Surgical excision biopsy

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  • jjAriz
    jjAriz Member Posts: 28
    edited September 2017

    Hi All,

    I had just logged in to see how Mel and others are doing, and I was hit with a shit storm. Literally. You see, my husband has stage 6 Alzheimer's and Lewy Body Dementia. He is still mobile, but is incontinent. He is my main concern regarding this surgery on Wednesday (9/20). I want to keep him on an even keel and am terrified that he will get very agitated when I'm gone for 8 hours. And his agitation can take days, even weeks to calm back down. In addition, I also have my 96-year-old Dad living with us. He's OK cognitively, but is recovering from 6 ankle surgeries this summer. So I haven't been worried at all about cancer, I have no time to even think about it around here.

    Mel, I'm glad that all went well with your surgery. Keeping my fingers crossed.

    Mamakat, it looks like our surgery is on the same day. I'm scheduled for 1:15pm . . . what about you?

    Mystic, I imagine that you're beginning to heal and putting this behind you. I noticed that you're in Ariz. Me too. My surgery will be at HonorHealth Shea in Scottsdale with Dr Sommer Guinia. Are you anywhere close?

    Blessings,

    Jamie


  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    Jamie, I'm really sorry you are going through all of that. It must be difficult to focus on your own health with you husband and father being afflicted with such medical problems. Is there anyone that can help with them while you go through surgery?

    I actually had a consult with Dr Guina as well, but decided to go with Dr Christy Bourne. Surgery was done at the same hospital you will be going so. The staff there is super nice :) please let us know how everything goes, I really hope you can find help with your husband while you're under!


    Mel- how are you feeling today

  • jjAriz
    jjAriz Member Posts: 28
    edited September 2017

    Mystic,

    Thanks for your kind words. I didn't have much of a choice of surgeons due to my insurance, but I though Guina seemed OK. I have a home health worker coming to the house on Wed, Thurs and Friday. DH is familiar with them because they run his weekly day care, but I never know if that will make a difference on a particular day.

    Jamie

  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    I'm glad you have some people to help Jamie. I'm sure dr G is a fantastic surgeon and that you are in good hands.

    If your sx goes anything like mine did, you will be up and ready for your normal life the next day. Keep us updated

  • Mel1969
    Mel1969 Member Posts: 116
    edited September 2017

    Mystic, I've slept and neflixed most of day. I think I'm just emotionally drained from personal problems. I'm in a funk that I can't seem to get out of. I made the decision to stay in bed and do nothing.

    I don't have pain and I'm actually quite surprised. I'm pretty bored. I think I'll try to get out of house tomorrow.

    Jaime, sounds like you have a lot on your plate! Glad you have the help and hoping your husband had good days with them.

  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    oh Mel. If you were closer I would plan an outing together! Or plan on having a bunch of puppies to play with. Keep strong and know that I am sending good thoughts your way

  • Mel1969
    Mel1969 Member Posts: 116
    edited September 2017

    Thank you for the kind words. I made myself go to the market today..we need food. 😊 No pain just feeling more tired than usual, I have other health issues tbat contribute to the fatigue. I missed my IV iron due to the surgery so now I need to reschedule.

    Incision site looks good but I feel hardness where they removed it, I'm assuming that's part of the healing process. Hoping not to get a hematoma or seroma.

    Mystic, have they figured about a game plan for the ADH? Frequent monitoring?

  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    I too had to skip some meds the morning of sx so my crcohn's was angry the next few days. I'm glad you went out thought!

    I can also feel hardness around my incision, probably inflammation and scar tissue. The steri strips finally fell off today and the incision looks great, still red but otherwise healing up.

    AS for now my follow up plans include mammo in 3 months to get a new baseline and go from there, probably US Q6 months and MRI or mammo yearly.

    When do you go in for re-check??

  • MamaBee23
    MamaBee23 Member Posts: 31
    edited September 2017

    You guys are amazing! Thanks so much for sharing your experiences. My surgery is in 11 days and I'm so nervous. I've never had surgery before and hate needles. Extra anxious about being put under anaesthesia. :(

  • Mel1969
    Mel1969 Member Posts: 116
    edited September 2017

    Mystic I go in thursday. Hopefully results will be in. My hardness is more where the lesion was, incision site is soft. Sounds like a solid plan they have for you!

    Mamabee33, you will do great. I'm really surprised that the pain is minimal. More like pms tenderness. I too was worried about the anesthesia as I had a bad experience the last time. Express your fears to the anesthesiologist and they will explain and relieve your fears.



  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    I agree with Mel, MamaBee- they will take really good care of you. Just look away when they place your IV and it chat with the nurse :)

    Mel- same here for the hardness.. it does seem to be more where the mass was versus along the incision. Hopefully you hear good news about histo back before your meeting!

  • bibi1388
    bibi1388 Member Posts: 15
    edited September 2017

    I'm glad you guys are doing so well with your recovery, hoping you get good results. My results came back benign on Friday so happy to be in that 80%.

    Good luck MamaBee you will do great the waiting to go in, then waiting for results is the worst. Use a zip front sports bra it will really help. My surgeon said to me after op that I would be in pain and gave me meds for that, I however wasnt in too much pain and I think that was due to the bra as soon as I took it off I felt a tremendous difference. It did hurt to lie flat the first few days so I used a couple pillows to help.


    I was really excited to read benign in the report, but I have so many other things listed I'm still a little concerned the pathology report listed the following, adenoids, PASH, cystic apprise, peripheral papillomatosis with collagenous spherulosis, focal intraductal hyperplasia and minute focal hemosiderin deposition! I have hetrogenously dense breasts. I see my surgeon next week, he is a general surgeon. My breast center wants me to have an MRI, my surgeon doesn't think it's a good idea, he says they create a lot ft false positives. What do you guys think? What would you do? I'm going going to get my reports sent to my on/gym and get their opinion. Wondering if I should've see a breast surgeon/doctor?


    Good luck everyone.

  • Mel1969
    Mel1969 Member Posts: 116
    edited September 2017

    ooh, Bibi..I think I would opt for the MRI. You have a lot of things going on with your breast.But at the very least you will have a baseline MRI to refer to for future comparison.

    The hospital put me in a surgical sports bra..Iove it. I had bought one so now I can wash one while I wear the other. Ive been laying flat, though the fist day I did use pillows .

  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    Bibi, Mel is right - MRI sounds like the right thing to go for next. What exactly did your report say? In other words, how were those terms used?

    Mel, hope you are feeling better today!

  • bibi1388
    bibi1388 Member Posts: 15
    edited September 2017

    Thanks for your input

    I tried to submit a pic of report but it wouldn't let me.

    It says diagnosis

    Breast left lateral needle localized excision.

    Benign breast with adenosis and PASH.

    Fibrocystic changes including aprecrine and non aprocrine change, peripheral Papilomatosis with collagenous spherulosis and focal intraductal hyperplasia.

    Scattered focal clustered calcifications with areas of benign adenosis as well as focus of vascular calculations.

    Minute focus of hemosiderin deposition.

    Above is exactly as worded in pathology report.



  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    Bibi- that seems to point towards a completely benign diagnosis- however we are not specialists here, and discussing the findings with your dr is probably a good idea. Also the MRI can provide with more information as so whether there are any other concerning areas that need to be assessed.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited September 2017

    I would recommend you schedule a consult with the doc who sent you the report to ask for an explanation of the findings and their implication (if any) on the timing of future monitoring. It isn't just their job to take the sample and write a report, it is also their job to make sure you understand their findings.

  • bibi1388
    bibi1388 Member Posts: 15
    edited September 2017

    Thanks mystic,I guess I'm not so much worried there's cancer as you said it all looks benign. It just looks like a lot going on and I worry that I'm in for constant mammos where I'm told oh this could be something we need to biopsy to be sure etc. I had my first mammo last year and that resulted in my milk ducts of right breast being removed, then my follow up mammo this year resulted in a surgical biopsy on my left breast.

  • momallthetime
    momallthetime Member Posts: 1,575
    edited September 2017

    'll jump in, bibi usually docs don't even like to send reports b4 talking to patients. You've got maybe a lot different findings, they do seem b9 from all I know, but in my experience Radiologist/doc/surgeon would tell you to check every 6mos for follow ups etc...if indeed it's all b9. MRI is def a good way of checking also, I am not sure why doc would be against it. But it's always a good idea to verify with other docs you trust. Let us know.

    Mystic i've been reading your posts, you are a true cheerleader. So nice to know you know what you are dealing with.

    Mel hope you are doing ok.

    I was stunned when Radiologist doc said they see something on 3D mamo, occult on US (is this good or bad??), a core needle biopsy was done and it came back as sclerosing intraductal papilloma with usual ductal hyperplasia and adjacent fibrocystic changes. I didn't think it was so terrible from all I read. I do have my DD very young with BC mets unfortunately. I was sent to see BS, he knows me from DD and he will be doing an excisional biopsy. I scheduled it only after the Jewish Holidays. He's not overly concerned, he said it's perfectly fine with him. Actually i wasn't gonna mention it even, he asked if I'd wanna wait, he'd be comfortable with it. I hope he's right. I'm not terrible anxious, I tend to think optimistic that this is all that he'll find. I also cannot grasp it would be possible for more things going on in the family. I am quite sore after 2 weeks of the core needle biopsy. And i have a simple cyst that I think it's been hurting me, but they won't touch it. I was surprised that I'll need BT and EKG. Do they put in a urether catheter? So nice the support in this thread.


  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    Momallthetime- ha! thanks for that comment. I don't know if I would consider myself a cheerleader... just trying to stay positive and give encouragement I guess :)

    Hope your procedure goes well- I think I was more sore following the CNB that I am after the surgery itself. In terms of the pre-op tests, I think every facility (and BS for that matter) has a set preference for what they like to see. For some, blood work is enough; for others a full EKG is needed, etc etc. It also ha to do with age and prior medical history. They do place and IV cath, but not a U-cath.

    Good luck and enjoy the holidays!

  • Mel1969
    Mel1969 Member Posts: 116
    edited September 2017

    Yes, as mystic said preop tests are done based on individual health history. I have a confession, I had an MRI done for another reason and it detected mild catdiomegaly. I omitted that information because I didnt want it to delay surgical excision. I knew if I mentioned it, it would mean a referral to the cardiologist for clearance. I just wanted to get this lesion out asap. I will follow up with my primary about the cardiomegaly..its probably due from years of anemia and being iron deficient.

    I am up and about today, shopping for a bed frame/headboard. I took a full shower and the bruising is not at all where I expected it to be! But what wonderful pretty colors of purple green and yellow. It's hard to tell if I will be deformed, due to the swelling but I think it wont be to noticeable. Incision looks good from what I can see I see the steristrips.

    Already going a little stir crazy being at home.

  • momallthetime
    momallthetime Member Posts: 1,575
    edited September 2017

    Thanks Mystic, wow that makes me feel better.

    Mel it's great to know you are feeling ready to go. When BS offered to wait for the Holidays to be over, i went with it, because of course I prefer not to be bothered. I'll be spending time with the kids, and I certainly hate attention, if i were to have it b4, they would be all over me. I thought I was not gonna tell them, they've got plenty to deal with, constantly thinking of their sis, but they are adults, and if something goes wrong or they find out I did the procedure and did not share with me, they would feel cheated. I always go with them for their mamos. They are very young, and bcs of sis, they have regular follow ups. And already had biopsies for b9 lesions. And they are not BRCA so go figure.

    I am in pretty good shape, as far I know i have no HX, just took a blood test 2 months ago, but they want one within 4 weeks of procedure. Maybe he's more concerned bcs of fam HX, could be, my breasts are not small, i'd say like a 34DDD, (different bras are different sizes, no one knows to fit correctly). I was at the cleaners just a few weeks ago, and the lady said to me, Lady is your top and bottom real?? I'm like yeah, want some of it?? She was not malicious, and I was serious ;)

    Things changed for sure, because I went along with a friend a while ago for excision and she did not have pre-testing. I feel stupid about it, but ok. The EKG and the BT will be done at PCP's office so it's not a big deal a week b4. And the wire prior to procedure will be at Radiologist place and I'll be driven to BS. I know you went with a wheelchair, but here it's not needed.

    Mel, I don't blame you for not wanting to rock the boat, I don't give every little detail also not.


  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    Mel! Hope you get good results tomorrow! :)

  • Mel1969
    Mel1969 Member Posts: 116
    edited September 2017

    My appt is Thursday but do you think results are in yet? I was thinking about calling wed. Strangely, I am not very eagar now for the results..part of me is so sure it's benign.

  • momallthetime
    momallthetime Member Posts: 1,575
    edited September 2017

    Mel it's probably the adrenaline winding down. 2 more days. My DD would be for sure be buying shoes to distract herself.

    I woke up at 5AM with a panic attack, not a big one, it came over when I was thinking what if it's more than what they see and I'm procrastinating the procedure. I put a call to Radiologist doc to hear her opinion, and she called me back and told me not to worry. So I won't.

  • mommakat
    mommakat Member Posts: 147
    edited September 2017

    just finished my seed placement procedure. I'm on my way! Finally. That was bad except it was 6 mammos in pretty uncomfortable positions, 2 with a needle sticking out of my boob! That was an odd feeling!


    Next stop the OR in the morning, finally. I've been waiting for a lifetime it seems so I'm excited to get it behind me

    Sending good vibes to you all

  • Mel1969
    Mel1969 Member Posts: 116
    edited September 2017

    mommallthetime..your probably right..now I'm actually anxious to go back to work. Lol. I wish they had light duty for me. The pto and sick time Isnt going to cut it with all these medical expenses and my car in the shop still. But I know I need to heal properly before I go back. I'm a single mom so I worry. You doctor is right, no worrying til you actually know. I tried to take that approach. It had been 4 years since my last mammo so who knows how long it had been there when they discovered it, it wasn't palpable and I had no nipple discharge.

    Mammakat..your almost there! Sending good vibes for tomorrow. Do you have a good sports bra? I was lucky the hospital sent me home in one but I was able to pick up a comfortable Hanes one from Wal-Mart that zipped in front..all the other ones were uncomfortable and had the underwire. It really helps. Also I bought some round ice pads, for breastfeeding on Amazon. Perfect for slipping it in the bra, I think the bruising would have been worse had I not. Still no pain, a little tenderness and occasional sharp nerve twinges siimiliar to when you breastfeed and are drying up.

  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    Mel- my results were done the Tuesday after sx (on a Friday) so you never know. Hope you get a call with good news!! I guess it depends on the processing time at each facility. I'll keep my fingers crossed for you though! :)

    mommakat- good luck tomorrow! you are half-way there. Is the seed palpable under your skin?? Have a good dinner and a good night's sleep!!!

    momallthetime: try doing some holiday stuff to keep you occupied! maybe some decorations to help pass the time?

  • Mel1969
    Mel1969 Member Posts: 116
    edited September 2017

    Mystic, that's what I remember. Mine was Friday too. I've read anywhere from 3 to 7 days. I think I will call tomorrow.

    At you back to your regular procedures and lifting at work?


  • mystic88
    mystic88 Member Posts: 155
    edited September 2017

    Mel, I'm back to normal at work. I try to be careful around fractious animals so they don't bounce on my breast, so it's really just the restraining I am not helping too much with. Otherwise it's like nothing changed. I even went for a run this morning (wearing a VERY tight sports bra) and I felt just fine.

    FYI-- my dr called after hours, probably around 6:40pm which scared the **** out of me. So if you get a call late in the day don't panic!

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