"Not totally benign" , MRI needed...

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  • Vbarstad
    Vbarstad Member Posts: 17
    edited August 2017

    beachside- that is pretty good news! Also glad you are following up and covering your bases. Now you have a good baseline should anything change or if your doctor wants to take extra precautions.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited August 2017

    beachside, your surgeon is less a "fool" than you think. From medhelp:

    Fibroadenomatous change

    Fibroadenomatoid is usually used with the word Hyperplasia or Mastopathy. This is an incidental finding placed somewhere between Fibroadenoma and Fibrocystic Change and is a benign finding which like the other two conditions may increase your risk only slightly. Just another of the many benign breast lesions.


    So fibroadenomatous change is, in fact, part of the fibrocystic change continuum.

    Pathologyoutlines.com says, "Proliferation of intralobular connective tissue that resembles microscopic foci of fibroadenoma without an actual mass and without the typical circumscription of a fibroadenoma". Read more here: http://www.pathologyoutlines.com/topic/breastfibroadenomatoidchange.html

    congrats on the b9 findings and good luck!

  • Bellapam
    Bellapam Member Posts: 71
    edited August 2017

    Yaass Beachside! My results were very similar, benign and a combination of fibroadenomatous and fibrocystic changes. From what the surgeon told me, it is a fibroadenoma with its own cyst, lol. Perhaps that is what you have going on?

    Edit for accuracy

  • beachsidesunset
    beachsidesunset Member Posts: 36
    edited August 2017

    Bellapam, that is great news!! I am so incredibly happy that you finally have an answer! So will they aspirate the cyst and remove the fibroadenoma? That's so great, I'm just so glad you have something concrete.

    MTwoman, I feel he's a fool for several reasons, first because I've already been told by the actual breast center that I have three month follow ups AFTER my appointment on the 14th, which I'm going to follow their advice over some rural country doctor who literally was going to do a lumpectomy on NOTHING in my breast, who in a sarcastic tone of voice said, "yayyyyy" when he said there was no cancer, like he was mad he was having to take the time to do the results of someone else's testing. Third, the surgical oncologist has already stated that with the two different radiologists giving me a BIRADS four, on two separate imaging methods, the follow up is important, not only to assess that the area hasn't changed negatively, but for peace of mind. I'm sure you're well aware that peace of mind is almost as important as a clear result in these situations. Not only do I have to assess whether or not I will end my hormone treatment (Estrogen-only) but I have other risk factors involved. The doctor had none of this at hand when he told me that there was "No need" to follow up, and that is why he is a fool. As far as the changes, yes, the fibroadenomatous changes are in between fibrocystic and a fibroadenoma tumor which I understand. However, I have an actual mass, on MRI, that was over half a centimeter with irregular borders, ALONG with the NMLE of 2.5 CM. So I don't understand how an actual mass, that is a tumor on MRI but the tissue didn't show on the pathology report. However, I do have it on my list of questions for the surgical oncologist.They will review my imaging and the pathology and go from there.

    I hope you're getting ready for your MRI, VBarstad!! It's getting close, I bet!!

  • Vbarstad
    Vbarstad Member Posts: 17
    edited August 2017

    Yes!!! My MRI is on the 5th, and I should get the results the next day and see what lies ahead. I would love some peace of mind or even a plan of attack. Either of those things is better than the waiting.

  • Bellapam
    Bellapam Member Posts: 71
    edited August 2017

    Finally! Good to hear you are moving ahead Vbarstad! Beachside, I am getting an excisional biopsy, so the whole mass is coming out, and I doubt they will bother to aspirate the cyst as it is part of that mass. I am guessing here, though. Ill know more after the preop appointment. My surgeon was not detailed, said I was basically "trading a lump for a scar". I'm fine with that, and they get a new tumor to play with in the lab. I like donating to science!

  • Bellapam
    Bellapam Member Posts: 71
    edited August 2017

    btw, MTwoman,

    I'm curious which comes first, the fibroadenomatoid or the fibrocystic changes, or is it even a linear process? I'm wondering if the fibroadenoma was just tiny for a while and then a cyst developed that made the mass palpable. I'm not in the youthful demographic that usually gets fibroadenomas, lol.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited September 2017

    Now that is definitely beyond me. I'd need to dig into some research to find that info, and am cruched for time today, maybe DJMammo will come along and lend us his expertise?

  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    I can tell you that at least in the veterinary world (mainly in dogs) it is typical to see cysts develop secondary to adenomas... not sure about humans though!!

  • Bellapam
    Bellapam Member Posts: 71
    edited September 2017

    no problem, MTW! I thought it might be an easy question, lol, but don't trouble yourself! I may look it up when I have a moment myself. I assumed you might know off the top of your head, didn't expect you to go searching. Thanks for all you do, MTWoman!

  • MTwoman
    MTwoman Member Posts: 2,704
    edited September 2017
  • beachsidesunset
    beachsidesunset Member Posts: 36
    edited September 2017

    Well, I'm glad that you're donating to science, haha, Bellapam!! :D I can maybe kind of answer your question, however... Due to this:

    My saga continues, I got a call today from the Breast Center. The radiologist that compares the pathology to the ultrasound to determine if results are concordant or discordant and to discuss results, etc. called me and asked if anyone had gotten a hold of me yet. I said that no, no one from the center had called me, and that the only person that had discussed the results with me had been the doctor that had given me the results as fibrocystic changes. She reiterated that this was, in fact, incorrect in that it was more "specfic" than that, that it was tissue that looked to be forming into a fibroadenoma but did not have the architecture of one as of yet. She said that it was fairly indistinct on ultrasound and MRI as well, it was the 2.5 cm NMLE on the MRI, and was concordant in her opinion. So I asked again, what then about the 6 mm mass or lesion with irregular margins at the 2:00 area? She pulled up the MRI and the biopsy clip placement mammo and said unless she was missing something big, it has not been evaluated. So, I am almost squarely back where I started, minus the NMLE being biopsied. I mean I'm glad it's been taken care of, but the other one with irregular borders was the one I was worried about to begin with. She said that it will take time for this biopsy to heal, and then the surgical oncologist will have to evaluate this other area that hasn't been looked at yet. She said that even if it takes a while for the tissue to heal and if I have to go off of the estrogen to ensure we're getting a good picture it isn't too alarming, so I am reassured by this, but it's still frustrating to know I've got another biopsy ahead. She mentioned that a wire localization with a surgical excision may be the route we take after another MRI but that will be up to the SO.

    But to answer your question, she stated that it's not entirely a linear process, from fibrocystic changes to fibroadenomatous changes to fibroadenomas, she said its more of where in the breast it is. Fibrocystic changes are the umbrella term for all of the changes, from what I understood from her. From cysts, to adenomas, to radial scars and papillomas, they're all fibrocystic disease changes. They can sometimes follow a linear path from one to another in a certain category, but not in the entire group. She said that fibroadenomas typically are more involved in glandular tissues while cysts are different, so they aren't linear to the fibroadenomas, I guess. Idk. I found a page that has all of the different disease processes, it's really informative: http://breast-cancer.ca/fibrcyseast/

    Hope everyone is having a great week!!! Lots of hugs for everyone!

  • beachsidesunset
    beachsidesunset Member Posts: 36
    edited September 2017

    I don't mean WHERE in the breast it is, I mean what kind of tissue it is, by the way, that sounded wrong. Glandular tissue, lobular tissue, etc., is what I meant, not like quadrant-wise.

  • Vbarstad
    Vbarstad Member Posts: 17
    edited September 2017

    Breast MRI went as expected other than I have a sinus infection so I was trying not to cough or sneeze during it LOL. But all in all, I feel good that it is over and that I'll get another piece of the puzzle tomorrow! The MRI wasn't bad at all, just loud.

  • beachsidesunset
    beachsidesunset Member Posts: 36
    edited September 2017

    I'm so glad you finally got it done!!

  • Bellapam
    Bellapam Member Posts: 71
    edited September 2017

    VBarstad- so glad your testing is moving along now! I was whining and I did not have to wait as long as you have!

    Beachside- thanks for that link- I love the Canadian Moose site! The doctor who runs it has been updating it as recently as late last month, so it is very accurate and informative. I know I probably read that page before, but I am going to read it again. I have been fascinated with the science behind BC since I have started my own diagnostic journey. I am a research nut! I'm on my last course for my graduate program (nothing medical related), and I have been a freelance writer for the past five years, so research is a big part of my daily activities. I am telling you this because I don't want anyone to think I am a hypochondriac obsessed with cancer. I have a lot of posts on this site for a person who does not have BC!

    Pam

  • Vbarstad
    Vbarstad Member Posts: 17
    edited September 2017

    That Doc and Moose site has SO much great information, such a quirky site but it is awesome.

    MRI results were pretty much what I expected and what would my journey be without a little more waiting? There is a definite mass in the same area that was biopsied although the MRI shows it about double the size of what the ultrasound found. Good news is... that is the only area of concern so at least it's not in multiple areas. Next step is a lumpectomy so I meet with a breast surgeon on Monday to discuss that. So a little more waiting and at least one more procedure. Friday is my 37th birthday so I'm just going to enjoy that, my family and a few beers!

  • MTwoman
    MTwoman Member Posts: 2,704
    edited September 2017

    I love that site too! And appreciate the fact that they update it to keep current information available.

    Hoping the excisional biopsy doesn't show anything other than the (already determined) ADH and radial scar!!

  • beachsidesunset
    beachsidesunset Member Posts: 36
    edited September 2017

    Well I'm glad that you're going to get it out. I"m sorry that it's so big. I hate that it's been such a roller coaster, I feel the same way, we've been in kind of the same boat, with the constant ups and downs and it's been a loong road!

    I go on Thursday to the SO and we'll set a plan and go from there. I hope your appointment today went well!! Let us know!

  • Vbarstad
    Vbarstad Member Posts: 17
    edited September 2017

    Met with my BS today and have the excisional biopsy scheduled for the 20th. Not much more information other than it is normal for the MRI to show a bigger lesion than the US because of its sensitivity so that is good news and that my breast will not look different besides a scar so that is great news. Hopefully, the finish line is right up ahead. Praying the odds are in my favor!

  • Bellapam
    Bellapam Member Posts: 71
    edited September 2017

    Happy Birthday Vbarstad!

  • beachsidesunset
    beachsidesunset Member Posts: 36
    edited September 2017

    Yes, VBardstad, I hope you had a happy 37th! Welcome to the club I will be 38 in April! I can't believe we're sneaking ever closer to 40! Seems like I'm still in my 20's though!! It's just crazy! Hope all of you are doing well! It's finally fall, which is my FAVORITE! Football, falling leaves, trips to the pumpkin patch.. and occasional trips to the Breast Center, lol! I am sure that life is crazy for everyone but I just wanted to let you guys know I'm thinking of you all!

  • Vbarstad
    Vbarstad Member Posts: 17
    edited September 2017

    Had my excisional biopsy on Wed, and aside from being black, blue, yellow and a little sore, it wasn't too bad! The wire being put in wasn't that bad either. It was my first time with anesthesia and that was awesome! I got my results today and am relieved! No cancer found among the ADH and Radial Scar!! Thanks for your support, the waiting was pure hell but now I will be monitored and if anything pops up again, it will be caught quickly. In the meantime, I am going to encourage those around me and anyone who will listen to commit to breast education and try to advocate for earlier screening and self checks. This is a life changer for me, no doubt!

  • MTwoman
    MTwoman Member Posts: 2,704
    edited September 2017
  • tobie2
    tobie2 Member Posts: 10
    edited October 2017

    So glad to hear this. My biopsy results also just came back as radial scar (1.5 cm) with atypia (ADH) on one side and atypic (ADH) on the other, so I'm scheduled to meet the surgeon next week to go over the procedure for excision biopsies. It's good to know that people with similar core biopsy results eventually get the all-clear sign.

  • Vbarstad
    Vbarstad Member Posts: 17
    edited October 2017

    Hi Tobie2, yes, although the waiting was hell, it was a big relief and the excisional wasn't that bad. I'm still quite bruised but everything is healing beautifully. I didn't bruise much with the CNB so I was a bit shocked. I am also glad that I'll be monitored so in the event anything pops up, I'll be ready. This was definitely a life changer for me. I pray things go well and you get good news after your excisional!


  • tobie2
    tobie2 Member Posts: 10
    edited November 2017

    I just got the results from my excision biopsies tonight, and I feel like once again I'm just in the space between the usual odds of 80% benign, 20% malignant. The left side came back clean, which is good. The right side came back as "marked atypical ductal hyperplasia" and the doctor wasn't able to cut to clean tissue all-around, so I need to go in for a second excision biopsy. They won't cut in the whole area, only on one side. I'm no longer feeling very confident about any of this. The surgeon seemed to think that at worst I had low grade DCIS but I'm not sure what to believe any longer. I'm also worried because I have more than one mass on the right side but only one was biopsied. I need to ask how they intend to deal with these other masses.

  • beachsidesunset
    beachsidesunset Member Posts: 36
    edited November 2017

    Tobie, sorry to hear that things aren't as clear as you'd like. It's never fun to have things up in the air!!


  • beachsidesunset
    beachsidesunset Member Posts: 36
    edited November 2017

    I just wanted to update on my own story, so everyone may remember that my first biopsy came back as being fibroadenomatous changes, but they had never biopsied the other mass. I had been sent to a different breast center that is going to do the other biopsy (MRI-guided, like the first one was supposed to be) but first they ordered an MRI again to see how everything is looking, make sure that it's still there, etc, well, three things were determined with the second MRI. First, the mass is still there and needs biopsied. It is surrounded by other smaller foci, around 3-4 mm in diameter, in a grouping, not calcs but called nodules in the report. I also have a similar grouping in the left breast, which was there in the first MRI but wasn't mentioned I guess. (The report says "Without significant change" when referencing the grouping of nodules in both breasts) The second thing is that the area that was the non-mass like enhancement, around 3 cm in the right breast that was "biopsied" two months ago, with twelve cores, 14 or 12 gauge needle cores, 12 cores!, is "without significant change..." in addition to being without significant change, the biopsy clip is NOWHERE near the enhancing area. I know that clips can migrate out, but my nurse navigator at the breast center has reviewed the images with the Rad and they both feel that with the number of cores, biopsy material removed, and the clips placement... that it is possible that they area HAS NOT BEEN BIOPSIED, because it should have had a significant amount of material missing from it if there was that much biopsied from it. It hasn't changed in shape or size. At all. It's literally unchanged. So, instead of doing the MRI-guided that my Rad suggested, this other lady felt that she could get it with ultrasound, and when I was on the table she literally said "I'm not really seeing anything here" but continued to just take stabs in the dark. And didn't hit it. So it seems, anyhow. So now, on Dec. 11th, I go to Denver to Sally Jobe, and they'll do MRI-guided biopsies of the area that was supposedly already done (and charged 20000 for of course) the area they ignored, and the new area in the left. It will be an interesting trip. Hope everyone had a great Halloween and is looking forward to Thanksgiving!! I can't wait to have some delicious turkey and stuffing!!

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