Just Diagnosed and Trying to Manage the Anxiety!
I was just diagnosed with surgery planned for Oct. 16 - not sure yet if it will be a lumpectomy with radiation or a mastectomy. I'm leaning towards the mastectomy and no reconstruction as I'm 56 - my breasts have served me well and I'm ok with just having 1 breast or no breasts. I have 2 questions;
1. I struggle with anxiety - more so now with the worry that the cancer has spread elsewhere in my body. At as active 56 yr. old - i have many other aches and pains and now worry that it is the cancer that has spread to other parts of my body. The anxiety is waking me up at night and I then have trouble returning to sleep. Anything that was helpful for others?
2. Anyone else just opt for a single mastectomy and not do reconstruction? What are the challenges of being " single - breasted?"
Many thanks!!!! Kim
Comments
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Kim, I have never had anxiety until I was diagnosed. I had a couple of panic attacks and almost went to the hospital I was so freaked out. I was given lorazapam to take for the panic attacks and then put on sertraline daily. Lorazapam also helps you sleep. It has helped me so much! I would encourage you to ask your doctor for something to help.
Best of luck, you can do this!
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Kim, I had a UMX with no recon, and have found no challenges. I don't wear a prosthesis, just go flat on one side (the other side is a DD).
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Hi Kims1961 - I am so sorry you have BC. I am 59, and when I was diagnosed with BC on the left side and told I had to have a mastectomy, there was no hesitation to decide to have dbl mastectomy (BMX) no Reconstruction. My BS wasn't to happy taking a perfectly good breast, but going flat didn't include my droopy breast. I am 4 1/2 weeks post op and I have no regrets taking both breasts.
If you look under "Active Topics" you'll find many posts and stories that will give you knowledge, insight, comfort and tips that our Dr's don't share. There is a site to prepare you for surgery, what to buy and get to make you more comfortable. And "Surgery in August 2017" served me well. If there is not a topic for "Surgery in October 2017" you may want to start one. Its comforting to find others who are having surgery the same time and can compare notes and share tips.
Take care and Breathe.
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Hi Kim, I was 53 when diagnosed and had a left mastectomy right away. I didn't want to wait for approval for a double. I tried different ways to get symmetry, but never felt quite comfortable. I felt lopsided. I had never had surgery and was pretty adamant that I did not want reconstruction. However, I started reading the DIEP threads here and found that no one regretted their decision, even those who had complications. I decided to have reconstruction and I am happy that I did. It is not an easy choice because it is a long process (and painful) but for me it helped me focus on something besides recurrence. It is a personal choice and you need to do what works for you and your lifestyle. I just wanted to share my experience because how you feel upon diagnosis can change in a few months. And yes, I wish I had asked for something for anxiety sooner than I did.
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Hi Kim, ask you MO to get some Ativan so you can be more relax and get some sleep. Check on other posts you will find their stories and they might help you to decide what to do.
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Kim, instead of Ativan, I'd look into any programs that fall into the mindfulness category. Here is some research describing why: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3457885/ and here: http://www.breastcancer.org/research-news/mindfulness-based-stress-reduction-improves-qol
Here is a clinical trial: https://clinicaltrials.gov/ct2/show/NCT02647216
and one more: http://www.nicabm.com/pink-ribbon-mindfulness-mindfulness-meditation-and-cancer-recovery/
This type of program will leave you with tools that continue to positively impact your life. ((hugs))
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Thank you for responding and the links
I have been an avid " runner/jogger" for most of my life - it's been my mindfulness. Unfortunately- just prior to my diagnosis - i put my back out - so my normal coping strategy was gone. Now am trying walking and knitting to distract myself.
Really appreciate your response.
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Thank you for your response - just getting responses and reading the other posts has helped...many thx
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Thank you for your post
It's such a personal journey and i worry about making wrong decisions - but as i read the other posts realize that we do the best we can do - whether it be just getting through the day or by making some very big decisions.
Really appreciate your response.
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Hello!
Great idea about the Surgery in October posts - I see the moderator has started a group.
Thanks for your input - hope you are healing well. I so agree with your message about the journey being a personal one and that we make the decision we need to make for ourselves.
Any significant challenges with having the double mastectomy at the same time?
Thanks again
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Hi Kim, i am so sorry about the anxiety you have but i cried reading your post because i feel the same and feel defective that after surgery I could not control my emotions. I literally had constant anxiety and emotional crashes. Even overwhelmed my partner. Thank you so much for having the courage to post this. I still feel that I shouldn't have these intense emotions as my situation is so much better than so many people. In love, Lynn
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I know how u feel I too had anxiety that it was all over I was planning my 2nd marriage when I found my lump had my cry then decided to fight the good fight with Faith Hope and lots of Positive thinking I am now Praise God a 23yr Survivor I decided on mastectomy left I too felt like my breast served me well. msphil idc stage 2 0\3 nodes Lmast chemo before and after surgery got married 7wks rads then 5yrs on tamoxifen. God Bless Us All
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My goodness, how could it be possible to NOT have anxiety! I'd be willing to bet that there's not one single person on this forum who hasn't suffered extreme anxiety!!
It's OK to be anxious! Anxiety is absolutely to be expected, and you're not weak.
It's been 18 months since I had my bilateral mastectomy. I'm 47. I had cancer in one breast but chose a bilateral mastectomy and reconstruction. I'm almost done with reconstruction now - had my 2nd round of fat grafting last week. My breasts look and feel awesome, by the way, and that makes up for a little bit of what I've had to go through. It's so awesome never having to wear a bra! Reconstruction has definitely been worth it for me.
I'm not going to say breast cancer doesn't suck. It definitely does. These have been the most difficult months of my entire life, and my whole life has changed. I got my diagnosis a couple of days after I fractured my pelvis in 5 places in a horse accident. I had to be off work for 6 months, and that was earlier than I should have gone back to work, plus all this happened as my husband and I were moving from his home state of MI back to my home state of KS.
I have made it through so many things I never would have thought I could survive. I was told chemo and radiatioin wouldn't make a difference in my prognosis due to the type of cancer I have, and I'm grateful I didn't have to go through chemo or radiation. Physically, I would not be afraid to go through what I went through again. There seriously has not been real physical suffering and was a physical cake walk compared to what I imagined it would be. I thank God every day that I didn't have to have chemo or radiation but I now realize I could have got through that, too.The surgeries weren't nearly as bad as I imagined. Seeing myself after my mastectomy wasn't half as bad as I thought it would be, especially because I had the tissue expanders placed during the mastectomy. Even though they weren't filled, the small amount of saline that was in them kept me from having that concave look that I was so phobic about.
Being off work - now, that WAS as bad as I imagined. We nearly went bankrupt. Only by the grace of God did we financially survive this ordeal.
NOTHING has nearly been as bad as the anxiety I had during the time between finding the lump and getting the diagnosis, and then the time leading up to the mastectomy. I hope I never have to go through that sort of anxiety again. I just want you to know that I'm OK, and you're going to be OK. Nothing is ever as bad as we imagine it could be. Even the worst case scenario, in real life, is not nearly as bad as our imaginations make it out to be.
I've learned to give myself a break. Prior to all this I was practically a teetotaller. I was a total type A perfectionist crazy lady and I must tell you that this ordeel has totally mellowed me out. I have learned to drink two glasses of wine or 2-3 beers before bed every night now, and to totally love the heck out of myself and forgive myself for each and every thing about myself that I have ever perceived as weakness - because I am a total bada$. I'm enjoying the heck out of every moment I have with friends and family.
I've been through some stuff and come out the other end stronger and more capable than before. If I can get through this I can get through anything!! Since my surgery, I have advanced my career, got a gym membership and started working out and tanning, and set a 10-yr-goal for me and my horse to complete Tevis (a 24-hour, 100-mile, very difficult horse endurance race). I've got 2 granddaughters and 9 step grandchildren who love the heck out of me, and I love them. I've definitely found my priorities in this life and dedicate all my time to my highest priorities.
My doctor promised me I will still be around in 10 years and, by God, I'm going to enjoy the heck out of these 10 years! I could live to be over 100 still, but I'm making it a priority to enjoy the next 10 years for sure.
This sucks, sucks, sucks, sucks, sucks for you - but you'll come out the other end. If you're not on any medications for anxiety, talk to your doctor about that. Give yourself a break, no high expectations for yourself right now. Cancer is awful, and scary, and you have the right to cry and scream and drink and be forgetful and feel weak and everything else that goes along with it right now.
Just remember while you're going through it, though - breast cancer has a VERY high survival rate and the treatment is not hell on earth. Reconstruction is not bad at all, either.
Sorry for going on and on. This is my first time back on this forum since I realized I'm going to be OK.
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Thank you to all for the responses!!
Welcome back StaceySue2U - what a badass you are!! - so great to hear stories that are so encouraging....it doesn't make the journey seem so lonely. I have a wonderful husband and family, but also catch myself trying to stay positive for them . Trying to live life not just manage the cancer.
These posts have given me some ways to look for the silver lining with cancer. There is an awesome book called " The Silver Lining" which is very inspiring and helpful as well.
Thank you...Kim
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