Newly diagnosed and now everything is cancer

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Kahnartist
Kahnartist Member Posts: 111
edited September 2017 in Just Diagnosed

I was diagnosed Monday. I see the BS Monday. I already suffer from anxiety so now of course everything is relates. I have been exhausted for months. Cancer. I habe a sore throat? Cancer. I have a hangnail? Cancer.

How do you deal with the waiting and unknowns? I don't want to convince myself I am feeling sick and suddenly feel that way.

My spot was on my 2015 mammogram and no call back. Now two biopsies later one is malignant and now I have to deal with this.

I don't like this. Just saying. I want a clear path with items to mark off a to do list. Something tells me I am naive and should prepare for a total loss of control and normalcy. Right?

I'm leaning towards double mastectomy even though the genetics aren't back yet. I don't want to worry and am not happy with my breasts as it is. They are too big and I had a reduction 20 years ago and they grew back.

Anyway, I'll know more Monday.

Comments

  • beach2beach
    beach2beach Member Posts: 996
    edited September 2017

    Hi,

    I was diagnosed in mid-late July. Had surgery in early Aug. Do I think every ache and pain could be cancer? Yes, but not as much as prior to surgery. Before I knew all the factors with my cancer, I was sure every ache meant it was all over the place already. Afterwards I admit, I still do. I try to push it back and keep living, moving on. I think so many others feel the same. Hard not to once you know you have had it in you. This beast can bring you to your knees in the darkest corners of your mind. I chose a bilateral mastectomy.

    Until you have a plan in hand, there's no control in that dept I think, except for what you can do/change now if you want. Put an exercise plan into place, dietary changes..if these are what you want. Once you decide what type of surgery, have it, have all final pathology and meet with oncologist etc, you will have sense of control back. A clear plan. As for normalcy, I think that also goes along with what treatments, if any, you need and then you have a new normal. I went back to work 3 weeks after. Doing my walks, shopping, exercise, bitching and moaning and yelling like I did prior. One thing is since it hit me, I keep saying don't sweat the small stuff and get up and out and make the most of every day because as we found out, you never know what's around the corner.

    Good luck on Monday.

  • marijen
    marijen Member Posts: 3,731
    edited September 2017

    Hi, So there was someone name decisionfreak in 2016 who had breast reductions and cancer removal at the same time. I believe it was all paid for by insurance. You can find her posts at January 2016 Surgeries. If you are interested.

  • Kahnartist
    Kahnartist Member Posts: 111
    edited September 2017

    thank you so much. This was very helpful and positive

  • Dodes
    Dodes Member Posts: 50
    edited September 2017

    hi! i was dx'd in july, with surgery in august. i'm a researcher and planner, and not having all the info was making me batsh*t crazy. i was told that as information comes in, you'll be able to put a plan together and you'll start to feel as though you've got some control again, and that has been borne out.

    i was told right off the bat that my cancer was grade 1, so i knew that it had been there awhile, and a few weeks of uncertainty wasn't going to change what was already there. that was what kept me sane. (that- and making a binder of test results, pathology, calendar etc that goes with me to all appts now.)

    i did a uni w/o reconstruction. it took me 3 weeks to feel human again, not like beach2beach (she kicks butt!). i have another serious chronic illness, and that played heavily into my recovery. read, read, read. don't dr google if you can help it. THIS site has so much good info. and keep asking questions. we were all newly diagnosed once. we've all been there. blessings.

  • Kahnartist
    Kahnartist Member Posts: 111
    edited September 2017

    you rock. Thank you for your awesome comment.

  • Mountaingrl54
    Mountaingrl54 Member Posts: 2
    edited September 2017


    I was diagnosed this past week with IDC, Stage I (path report didn't specify a or b), Grade 2. I have an appointment with radiation oncologist on Tuesday to discuss options. The surgeon who performed my biopsy told me I have 2 options - lumpectomy with 4-6 weeks of DAILY radiation or mastectomy of right breast. I live 25 miles from the cancer center where the radiation would be performed and would have to drive the 50-mile round trip every day myself because I have no family here. Plus, depending on when the snow starts, I wouldn't be able to drive there anyway. So, even though I haven't made my final decision as to which treatment I will choose, I'm leaning toward mastectomy. An issue I am dealing with is that my breasts are very large and at 63, I don't want reconstruction on the one breast to match my other large pendulous breast and I'm not really interested in having a reduction on top of everything else. And how would I deal with just one large breast on the left and nothing on the right? I think I'd rather have no reconstruction at all if I'm able to have a double mastectomy.Since I've not had the genetic testing done, I don't know if a double mastectomy will even be an option for me.

  • Dodes
    Dodes Member Posts: 50
    edited September 2017

    i'm just going to jump in and say to Moutnaingrl54, it's your choice, if you want a double, you can have a double.

    i'm small, (not even a full "b" cup), but a double was one of my options. i couldn't commit to daily radiation, that's why i went with mastectomy. bear in mind that mastectomy doesn't fully guarantee that you'll not need radiation, but it increases that possibility by like 80% or something like that. even so, with my tiny little boobs, i felt off balance the first few days. but PT has helped greatly with that.

  • Mountaingrl54
    Mountaingrl54 Member Posts: 2
    edited September 2017

    That is one of my worries about the one-sided mastectomy...feeling so unbalanced especially with having one huge boob left! I already have major back and neck issues (5 surgeries!) so I don't know if the left side of my body will become even more painful and out of whack? Truthfully, the thought of not having to carry these girls pulling on my neck and back is somewhat appealing. Just wish it didn't take breast cancer for me to even have that option.

  • Jojobird
    Jojobird Member Posts: 203
    edited September 2017

    Kahnartist,

    Oh boy do I HEAR you on the anxiety. And these first weeks after diagnosis are probably the hardest in terms of impact and shock. I hope you are getting support from friends, family, and loved ones. There will come a time when your treatment plan becomes more concrete, and the routine of appointments and procedures will offer a sense of control, or at least management. You'll feel like you're "doing something," and that can help manage the anxiety. A support group and therapy helped me a great deal, too.

    To deal with the waiting and unknowns, I called friends. Some of them came over. I binge-watched TV, too, and my husband took me out for dinner. I also took anti-anxiety medication for awhile to help me cope. There is never any shame in getting the help you need. And I had an mx (right only) and one thing that reassured me was my surgeon's words: "You can always get reconstruction later." I probably won't, but it helped to know it was an option. And treatments are getting better all the time.

    Wishing you support and strength and hope.


  • Peacetoallcuzweneedit
    Peacetoallcuzweneedit Member Posts: 233
    edited September 2017

    Hi Kahn-

    I was diagnosed May 2017 - opted for double MX - and now in middle of reconstruction. I'm not going to speak for every woman out there and say its normal to have anxiety and go to the dark places in your mind, BUT I have not met one or talked to one that didn't experience these feelings.

    I absolutely went through the "everything is cancer" thought, and hell still do --> fall down the cancer hole...this is what I call it. It is scary, and the unknowns of being newly diagnosed can be absolutely overwhelming....

    There is a lot of support on this site...

    If I can help with any questions about the mx or MY experience with it, please do not hesitate to ask. Sending good vibes from the west coast...


  • kims1961
    kims1961 Member Posts: 14
    edited September 2017

    Hello! I can totally relate. I found a lump on my birthday this past August and met with a surgeon last week who confirmed my diagnosis of Invasive Ductal Carcinoma. I too, struggle with anxiety and also feel that every pain is the cancer growing somewhere else in my body. I am 56 - and very active - but also means I have lots of aches and pains elsewhere, which now connect to cancer in my mind.

    I go for an ultrasound tomorrow on my pelvis to see if there are any other concerns. The anxiety over this has certainly been the worse part so far and affecting my sleep. What do you find helpful with anxiety? Do you use medications at all? Anything worth trying?

    Thanks for your post! Kim

  • Mumzy3
    Mumzy3 Member Posts: 18
    edited September 2017

    I found a lump on my 40th birthday last November.

    It sounds like you are getting moved through the process pretty quickly which is fantastic. Waiting for results is definitely the worst.

    Clonazepam helps for anxiety. I just pop one every so often when anxiety seems overwhelming.

  • PauletteK
    PauletteK Member Posts: 2,205
    edited September 2017

    I got my BC notice couple days before my 61 birthday, yes it was hard for the first week and dealing with all the tests and waiting were so stressful and overwhelming. I still need my Ativan for my anxiety and dealing with chemo is so tough also

  • MTwoman
    MTwoman Member Posts: 2,704
    edited September 2017

    mountaingrl, I would recommend that you check into counseling support. Perhaps your center will have a recommendation or maybe one of your providers. It is not unusual, in the stage where you are now in your journey, but many women find it helpful to have someone (other than a friend or family member) to talk with about their fears or transition. They can work with you on anxiety management techniques, or on whatever issues come up. Someone with experience dealing with people going through ca treatment is best, but not a requirement. I saw a therapist who already knew me, so there wasn't an 'introductory' phase, which was also helpful.

  • Dodes
    Dodes Member Posts: 50
    edited September 2017

    Kahnartist, let us know how your appointment went.

  • Kahnartist
    Kahnartist Member Posts: 111
    edited September 2017

    I apologize for not reply to you all. I have read each post. You are all amazing.

    My appt today with the BS went well although fast. He said my MRI didn't show anything else. He recommended a lumpectomy but knew I had already decided to do a mastectomy. He recommended thinking about 1 and a reduction but I am not doing this again so I am leaning towards double. I meet with the plastic surgeon next Monday and will have my BRCA results back by then too.

    We think October 19 may be the date if schedules work out. So after Monday I will know more and then I can tell work. Yikes.

    Thank you all for your words!!


  • Linball
    Linball Member Posts: 1
    edited September 2017

    I was diagnosed last week. Have appt with surgeon tomorrow. The worst part for me is not knowing whats to come. Doing this mostly on my own. Divorced with 15 year old son and family in another state. One day st a time is hsrd5.

  • beach2beach
    beach2beach Member Posts: 996
    edited September 2017

    Kahnartist,

    Glad your MRI was clean. Now you have the beginnings of your plan in place and moving forward. I hope you feel more in control now.

  • swg
    swg Member Posts: 461
    edited September 2017

    Yup..I can relate. I have a history of anxiety and panic attacks, so this is bad for me.

    Fortunately, I just saw a new breast surgeon today who seems incredibly competent, and I feel I'm in good hands. I'm getting an MRI this week and we did the genetic test..I guess I get the results back in 2 weeks. What more can we do but just try to live as normal of a life as possible, and lean on our friends and loved ones for strength?

  • Drained6513
    Drained6513 Member Posts: 82
    edited September 2017

    Hang in there! I didn't even have a lump. Mine was all calcification that was seen way back in 2010 and 2012 and 2013... fast forward to 2016 and the only way I knew something wasn't right, was blood coming out of the nipple at this point. Then the biopsy was done, so mine was missed too. Life does get out of control for a bit. You go into auto pilot without thinking... you just go go go to drs appts, blood work etc. But mine was diagnosed July 2016. I am just getting to the end of my treatments. Last Herceptin in December. It's not a fun thing obviously, and I worry about aches and pains too.... but you will get to the end of it all... it does happen. I can now take time to decide on my reconstruction, if I want to or not.

  • Kahnartist
    Kahnartist Member Posts: 111
    edited September 2017

    I totally understand. I am single, 44 and not super close with my family.

  • msphil
    msphil Member Posts: 1,536
    edited September 2017

    hello sweetie hang in there I was diagnosed while planning my 2nd marriage at 42yrs old had cry then decided to fight with Faith n Hope and lots of Positivity. I am now a 23yr Survivor Praise God.msphil idc stage2 0\3 nodes Lmast chemo before n after got married then 7wks on tamoxifen. God Bless Us All.

  • Kahnartist
    Kahnartist Member Posts: 111
    edited September 2017

    msphil,

    Thank you. I am trying to be positive but I really want this to be over and it hasn't even started. I am hoping to find a silver lining.

  • Cowboy-Up
    Cowboy-Up Member Posts: 211
    edited September 2017

    I had a lumpectomy and reduction done in January. My insurance covered it. Only issue is that radiation will shrink the breast so when you have reconstruction before treatment, it is difficult to make them the same size. I'm overall happy with the outcome of the reduction.

  • jeanwash
    jeanwash Member Posts: 65
    edited September 2017

    Kahnartist and Linball,

    So sorry you are both here. The first few weeks of trying to figure everything out is the hardest. I found it overwhelming and wondered if I would ever get back to state of mind where EVERYTHING wasn't cancer. I was diagnosed with early stage across a wide area. I was leaning towards double mastectomy and at very last moment I changed my mind and decided to just have uni mx. The pathology report from surgery was so much better than my fears.

    It should get easier emotionally when plans are established. Just take time to weigh your options and get second opinions and do what feels right for you.

    Best wishes and peace in all your decisions. You can do this!
  • Kahnartist
    Kahnartist Member Posts: 111
    edited September 2017

    thank you jeanwash!

    I am exhausted already. I am hoping to feel stronger as decisions are made. I'm a "shut down" kinda gal so I am trying to keep focused. Yesterday I lost my car in the hospital parking lot and spent 45 minutes looking until my stepmother finally came to help me. Today I washed my face with hair conditioner. I'm batting 1000. Ha

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