Just Diagnosed - BIRAD5 - DCIS high grade!

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Bloodbanker
Bloodbanker Member Posts: 2
edited September 2017 in DCIS (Ductal Carcinoma In Situ)

Still in denial. I'm 42 y/o, Mom of 3.I had Mammogram done last November 2016, had to wait until last month to have my Biopsy done. Microcalcifications noted and stereotactic biopsy done because Ultrasound guided biopsy is not possible. I saw BIRAD5 category in the recent Mammogram result, and still hoped to be one of the fortunate less 5% negative chances. Unfortunately result came DCIS high grade, "good thing" is no invasive malignancy seen. Anyone with the same situation? What effective treatment did you do?  I am yet to see my surgeon after two days, but the agony and anxiety of this big C kept ringing in my mind...please help ease my pain...thanks!

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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2017

    Hi Bloodbanker. We're so sorry for what you're going through. You're feeling a mixture of conflicting emotions but we're sure you'll find support and encouragement here!

    Until you get responses from other members here, you may want to take a look at the Treatment for DCIS section from our main site, where you'll learn about the standard treatment options for DCIS, always considering that each individual situation is different. Please keep us posted on how it goes at your surgeon's appointment, we're thinking of you!

    The Mods

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  • Mtgeventplanner
    Mtgeventplanner Member Posts: 1
    edited September 2017

    hi! I'm a mom of teenage twins. Dcis noninvasive stage 0 at age 43 (Core biopsy in may). MRI showed an enhancement. So, I decided on a bi-mx. Had that aug 2. No cancer in nodes. Now in the process of reconstruction with TE. No radiation, no chemo. I didn't want to worry about the cancer in other breast so I took an aggressive approach. If no enhancement, I might have just had the lumpectomy. Obtained 2 opinions-Highly recommended. Try to Stay calm. Do your research.be your own advocate. Be sure your surgeon is a cancer surgeon and works alongside a certified plastic surgeon. You got this

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  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited September 2017

    same here. DCIS high grade in left breast. Opted for BMX with direct implant reconstruction. Wanted the be the most proactive. No further treatment needed, no regrets. You can do this.

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  • LAstar
    LAstar Member Posts: 1,574
    edited September 2017

    Hi -- I was also diagnosed with DCIS grade 3 in my left breast at 42. After 2 unsuccessful lumpectomies and suspicious spots were observed in opposite breast in MRI, I had BMX (nothing was found in other breast). I am 5.5 years out with no recurrence, and am feeling strong and thankful. Do your research, find a doctor who is trustworthy and knowledgeable, cash in on favors from friends and family without guilt, and you will get through this. This early part is the most stressful. When you have a path forward, it will feel more manageable. You can do this! Life is so sweet on the other side of treatment! {{{hugs}}}

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  • MTwoman
    MTwoman Member Posts: 2,704
    edited September 2017

    bloodbanker,

    I also had a diagnosis of DCIS. I initially elected lx. After my lx surgery, I got an mri which found more areas of dcis in other quadrants, so I ended up with umx. I do agree with above. Get all of your information, find a good well qualified team and then talk with them about your personal risk profile (genetic testing is sometimes recommended based on your age at diagnosis and any family history), your specific bc details (size of lump/area, etc) and your risk tolerance. The surgical options for you range from lx, to umx to bmx and we each make our decision based on what things are most important to us. It is a difficult decision for some women, so there is a pretty comprehensive thread that discusses the choice lx vs mx. It's here: https://community.breastcancer.org/forum/68/topics/806074?page=1

    There is also an excellent 'primer' on dcis here: https://community.breastcancer.org/forum/68/topics/790992?page=1


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  • Bloodbanker
    Bloodbanker Member Posts: 2
    edited September 2017

    Dear all,

    Thank you all for the positive feedbacks. It somehow lifted my spirit! My case will be discussed in the hospital's tumor board tomorrow. After consultation, my surgeon suggested only lx since the area of dense micro calcification is small, then radiotherapy which will then be discuss post surgery. I am not decided yet whether lx or umx , as I am not comfortable with the radiation therapy. For now, I'm praying and hoping whatever medical approach I will have to go through could give successful outcomes. God bless us all...

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  • sweetsmilefh
    sweetsmilefh Member Posts: 14
    edited September 2017

    Hi, Bloodbanker,

    This is my first post, and it sounds like we are in a similar boat, although I am a little farther along than you. I saw 3 breast surgeons, and they all said that DCIS is 100% curable. This is the most important thing to remember. However, everything you are about to go through will be life-changing. Surround yourself with the most supportive and positive people possible. If a doctor says something to you that doesn't make sense, keep asking questions until you understand and feel comfortable with the answer. Also, you can ask your doctor about a medical social worker for additional support and guidance if you wish.

    My story: DCIS High Grade, with comedonecrotic cells and ER and PR-. (Left breast). I had the SAVI Scout placed during my pre-op testing, and a lumpectomy 2 weeks ago. The breast surgeon did a fantastic job, and the incision is healing beautifully. I am still more tired than usual, and when I feel pin pricks, I use an ice pack. The radiation oncologist responded to my concerns about heart issues down the road from the radiation (also diagnosed with diabetes same month as the cancer dx). She told me about DIBH, Deep Inspiration Breath Hold, a deep-breathing technique in which you hold your breath to inflate your lungs, which in turn moves your diaphragm up and moves the heart a bit so it is a bit more out of the way of the radiation. I should start the radiation in another 2 weeks, and am already getting supplies... calendula cream, cheap white tee shirts and drape-y cardigan sweaters (the radiation department is always freezing!)

    Sometimes you may feel like a warrior, other times, everything may feel like a drag. This most intense period will soon pass. I pray a lot... feeling very vulnerable, but also very grateful. I hope you come through with flying colors. Good luck!

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