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Rhiss
Rhiss Member Posts: 7
edited September 2017 in Waiting for Test Results

I posted in the not diagnosed but concerned forum a while back. I was mentioning how no one would listen. I got sent to a dermatologist and they took a biopsy of two sites (which honestly made my breast look worse) I can't stop worrying. I broke down in my mother's restroom, shaking, crying.

I feel like I am putting the strong men and women who have or have had this disease to shame. I should be bucking up and not tearing myself down in worry but my anxiety is running absolutely rampant.

I'm 27 and was biopsied specifically for IBC, the doc was concerned and wouldn't tell me what she thought it might be. I wanted honesty. But she didn't say I don't know and said she didn't think it was an infection.

I feel offensive to everyone here because I can't handle this right now. I feel absolutely weak and not strong enough. Ugh.

I'm struggling.

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  • Legomaster225
    Legomaster225 Member Posts: 672
    edited September 2017

    Rhiss, I don't really know much about IBC but let me assure you that your reaction is totally NORMAL and you are not weak! Breast cancer is scary, testing is stressful, and not knowing is frustrating. Can you lean on your family or close friends to help comfort you? Do not feel weak or ashamed to reach out for support. It is difficult to deal with the unknown especially at a young age and everyone handled things differently. Waiting for results and a plan is the hardest part. I pray they find something other than BC but please know that you are not alone and there is a whole community here to help you if they

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  • VL22
    VL22 Member Posts: 851
    edited September 2017

    Please do not add the pressure of self shame on yourself! What you are experiencing is terrifying and you are so young! It is such an emotional experience and not knowing what you're dealing with makes it so much worse. Cry, scream, get angry - all is ok. Some people distract themselves with tasks- cleaning, exercise, movies etc or finding someone good to talk with. I truly hope you get good news soon. We all understand and you have support

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  • CR769
    CR769 Member Posts: 19
    edited September 2017

    CR769 wrote:

    Hi Rhiss, I am going through the same things as you. 33 y/o with an 8 year old daughter. I've had a rash on my breast for 6 weeks. I Had a punch biopsy done a week ago. Some days I'm ok waiting for results. Other days I'm a mess. All I think of is God forbid I have to leave my daughter. She's so young and so attached to me. IWoke up this morning and the rash is a bit deeper in color then normal. Past few days it seemed faded. (It does this) Can an IBC rash fade one day and be prominent the next? Breast is not warm, no orange peel skin, no discharge. Mammo and u/s clear. I'm so paranoid and stricken with anxiety. My old derm says my breast looks normal (this rash is not my normal and has been there for 6 wks) I've read a post on here from a few years ago from a women who just had a faint rash as a symptom of her IBC, nothing else and I can not seem to get that out of be my mind. When did your Dr say the results would be in?

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  • Rhiss
    Rhiss Member Posts: 7
    edited September 2017

    I just talked to the clinic. They came in just a bit ago, but I won't be able to know until Wednesday or Thursday. It kinda irritates me that they don't rush these kinds of things. Cancer is no joke. The sooner you get treatment the better. And it just.. ugh. I don't know. I don't know if I'm going to last until Wed or Thurs. I'm already in a deep depression. I haven't been able to try and get up and do something productive all day. I don't feel like doing anything. I really hope I am stressing myself out for nothing and it's some benign or treatable condition. I really, really hope.

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  • CR769
    CR769 Member Posts: 19
    edited September 2017

    if the results are in why do you have to wait?

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  • Rhiss
    Rhiss Member Posts: 7
    edited September 2017

    Doctor doesn't come in until wednesday for a 1 hour appointment and then all day thursday. She is normally only there on Thursdays.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2017

    R hiss I was in a similar situation ....results were in on a Friday but I had to wait until Monday.

    I totally lost it telling them I'm coming to the hospital where I had my biopsy and that I wasn't leaving until some dr or anybody gave me my results.

    10 minutes later a breast surgeon called because she heard the whole conversation to tell me my results.

    It's the most terrible feeling when your life depends on it and they are asking you to wait.....

    You don't have to wait for your Dr......you can go where you had the biopsy and get your results.

    Good luck to you sending the biggest hugs

    Sheila

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  • MTwoman
    MTwoman Member Posts: 2,704
    edited September 2017

    Rhiss, If your pathology indicated that you had IBC, they would NOT wait for several days to give you your results. IBC presents rapidly and aggressively and treatment commences immediately upon diagnosis, not weeks/months later (like other types of bc). If they are holding your results for the doctor to provide you sometime next week, then you should be a bit less worried about IBC.

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  • Rhiss
    Rhiss Member Posts: 7
    edited September 2017

    Sheila, thank you SO much for that idea. I went to them and they gave me the results right then and there. I'm fine. I have what's called Vascular ecstasia. From google, I'm not finding anything by that name, except duct ecstasia. I might lose a nipple at some point to it, but I won't die from it.


    Thank you for all the kind responses. <3

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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2017

    Good for you R hiss

    I'm so happy and releived for you..

    More hugs are coming your way

    πŸ’› πŸ’š πŸ’š πŸ’› πŸ’š

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