pregnancy, I'd suggest finding a really well-trained, experienced LE therapist and working with her/him to make that very special time both successful and comfortable. LE caught early is much less of an issue than when there's a delay in diagnosis or treatment, so it's win-win. Here's how to find one near you:
    http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

    Be well!
    Binney

  • alrz1980
    alrz1980 Member Posts: 47
    edited August 2013

    Thanks! Maybe others will also chime in with opinions. I appreciate all of them! Meeting with a CLT next week to talk about the risks.

  • Cuculi
    Cuculi Member Posts: 148
    edited September 2013

    Hi!

    The following thread

    Coming off tamoxifen earlier to have a baby has been quite useful for me. It is about tamoxifen but the were some posts regarding lymphedema. Maybe other threads in that forum. Is something I will need to research as well. Had 24 nodes removed and 4 "infected". I actually use homeopathy. Anything I find I will post it!



    http://community.breastcancer.org/forum/27/topic/763924



    Cyber hugs!

  • clarrn
    clarrn Member Posts: 557
    edited September 2017

    Hi! I was searching for something similar. I have mild LE in my right arm. I don't wear my sleeve and gauntlet except when I am doing something physical or flying, but I am 4 months pregnant and wondering if I should be wearing it more. No issues so far, and will definitely wear during labor, but wondering if anyone has been in my shoes? Any tips?

  • hugz4u
    hugz4u Member Posts: 2,781
    edited September 2017

    Yeah a cute baby coming. Congrats! And welcome here.

    If you are diagnosed and told toward a sleeve and hand garments then I would even if it's mild because it can progress if not looked after. Especially if your not use to holding something all day long like a heavy baby with LE arm. Lifting something your not use to can put stress on the le arm and send le fluid to your arm in defense causing swelling and we don't have normal lymph system to drain it outeasily. But don't be discouraged!

    Now is the time to build up slowly (yes slowly)by weight training your le arm so your able to load car seats,heavy formula grocery bags and Baby equipment without ill effects. As baby grows you will be increasing your ability to sustain the new weight which will be good and your le arm will get use to the gradual weight change.

    If your in top physical condition and le arm is use to hauling heavy stuff then you will do fine.

    We are here to help and of course we want baby updates.

    Hey all we're having a baby on the le threads! Yeah hoo!

  • clarrn
    clarrn Member Posts: 557
    edited September 2017

    Thanks for the advice hugz. I will start weights slowly again to get ready! :)

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