Got ILC diagnosis - scared witless in NYC

I did not get a 2nd opinion, though I am only past my mesectomy sergury. I meet with the onco/ rad onco ect next week. After reading all the stories on here....I felt I was very blessed with the doctor I had. He would have done what ever I wanted (go flat/pre pare for reconstruction) which out any argument. I asked for an MRI, it was my one requirment of any doctor. He did not hesitate, and as I went in for more tests everyone who saw what doctor I was seeing said amazing things down to how he takes the time to do small stitches to help with the "visual" aspect later. I never questioned him. BUT---if something ever feels off with any doctor I WILL get a new one.

I have done in the past for little things. I say keep your appointments and see how it goes. Listen to your gut.

If you are young and have dense breasts, I would recommend asking for an MRI if it is not an automatic thing for your team. I would have had a lumpectomy had I not had an MRI that found 2 more spots. Lumpectomy was no longer even an option.

we are in NYC and received a diagnosis for IDC and we also plan to use MSK. A friend recommended dr. Port at mount Sinai as well since they have been very well funded and dr. Port is from MSK. So we may seek a second opinion too. Same question and we think if we can get one quickly or MSK doesn't feel right, we may have the the second consult.

hi agatha,

It's hard to answer your question. We don't really know. I think we are trying to gather the details, see the recommendations for treatment, and then decide who we trust the most. Our MKS doctor wrote a book im reading today so trying to see how we feel about her. Will def let you know. Issue with MSK is they are the best but they are a factory is the rumor so attention can be tough. Port is really well regarded and Mt Sinai seems to give more attention. But all our experiences will be different and this is all secondhand. Will bee back

Hi Agatha,

Fellow NY'er here, I'm right over the border on Long Island. My dx came about a different way, but I did not see an oncologist until after I had surgery. I think it depends on the Doctor. I'm sure its just to talk about what they know already and the scenarios on how they may treat it. Perhaps by the time you have the appt. all the info will be in.

I choose Dr's out here but I already had been seeing my breast surgeon for different issues over the years and choose to stay. My surgeon is Chief of Breast Surgery/Oncology surgery so I felt confident and also with the recommendations made to me on an Oncologist and Plastic Surgeon by my BS.

As for being nervous about every twinge...does it ever stop? I'm still in that stage being 5 weeks out of surgery and think I will be this way for a very loooooooong time. So rest assured thats common.