Starting Radiation August 2017

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  • MamaOz
    MamaOz Member Posts: 432
    edited September 2017

    yes my temp is down, but dr wants to check me out anyway, who knows .. its been almost 3 weeks since ive had any radiation. Maybe it was normal aftermath as I had a patch on my chest that was irritated and very itchy that occurred a week after my postponement

    Although I may run a urine sample over to my fam dr in am to rule out UTI

    Ever since stopping estrogen cream in dec upon cancer discovery , ive had a several this past year, i dont have typical symptoms but one never knows

    thank you for asking lego

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  • Mimie
    Mimie Member Posts: 42
    edited September 2017

    MamaOz- I hit total fatigue after 20 sessions (my last), on Wednesday. I'm trying to work, but have cut back my hours. My RO says the pain and fatigue will get worse for 2 weeks out, and then slowly get better. Congratulations to all the radiation alumni! My MO wants me to stabilize and start hormone blockers in December or January.

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  • Castigame
    Castigame Member Posts: 752
    edited September 2017

    my zapped armpit is no longer sizzling!!!😁

    I still pray no shave for the armpit since it got fried.

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  • Lanne2389
    Lanne2389 Member Posts: 229
    edited September 2017

    Hi MaMaOz- how are you doing? You must be finished with rads by now, me too. Had to postpone the last week for a week as I was getting to burned. Glad it done! Now just healing.

    Kae- I'm still having pain and discomfort from the TEs. The right side has moved too far into my armpit and is is uncomfortable. Still have the sandpaper feeling around the edges and still have sensitivity all over. Started on gabapentin and that helps but overall, they're just uncomfortable. Can't imagine doing this for 9 months. How are you doing?

    For anyone that has had your final implant swap completed, how to you feel about your shape? Is is different than your TE shape? Im not thrilled with my TE shape so wondering how different or the same it is!

    Lanne



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  • Castigame
    Castigame Member Posts: 752
    edited September 2017

    gm sisters.

    Happy Monday!!!

    Illimae ,relief is on its way. In addition to underarm being cooled, swelling in limbs went down drasticallyl! Today is day 11.

    Mamaoz, I hope you feel better just a few more for you, Try to stay cool as possible.

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  • MamaOz
    MamaOz Member Posts: 432
    edited September 2017

    hey girls got word I restart tomorrow 8 to go

    Fever due to a Uti go figure

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  • Castigame
    Castigame Member Posts: 752
    edited September 2017

    mamaoz,

    You ain't got time for UTI.

    Hugs

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  • MamaOz
    MamaOz Member Posts: 432
    edited September 2017

    i know mimi, but the fever had me thrown for a loop this weekend taking antibiotics so starting to feel a little better

    Going to pt before rads tomorrow so hoping she can get my lymph glands flowing

    Again so happy your finished!


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  • elootz
    elootz Member Posts: 12
    edited September 2017

    Thank you MamaOz for the kind words and Mandycat and Shocked for sharing your similar stories. I've got 3 more regular rad sessions and then 5 boosts to go. I'm red, but no peeling skin yet. I think my active lifestyle might be helping with the fatigue as I'm not feeling it yet after 25 sessions. Fingers crossed that holds true to the end. I discovered a bump in my pubic area this week and I'm freaking out a bit that it is a sign of some new cancer. I see my oncologist Tuesday so I'll ask about it then. I already have surgery scheduled for November to have my ovaries removed so maybe they can just roll it into that surgery if it needs to be removed. Who knows?

    Castigame: I saw you mentioned swimming in the Senior Olympics. My grandma, mom and uncle all swim in those too. My grandma is 98 so this last summer may have been her last.

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  • Legomaster225
    Legomaster225 Member Posts: 672
    edited September 2017

    Four more boosts to go! The RO dropped the bolus, that I've used the first 28 treatments, for my last 5 boosts. My skin under my arm is sloughing off. Looks pretty gross. They are doing a great job of taking care of me though and I am thankful for that. Looks like my worst areas are outside the boost area so that will help. He did offer taking the rest of the week off and finishing next week but we decided just to power through and get this done!

    Elootz your grandma is an inspiration! I need to get my fannyoff the couch!!

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  • inccmd
    inccmd Member Posts: 69
    edited September 2017

    So who's the next lucky one to finish radiation?

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  • DonnaJoan
    DonnaJoan Member Posts: 23
    edited September 2017

    Hi Gals, I'm finally back after experiencing Hurricane Irma. We had no power for a week and just got our internet restored yesterday. My treatments were cancelled for a week because of the widespread power outages, but I'm back on track again. This morning I had my 20/33 treatment. The past two days my clavicle area is noticeably red and painful. I've been using coconut oil and Jean's Cream. Yesterday I cut some fresh aloe, but even this didn"t take away the burning sensation. I'm concerned about still having 8 more treatments and 5 boosts remaining. Several months ago, I made reservations for October 18th to fly to Illinois to visit family. Since missing a week of treatments I won't finish until the day before my planned departure. I'm concerned about fatigue. For those of you who are nearing the end of 30+ treatments, would you advise that I postpone my trip? I've read that sometimes symptoms continue or worsen for up to two weeks after completion of treatments.

    Thanks for any words of wisdom you can share.


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  • illimae
    illimae Member Posts: 5,710
    edited September 2017

    I finished rads 6 days ago and had to stay home from work today because the blistering, peeling and pain makes wearing clothing and sleeping on my side very uncomfortable. Fatigue hasn't been an issue but my skin certainly has. RO says it looks normal, so I'm just relaxing today.

    Hope everyone else is doing ok :)

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  • Castigame
    Castigame Member Posts: 752
    edited September 2017

    DonnaJoan,

    Short answer is no. Unfortunately rad scar gets worse after completion. I had no peeling or blisters when I finished. Peeled and blistered after and it took two weeks to heal. The first week after rads quite painful. I would postpone the trip,


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  • Castigame
    Castigame Member Posts: 752
    edited September 2017

    Will be seeing BS and RO tomorrow, I know they would be happy for me.Getting AI script also. I am set on brand name.

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  • Mimie
    Mimie Member Posts: 42
    edited September 2017

    I'm 8 days post rads and today it's very itchy. Any suggestions on what to apply to relieve this?

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  • Legomaster225
    Legomaster225 Member Posts: 672
    edited September 2017

    They gave me hydrocortisone cream for the itching Mimie. It works for a quite a few hours for me.

    DonnaJoan, I have not really been tired at all. My skin however is turning black and red and sloughing off. I have three boosts to go. I'm glad that at least the area outside the boost area can start to heal now. I certainly could not wear a bra now though. I take Motrin round the clock and have spand gel pads that I wear in the worst areas under my arm. Aquafor, which I hated because it's so greasy, is my best friend now. If you are traveling to see family and would be comfortable with that and the sleeping and skin care needs then go. If not and if you can easily reschedule that might be good. Some of my rads friends are fine though. They are just pink - so not everyone has the really bad reactions. Maybe you will be lucky too.

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  • illimae
    illimae Member Posts: 5,710
    edited September 2017

    Today is two weeks out from the last regular rads treatment and one week from the last boost. I am staying home again today to rest and not deal with work clothes or a seatbelt. I've sent my friend/coworker the following excuses for not coming in today, they are....

    Boobie burn, fiery flapjacks, sizzling sandbags and melting melons.

    Lego, I agree about the aquaphor, I love/hate it too.

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  • Castigame
    Castigame Member Posts: 752
    edited September 2017

    illimae, mimie and lego

    I hope you feel better soon.


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  • Castigame
    Castigame Member Posts: 752
    edited September 2017

    Got a script for 7 day tamoxifen as well as Arimidex script for 90 days.

    Both RO and BS were very happy to see me. Next trip to Moffitt is Feb 2018


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  • Legomaster225
    Legomaster225 Member Posts: 672
    edited September 2017

    Why 7 days of tamoxifen? Just curious - although you might have already talked about that and I missed it.

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  • Castigame
    Castigame Member Posts: 752
    edited September 2017

    oct 16 th orthopedic surgery, tamox has blood clot risk so only 7 days.

    Oct 30th is total hyst. again Castigame!!!

    p.s. I just swallowed 1 of the 7 without any water. And put a daily reminder to take it

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  • Legomaster225
    Legomaster225 Member Posts: 672
    edited September 2017

    ahh yes. I remember now. You do have quite a few more surgeries coming up. Good luck with those Castigame

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  • Landri
    Landri Member Posts: 9
    edited September 2017

    Leanne

    I'd also like to know how anyone's doing withTE?? I finished rads yesterday! Yay! Hoping to get lack ofenergy and redness under control soon

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  • MamaOz
    MamaOz Member Posts: 432
    edited September 2017

    donna dont use oil!!

    Aloe or aquafjor, the jeans cream prob ok

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  • inccmd
    inccmd Member Posts: 69
    edited September 2017

    Mimie - Hydrocortisone cream helped a lot with itching.

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  • MamaOz
    MamaOz Member Posts: 432
    edited September 2017

    oh thanks mimmie I am starting to itc

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  • Mimie
    Mimie Member Posts: 42
    edited September 2017

    Ladies -thank you all for the hydrocortisone suggestion, I've started using it. I hope this phase doesn't last long. 🙁

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  • MJPow
    MJPow Member Posts: 75
    edited September 2017

    I want to thank everyone for all the suggestions! I'm 22 down 11 to go which incluces 5 boosts.

    I have little fatigue so far. The green tea has worked wonders and my radiologist is just amazed at my skin. I have started to use aloe directly from the plant as well I wash it before use and it just pulls the red. I use the Miaderm a couple times a day. Where I ignored my back with the green tea initially is the most red so I know the green tea was the difference for me!

    So thank you for all the ideas and suggestions

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  • Mimie
    Mimie Member Posts: 42
    edited October 2017

    The hydrocortisone is relieving the itch fabulously. Today's symptom is pain in upper chest, by my breast bone. Feels like a 100 lb. weight. I had a similar pain but much less severe toward the end of treatment. Anyone else experience this?

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