Bad mammogram one year after breast cancer diagnosis

Options
IADeb
IADeb Member Posts: 8
edited September 2017 in Waiting for Test Results

I was diagnosed with Stage 2 breast cancer in my left breast one a year ago at age 51. I had a mastectomy, nodes were negative and low OncoDX score so no chemo, and am now on anti-estrogen therapy for 10 years. I went in for my annual mammogram on Tuesday (my first since my whole cancer ordeal), joked with the technician about how I should get the half-price special because I only have one breast now, and left feeling pretty good. So yesterday I get the call. They saw some asymmetry in my right breast and want me to come back for additional images and potentially an ultrasound. My appointment is next Wednesday, which ironically is the one year anniversary of my diagnosis. It's like a bad nightmare all over again. I keep telling myself they are just being extra cautious because of my history, but am kicking myself for not having a bilateral mastectomy last year. (The doctors all told me it would be overkill.) Does anyone know if it's more common to get called back for diagnostic testing on the other breast when you've already had breast cancer in one?

By the way, this is my third call back in four years. Three years ago, I had a biopsy in my right breast that turned out negative. Last year, ultimately diagnosed with breast cancer in the left breast. Now the right breast again. Regardless of the outcome, I think I'm ready to go ahead and get righty removed, too. I don't need to go through this stress every single year.

Comments

  • Bosombuddy101
    Bosombuddy101 Member Posts: 182
    edited September 2017

    Well, they are being extra vigilant and yes, it is incredibly stressful. This is why I opted for a bilateral mastectomy last week. I knew exactly what was in store for me and I didn't like the idea of going through diagnostic screening with 3D mammograms every six months to a year and possibly biopsies That is not the way I wanted to live my life. A cancer diagnosis is stressful enough without the added worry of it returning. I hope whatever they find is benign.

  • beach2beach
    beach2beach Member Posts: 996
    edited September 2017

    Hi IADeb,

    I opted for a BMX for a number or reasons, and the stress of worrying about if it would hit the other breast was right up there.

    I hope it turns out to be nothing. If so, I would ask if they could do a sono right at the same time as the mammos from now on. It is very common to do. I had it that way for many years.

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2017

    Call backs are indeed very common, and they are probably be extra thorough. That said, the stress and worry can be overwhelming. It will probably be helpful to consult with your treatment team as to options for screening, genetic testing, additional (prophylactic) surgery, etc. We are hoping that everything is benign!! (((( hugs ))))

  • IADeb
    IADeb Member Posts: 8
    edited September 2017

    Thank you for your replies. I am trying not to stress out about it too much but, darn it, I was hoping to be over the medical drama for a while. I just had a prophylactic ovary removal in August, and when the pathology came back negative, I was saying that my long medical nightmare was now over. Guess I jinxed myself. Sure wish I would have went with my gut last year and had a bilateral mastectomy!

  • IADeb
    IADeb Member Posts: 8
    edited September 2017

    And for those of you who have had recent surgeries, I hope your recoveries are going well!

  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited September 2017

    Hi, not sure if you had a 2d or 3d and not in your shoes.... I ended up with 3d after quickly researching in the waiting room. Seemed like 2d's have a lot of call backs, false "positives". Hoping you got a 2d :) Good luck.

  • Teddy88
    Teddy88 Member Posts: 102
    edited September 2017

    Hi IADeb -

    Sharing my experience in case it should help. After my lumpectomy and rads in 2014 for tubular diagnosis, my radiologist put my other breast on an every six month testing schedule for 1.5 years in order to follow some calcifications (my BC showed up that way originally.) Aaack! You think there is a reprieve and now something else may be brewing. I really related to your post.

    I became so afraid of scans that I had to have a talk with her and tell her how fearful I was becoming. She had me go for an MRI and then put me back on an annual schedule. That helped a bit. The hyper vigilance is appreciated so deeply, but finding a way to get more conclusive answers and not live in scanxiety mode was even better.

    Fast forward to a month ago - my new radiologists saw calcs and a troubling something in the treated breast in 3 D mammo. They wanted to do 4 biopsies. We ended up with 2 stereo and one US - guided one. After a scary week - diagnosis made was scar tissue from lumpectomy. The doctors told me that given my prior BC and presentation - they were taking no chances and would have done a wait and see had I not had cancer before.

    This is a longwinded way of sharing my experiences post surgery of having doctors trying all that they can to help me stay safe. I love them for it and appreciate it but recognize that tremendous anxiety accompanies it in my case. I am very hopeful that your doctors are doing the same vigilant review and that you will get an all clear result.

    I have not thought fully about a mastectomy to avoid the anxiety. Given this last round of biopsies, I certainly appreciate why others made that decision. I am going to see my ob-gyn and talk this issue over.

    Hope you will keep us posted.

    Belle xx


  • IADeb
    IADeb Member Posts: 8
    edited September 2017

    GreenEyes81, mine was 3D. I went with a 3D last year for the first time and credit it for finding the cancer in my left breast. My tumor was 3.8 cm so it must have been there for a while yet never showed up on 2D! I've had two false positives with the 2D (in the other breast) and one true positive with 3D. So I encourage everyone to take the 3D option if given a choice, even if it costs a little bit extra.

    Teddy88, thanks for sharing your story. I am hopeful that my docs are being extra vigilant and what they are seeing is scar tissue from the surgical biopsy I had 3 years ago. I hadn't thought about that until now, so thanks again for the input. It helps put my mind at ease.

    I will report back after I know more.

    Deb

  • Teddy88
    Teddy88 Member Posts: 102
    edited September 2017

    Hi Deb: Just an extra note - the scar tissue presented so much like cancer that the radiologist sent the specimen back for a second look to make sure it was not. Keep the faith + will look for your posts next week.xx Belle

  • IADeb
    IADeb Member Posts: 8
    edited September 2017

    Good news to report this morning. I had the diagnostic mammogram and all is fine! I guess they are just being extra cautious with me because of my history. So stressful, though. Next time I go back to my oncologist, I am going to talk about a prophylactic mastectomy.

  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited September 2017

    That is great news IADeb!!!

  • Teddy88
    Teddy88 Member Posts: 102
    edited September 2017

    Happy News - and the exact same topic I want to speak with my doctor about. I am so glad for you, IA Deb

    Belle

    xx

  • koshka1
    koshka1 Member Posts: 678
    edited September 2017

    Hi, as a breast cancer survivor, every follow-up mammogram has been a "diagnositic...".

    Here in Canada they do not send you for screening after a diagnosis, no matter how long. It is always a diagnostic.

    So that someone looks at it more closely while you are there.

    Kosh

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited September 2017

    Whether it's justified or not, that fear was part of my decision to have a BMX. They had found a couple of areas in the good breast on MRI before I had chemo. They didn't feel they needed to be biopsied - not concerning enough - and recommended a repeat MRI in 6 months. After chemo, the repeat MRI showed that most had disappeared and one had not. It still was not concerning enough to biopsy and they recommended another repeat MRI in 6 months.

    No one could tell me why some had disappeared - could be response to chemo or could be lack of hormones. I wasn't comfortable with that much unknown and opted to just do the BMX. I was already going to need some kind of surgery on that side for symmetry if I did the LX on the other. And if I'd done the LX, I'd only be getting the radiation on the one side.

    I'm glad you got good results - such a relief, I'm sure! But I understand your contemplation of prophylactic MX, too.


Categories