Starting Radiation August 2017

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  • inccmd
    inccmd Member Posts: 69
    edited August 2017

    Finished my rads today! So excited to be done!

  • Legomaster225
    Legomaster225 Member Posts: 672
    edited August 2017

    Congrats inccmd!!

    Elootz, my RO does not want me to use anything until I get side effects either. So far nothing but Ive only done 9 of the 33 treatments.

  • Castigame
    Castigame Member Posts: 752
    edited August 2017

    I was given silicone cream by RO who also OKd green tea. For about 7 days now If I had used 5 or 6 cool aloe gel that is a lot. No silicone no green tea just aloe gel. It sure feels like letting my hot torso be cooled in AC inside home is the best treatment for my skin. 21 out of 30 done. Out of 9 left, 5 are boosts.

    Because I am stage 3A, RO probably prescribed ZZZZZaping for me. I am delighted I am doing a OK.

    Mimi

  • Goofycat
    Goofycat Member Posts: 39
    edited August 2017

    Congratulations, inccmd!!!


  • ShockedAt48
    ShockedAt48 Member Posts: 138
    edited August 2017

    eloots: I would definitely ask your RO about the HT and potential side effects. As well as preventive skin treatment.

    inccmd: Congrats! I am so glad that you are done!

  • MamaOz
    MamaOz Member Posts: 432
    edited August 2017

    reba, You'rehanging tough! Hope your skin is doing better!

    Today will be 17 of 28 for me just starting to feel a little discomfort mostly internal ... went to PT yesterday and she said I look good so far but a little fluid inflamation that she worked out...

  • elootz
    elootz Member Posts: 12
    edited August 2017

    Talked to the doc today and he said no to green tea, and that studies show calendula does nothing. He only wants me to use aquafor. He said I could go ahead and start using it if I want. Still only a little pink but it's only been 6 treatments. I'm very fair skinned so I'm really surprised I'm doing this well .

    Legomaster: glad I'm not the only one

  • jessiebelle
    jessiebelle Member Posts: 16
    edited August 2017

    Hey Everyone! My last rad treatment is today. Yay!! Apparently I get to ring a bell:) Tonight my hubby, kids and I are going out to celebrate!!! Congratulations, inccmd!!! Soon we will all be through treatment, I feel like this site is like lending a hand to pull you through by those who have risen to the challenge and succeeded. It appears the Cavilon spray worked well (RO prescribed it to be applied every other day a a barrier) also I used aloe vera at night and cold compresses after treatment - when I got home from work. I have a pink tinge underneath and it feels achy. I need a very tight sports bra for running and feel a bit more tired than usual. I wish the best for you all. Life goes back to "normal" though I am forever different.

  • Mimie
    Mimie Member Posts: 42
    edited August 2017

    I've completed 7/20 and experiencing soreness, queasiness, and fatigue. Meet with the PA and RO for my weekly appt. yesterday. First I met with the PA, when I described my symptoms, she said they were not known symptoms to the radiation, and made me feel like it was in my head. I felt so beaten down didn't pursue the issues with RO. Just gotta get through it. Its not unbearable, but I would have liked reassurance that what I am experiencing is normal. Jeisseebelle - I was told no cold compresses, would love to use that, as it helped a lot after surgery. Will ask at next weekly gab fest with my "crack team".

  • inccmd
    inccmd Member Posts: 69
    edited August 2017

    Congratulations Jessiebelle!

    And thank you everyone. It feels good not having to run out for an appointment.

    With so many people taking about feeling queasy and lightheaded, I really have to wonder about the medical community. There's too many people on here saying the same thing even if you take out those going through chemo at the same time as radiation.

    Interestingly, when I talked to the RO nurse about it on Monday - my lightheaded feeling coincided with my period - she said, you know your body, and you know what you feel. She even kidded with me because I made the mistake of mentioning it to the technicians who give me the treatment. She said, "I bet they panicked and said you should not be feeling that way." She said the body is trying its best to deal with all the inflammation from the radiation that you are going to feel something, and we are all different. I love her!

  • jessiebelle
    jessiebelle Member Posts: 16
    edited August 2017

    Mimie, I just put cold water on a facecloth and held in on for a few moments then repeated a few times. It seemed to take the heat out. Then I applied some aloe vera. Once when I got home and once before bed. I was told not to use ice packs (which is what I used after surgery). You do know your body better than anyone and your team should support you regardless of what they consider "known" symptoms. You have my best wishes for every success!

  • Goofycat
    Goofycat Member Posts: 39
    edited August 2017

    Congratulations Jessiebelle!!! I hope you have a great family celebration!!!


  • MamaOz
    MamaOz Member Posts: 432
    edited August 2017

    mimie, i originally got the same response 'not normal side effects too.. when i said my throat and chest hurt after the first week by the PA, but then RO said its inflamationFrom rads.. however I plan to ask this Friday about queasyness that just started this week..

    so ask the Dr next meeting .. instead of PA .. after going thru chemo etc I found that the PA and Drs have different opinions.. and I isually defered to the Drs opinion. So dont be afraid to repeat your questions..

    congrats to all who finished!!🛎🛎

    Today 17/28!!

  • Castigame
    Castigame Member Posts: 752
    edited August 2017

    #23 out of #30.  

    sudden fatigue came about.  luckily I was able to drive home. 

    alternating multiple bottles of aloe gel which cool  my hot torso well. 

    feeling OK. more paperwork 

    off to PT and errands. 

    mimi


  • Mimie
    Mimie Member Posts: 42
    edited August 2017

    Thank you all for your support. We will get through this, queasy and all... Will try the cool washcloth, thanks jessiebell.

  • VLH
    VLH Member Posts: 1,258
    edited August 2017

    Yay for you, Inccmd!!!

    Lyn

  • Mandycat
    Mandycat Member Posts: 52
    edited September 2017

    I have completed 10/16. My ROnwatned me nausea could be a side effect but I haven't had any. I agree that a lot of this is going to be individual reaction to the stress of inflammation. I have old rotator cuff injuries but have never had any problems until I started breast cancer treatments. I panicked and have been a bit depressed because yesterday my shoulder seemed frozen. I have had increasing right shoulder pain since about third radiation treatment. I talked to my primary care physician and she agrees it is likely associated with the radiation but RO doesn't think so. It is frustrating when you don't feel they hear you. I'm grateful to read other people's posts.

    Congratulations to those who have finished!! We are also planning a celebration when I finish.

  • inccmd
    inccmd Member Posts: 69
    edited September 2017

    Mandycat, keep pushing about that frozen shoulder. You want to ease that as soon as you can. I'm glad that your primary care physician is listening.

  • MamaOz
    MamaOz Member Posts: 432
    edited September 2017

    mandy, are you doing any PT? I go once a week as I had 3/29 nodes removed I had alot of cords but they have subsided , but my therapist who specializes in lymphedemia, works on massaging the inflamation fluid

    And has given me mild exersizes to gently stretch my arm, and chest as the skin is tightening which is normal during rads And permanant I think

    If not ask Dr for a script todo so

    Mamaoz

  • illimae
    illimae Member Posts: 5,710
    edited September 2017

    Missed two rads this week due to flooding, so off I go to a Saturday make up session #16/30.

    I do PT once a week too with exercises, stretches, etc.

    So far, skin and energy are good.

  • inccmd
    inccmd Member Posts: 69
    edited September 2017

    Good luck illimae. Safe driving.

  • VLH
    VLH Member Posts: 1,258
    edited September 2017

    Owie, Mandy! I thought radiation would only affect the shoulder if one was having the armpit radiated for positive lymph nodes so now I'm concerned. My shoulder is so bad that the technicians initially didn't think I could do prone position. Fortunately, the RO came in and approved an alternate position that didn't involve having my arm straight out overhead. I have lymphedema on that side, too. Blech!

    Lyn

  • ShockedAt48
    ShockedAt48 Member Posts: 138
    edited September 2017

    I am a week and a half out from finishing my radiation and my breast is getting less red everyday. I have noticed that the skin on my nipple is scabbing and starting to come off. My fatigue is getting better and I just have the nagging burning in my nipple. I saw the RO Friday and he said that within two weeks my skin should be better. Anyone else out there have pealing skin on their nipple? I am going to start my Tamoxifen next week, kind of nervous but I'm sure it will be fine. Has anyone else started their Tamoxifen yet?

  • MamaOz
    MamaOz Member Posts: 432
    edited September 2017

    anyone nauseous? Ive had 19 of 28 snd the last 2. Days my stomach is very queasy..

  • Castigame
    Castigame Member Posts: 752
    edited September 2017

    I  felt light subtle  nausea since rad #1.  I had very little queasiness thru DD chemo. I thought the subtle nausea w rads was due to cutting Ativan by 2/3.   Dang it I cannot wait to be done w zapping. 

    I miss my flexitouch pump usage. I  feel dang hot all the time no matter how much cool aloe I pour over the area.  6 more to go.  the last 5 are boosts.  

    mimi

  • Goofycat
    Goofycat Member Posts: 39
    edited September 2017

    Shockedat48 - I have had pealing skin on my nipple and my dermatologist gave me triamcinolone acetonide ointment and that has helped me.

    For nausea a trick that works for me is smelling alcohol swabs and using the seaband bracelets.

  • Jkp1024
    Jkp1024 Member Posts: 6
    edited September 2017

    I have completed 25/30. The last 5 were supposed to be boosts, but my skin in the entire radiation area was bright red, and very uncomfortable so my RO moved my boosts to last week (sessions 21-25). My skin has settled down significantly but the entire area has pretty much peeled. Oddly, it's not uncomfortable at all, with the exception of being a little itchy. I'm not sure how my skin will now react in last week, but only 5 more

  • MamaOz
    MamaOz Member Posts: 432
    edited September 2017

    Thanks reba and goofycat for acknowledging the nausea

    I have 9 more to go, however im in the florida keys and go to Miami for treatment .. we have a giant hurricane looming which is freaking me out

    Will ask what the protocol is tomorrow as I may leave town..

  • Mimie
    Mimie Member Posts: 42
    edited September 2017

    MamaOz- I'm in Miami too and plan to ask my RO tomorrow what the plan is. We aren't evacuating, been through many storms, even Andrew in '92. But I made hotel reservations near radiation center for after the storm that has generator power and all rooms will have A/C. I'm always so hot now, I couldn't imagine living in 95 degree heat now w/o ac. Stay safe.

    Rebamacfan1 - I got queasy week1, it was better last week (week 2). But with that said I find I do better eating small meals every few hours.

    Any advice on simulation for boosts and boosts. So far I've been face down, will that change? Are boosts more intense? So far no burning, just soreness.

  • Castigame
    Castigame Member Posts: 752
    edited September 2017

    Mimie and Mamaoz that make three of us. I live in Orlando FL. Please be safe.

    Will try smaller meals ty

    Boosts dont know about position change. I currently hold bars straight above my head. Internet search yielded they are stronger dosage than regular zapping. yikes.more less surgery scars get zapped for boosts because surgeon cuts based on high concentration of tumors. And I get Bolus for every boosts👹

    Regardless let's kick this bleeping disease!!!

    Mimi

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