CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • pennsygal
    pennsygal Member Posts: 346
    edited September 2017

    Posting today from an actual waiting room! CT scan of chest today to monitor ground glass opacities in my lung from radiation.

    This is my last appt this month!

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited September 2017

    Di .Thanks for asking ..DGS has gone from becoming totally non -verbal , starting mid April , to starting to speak again 2 weeks ago !!! He's still not right .. extremely over emotional ( even for a 4 year old ) and prefers his own company ..but something has happened...to give us hope again ..please God .

    Iris .. definitely in your pocket..good idea to take a friend ..and all of us too !

    Penny ..hope all goes well with your CT scan ..

    Molly ..how are you ???

    Tomboy ..good to see you !

    Hugs to all ..


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  • octogirl
    octogirl Member Posts: 2,804
    edited September 2017

    Lucy, it does my heart good to hear the update on DGS!!!

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited September 2017

    Lucy, glad to hear your DGS is turning a corner!

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  • Molly50
    Molly50 Member Posts: 3,773
    edited September 2017

    Hi everyone, I am so happy to hear that Lucy's DGS is improving!!! Wyatt's doing well. The incisions look great. We go next week for the first adjustment of the device. I am still having vertigo, balance problems and headaches. I go back to the ENT end of the month. My MO didn't want to hear about it at all so I am looking for a new MO. Iris, I hope your scan shows good news. Sorry about not responding to everyone. Hi Di, Jan, ducky, Octogirl, PoppyK, Lucy, Tomboy, Sandy ET all. I leave you with my homemade Pizza with my own dough.

    Oimage

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  • Tomboy
    Tomboy Member Posts: 3,945
    edited September 2017

    I had to post right away, so i'd be very close to that pizza! I'm glad you are looking for a new onc, I still haven't gotten around to that. But I hope you find a good one Moll. Lucy, hello and I am so happy to hear you DGS is getting better! Very good news. Di I don't know if it does get any better. My sister had the nerve to call me a few days before my BD a couple weeks ago, didn't say happy bd, didn't apologize for all the name calling or even mention it, but wondered if I had heard anything about a measly checking account of my mom's I may have mentioned here. Wondering if I'd heard anything! And left a second message on actually BD, saying she missed me etc missed her mom. Unbelievable. I am going near where that nest of vipers lives, to see my mom's friends, and a couple of my friends, and my one brother starting tomorrow morning. Traveling with my man to Guerneville for his nieces wedding first, which should be pretty nice, and then on to Sacramento two days later to see the friend my mom and I shared for almost 50 years! She the one who went and saved/bought/almost kinda stole some of my Mom's things for me, from the yard sale.

    It still catches me off guard, almost like a blow to my stomach that my mom is gone. I think about her quite a bit, and just think its sad that many of my family competely misunderstood her. I may just have to write her story down. Maybe it is getting a little better, how bout you Di?

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  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited September 2017

    Tomboy hoping your trip is not as stressful as you think it is going to be. I was thinking of my mom this week too - I usually send her a BD card at the end of october. Her BD is Nov. 1st. Not sending any mother's birthday cards anymore. Seems weird.

    Molly so glad to hear about Wyatt is doing better. As Far as the pizza - oh my! Now I need a pizza!

    Iris and Sandy - thinking about you!

    You all have gone through so much. Wouldn't it be so good to have a worry-free or non-stressful day?

    I found a ND/MD in town that my DIL's doctor suggested to me. He has a long wait list, but figured I would get on it and at least talk to him. I'm kinda tired of treating my symptoms without knowing the cause. Trying not to have a "down" day, but lately I feel like I'm on the basement stairs again.

    Hugs to all that need it - I know I need them!

    image

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2017

    well it is friday, wish my appt was early in the day but whatever. Just saw weather report, can not believe there is a hurricane that is likely to affect east coast, i refuse to think about such craziness


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  • Molly50
    Molly50 Member Posts: 3,773
    edited September 2017

    (((Tomboy))) Best wishes for a stress free trip. I am happy your mom's friend rescued your mom's stuff for you. I miss my mom too. I will tell you later about my crazy day cleaning my mom's closet later. Back to work. Waving hi to Gma!

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited September 2017

    Molly ..your pizza looks SO yummy ..I can smell it from here !!! 😃

    Tomboy ..off course you miss your Mum ..mine passed away a couple of days after my 21st birthday .. unexpectedly..and not a day goes by I don't think of her ..The day I had my mascetomy I was laying on the bed waiting to go to surgery..and all I could think was I wish my Mum was here ...

    Iris ..I hope your doctor's appointment goes well .

    We are having a combined garage sale with our neighbours on either side this morning ..wonder if anyone will buy our "treasures " HaHa....then going to friends house for lunch today ...

    Hugs to all x






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  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2017

    wahoo, my liver is clear and my lymph glands are looking good

    Taxal is doing its job!

    Okam beat i,

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited September 2017

    Iris ..Woot Woot ☺ Wonderful news !!!!

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  • Molly50
    Molly50 Member Posts: 3,773
    edited September 2017

    Iris, woot woot!!

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  • GmaFoley
    GmaFoley Member Posts: 7,091
    edited September 2017

    Doing the happy dance for you Iris!

    image

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  • octogirl
    octogirl Member Posts: 2,804
    edited September 2017

    WooHoo Iris!!! Happy Dance out here at my place for you also!!!

    Octogirl

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2017

    ok so one of my loves of this thread is at any time of day i can find someone to celebrate with

    Thanks and i do,hope this is the beginning of a new, life it has been much too long between positive news

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  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited September 2017

    Proud/Iris: doing the happy dance with you......

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  • rainnyc
    rainnyc Member Posts: 1,289
    edited September 2017

    Molly, so glad Wyatt is doing well! And I hope you get some answers soon.

    Lucy, I'm happy to hear your DGS may have turned a corner. What a long road this has been for all of you! Did they ever get a diagnosis?

    Iris, woo-hoo! What wonderful news!!!!

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2017

    thanks for response, now if i could just learn how to deal, with the weakness in my legs, dang but i used wheelchair from front door to the chemo department which of course is in the back, of building

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  • pennsygal
    pennsygal Member Posts: 346
    edited September 2017

    Great news Iris!!!!

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited September 2017

    Just popping in before running more errands. Been dealing with tech & online ordering issues till yesterday.

    Yeee-HAH! Iris! NED is a great dancing partner, isn't he? Hope your legs get back in shape so you can keep up with him.

    Such good news about Wyatt's recovery and Lucy's DGS' improvement. May their symptoms continue to resolve.

    Had my Prolia shot Thursday. No side effects whatsoever--and I didn't even take Claritin. Only blood chemistry I know is that my calcium & enzymes are normal, otherwise the shot would have been postponed. My trainer's been ill, though, so have been doing some (but not enough) resistance stuff at home.

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2017

    i hope i did not give incorrect info, ned is not yet on my party card, but i have improved and finally have a med that is showing improvement

    Gee just placed my first order with peapod. I have been trying to figure out the best online delivery service for groceries. It may take a while to get used to

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited September 2017

    Been using Peapod since 1994, when it was dial-up and required its own software. I love it.

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2017

    good to know, i see the trucks driving though my neighborhood

    Would really be nice, course i need to get used to it as it took me a while today to create my order but that was me

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited September 2017

    The Express Shop and Order History links (or whatever they're calling it--they keep revamping the site) will speed up future ordering considerably.

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2017

    sandy, good to know. My first delivery is tomorrow. I looked around at several delivery companies but peapod seemed the most established. Although amazon has a nuge warehouse down the rode from me.

    Ok time to move this body, gym day!

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited September 2017

    Hi to all you beautiful ladies

    So busy here ..because it's school holidays I have 3 grand-babies all sleeping over for the week ..ages 7, 6 and 5 ..and they are keeping us hopping ( to say the least 😱 ) This morning they are dressing up as pirates and we're going to a play centre that has a treasure hunt planned ..I hope they find a BIG diamond ring for me !!!😃

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  • Molly50
    Molly50 Member Posts: 3,773
    edited September 2017

    Enjoy those grandbabies, Lucy!!

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2017

    lucy, now that sounds like a really big day

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited September 2017

    Routine CT Scan on Monday.


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