positive nodes survivors?​

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tzoul
tzoul Member Posts: 19
edited October 2017 in Triple-Negative Breast Cancer

High everyone. Any (fresh) news from TN, lots of positive nodes survivors?

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  • Jojobird
    Jojobird Member Posts: 203
    edited July 2017

    I am 1.5 years out, and still here. Am running a 10k next week and steady as she goes. One day at a time. Wishing you the best.

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  • tzoul
    tzoul Member Posts: 19
    edited July 2017

    thank you for posting!

    wishing you the best

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  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited August 2017

    gepopadop,

    I lost 4 of 14 lymph nodes. Was Stage IIB. In November, I will have been alive and well for 9 Years after dx. So you need to get ready to live. It won't be fun for up to a year, but you don't want to miss a minute of what can come after. Good luck to you!

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  • Redporchlady
    Redporchlady Member Posts: 113
    edited August 2017

    I had positive nodes and will be 3 years in September. Thanks yellowdoglady for your post. I don't live in fear but Recurrence is always in my brain.

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  • Sam0623
    Sam0623 Member Posts: 110
    edited September 2017

    For those of you that were node positive, were you always considered node positive? I have always been considered clinically node negative, and I just had by BMX and was told there was one positive node during my SNB so she completed a full axillary dissection. I am completely in shock- not only did I not get a PCR (which I knew was highly likely), but my node status is worse than I even expected. I figured if they did find any thing in my nodes it would be microscopic and mainly fibrosis (killed by the chemo). Anyone have a similar experience, or did you know you were node positive all along? Thanks!

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  • tzoul
    tzoul Member Posts: 19
    edited September 2017

    yellowdoglady and redporchlady thank you for your posts!!!

    Sam0623 I did not know about my nodes until my surgery and the path report after that.

    thanks

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  • kellychameleon
    kellychameleon Member Posts: 100
    edited September 2017

    My mom was triple negative with a positive node and is doing great 12 years out! I had a questionable node (it wasn't removed until after chemo and was negative at that time, but was slightly lit on the MRI). I'm not quite 2 years out. I'm obviously hoping for the same outcome as my mom!

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  • Valstim52
    Valstim52 Member Posts: 1,324
    edited September 2017

    I'm almost 2 years out. Per a pre-chemo Pet scan I had several nodes that lit up. After treatment surgery removed 22. Only 1 had a micomet left. I have lymphedema in my arm, but am doing quite well.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2017

    I'm 4 years out from DX (TNBC with + nodes) and my followups have all been clear.

    Sam0623 - I was told my nodes were negative throughout my chemo and then I was told they were positive after my mastectomy. Yes, it was quite a surprise!

    Kelly

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  • SurvivingToday
    SurvivingToday Member Posts: 5
    edited October 2017

    I am just a year out from DX. I was one node positive at DX. Completed new-adjuvant chemo. Four nodes removed at surgery, all were negative. So far scans have been good. It is really encouraging to read the comments from those of you who are numerous years out. Thank you for sharing.

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