IMPLANTS AFTER RADIATION?

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ski2
ski2 Member Posts: 21
edited September 2017 in Breast Reconstruction

I didn't see a thread for this so wanted to ask: has anyone gotten implants in a formerly radiated (RAD) breast?

Many people, like me, get a lumpectomy and RAD, only to discover a BRCA gene or maybe another reason to get a mastectomy later.

Some plastic surgeons say there is a 30% failure (to expand) rate after RAD, others say closer to 50%. Many women get implants anyway and are happy with them. Still, there is a risk of failure.

(This is why it is so wrong that surgeons do not disclose the risks of RAD. - They should be required by law to warn patients that RAD will permanently alter and otherwise damage breast, skin, muscle tissue. Yet they rarely, if ever do!) 

Did you get the Latissimus flap to aid in your implant procedure? 

Please share your experience here. Thanks!!

Comments

  • julianna51
    julianna51 Member Posts: 438
    edited May 2012

    ski2 - there are different threads on here concerning this very issue.   I  had started out with the intent to have implants but a surprise need for radiation made me seriously rethink it.  My original PS would brush off my concerns and only said we could "fix it".   My understanding is the risks after radiation include: capsular contraction, greater risk of infection and slow healing, symmetry issues and more.   I've read of the risks being 50% greater after rads.  My new PS said the risks could be as high as 80%.   So, I had to seriously look at how much pain and continued surgeries I would be faced with if I continued with implants.   For me, the risk is too high and I've changed my reconstruction plans to have DIEP surgery in June.   Yes, the surgery is long and recovery is long but in the end I'll have my own tissue and much much less risk of failure.

    Oh, my original PS did talk about the Lat flap to fix problems....the SEs from that were not something I wanted to deal with.

    Good luck to you!   This site has a wealth of information.  One more thing, I did start a thread way back regarding radiation and implant success stories....and you'll find others there that have had success with implants after rads.

  • jwilco
    jwilco Member Posts: 486
    edited May 2012

    I had implants before BC.  When I was given options for treatment I was shocked that they started with UMX as the treatment.  My lump was tiny.  They did mention the UMX being skin sparing with an implant.  My husband and I were in shock.  We thought it would be a tiny lumpectomy and then radiation.  The end.  Well, when we asked about that option they explained the risks of radiated skin and using an implant.  For me, astetically, the UMX was the best choice.  The PS then met with me and suggested using the latissimus muscle to support the implant.  He also explained in great detail (same as julianna51 listed) what can happen to an implant due to radiation.  He didn't recommend it.  I had my UMX/lat surgery in October and one revision in April.  I haven't had any problems with the lat surgery.

    I have read of other's experiences with recon after radiation and it sounds like there are more issues but I have read about those with no problems too.  As suggessted, do a search and see what the experience has been.

    It's still up to you and everyone is different.  You have to find the best solution for you.  One that you can manage and live with.  Good luck.   

  • SingingSparrow
    SingingSparrow Member Posts: 4
    edited May 2012
      

    I have a sincere desire to reach out to women who have had a breast cancer diagnosis. My goal is to help other women what I have learned through my experience and much research. To summarize: tissue expanders placed in previously radiated skin is a set up for failure. My plastic surgeon recommended placing tissue expanders immediately after my double mastectomy in December of 2009 to stretch my skin and prepare me for the implants. I went with his recommendation, and why not? He is listed as one of the ‘Top Docs' in Cincinnati Magazine. I thought he knew what he is doing.  But that is when my problems began.  My skin became a necrotic black color and peeled/fell off.  Basically, the appearance was like an untreated burn victim. At that point, I was much too exhausted to research for myself this entire process of my skin deterioration. Later, the reason was put in layman's terms by one physician that I consulted, stating "the radiation kills both the cancer and good cells, leaving damaged cells that lack proper blood circulation." This was never explained to me by my plastic surgeon. I trusted he was telling me everything I needed to know. Finally, after 7 weeks of trying to keep my skin from falling off, I requested him to at least remove the hard black necrotic tissue.  At this point the tissue was dead and delaying the healing process.  He seemed uncommitted, uncaring and nonchalantly agreed.  (How would anyone like to live every moment, every day with dead black tissue on your chest?)

        He then began to fill the tissue expanders with normal saline; unfortunately I was too weak to recognize he was going down an incorrect path. The tissue expander on the radiated side was stretching my skin beyond its capacity. He continued to pump normal saline into the tissue expanders despite the severe scar tendons, striations, stretch marks and a concave appearance next to my sternum. During this time he continued to give me the same standard answer, "just wait and see".  Yes, I was still trusting he knew what he was doing but fortunately decided to seek additional opinions  from established plastic surgeons. Three to be exact; including one at the Cleveland Clinic. All concurred they never would have placed a tissue expander in my previously radiated skin. To say the least, it was a dismal time in my life.  I was given two options: live with my severe scars and deformities or start all over. I chose the latter and presently under the care of a surgeon who specialty is breast reconstruction.

    I want to get the word out about the dangers of operating on radiated skin. All breast cancer women need to be advised to only use the best microscopic surgeons.  And be treated as patients with special medical needs, not like a ‘drive- thru cosmetic customer' at The Plastic Surgery Group.  Breast cancer survivors choose a doctor and facility that focuses on medicine and reconstuction rather than cosmetics. The day I walked out will forever be the day my emotional and physical healing began. It is a fact NOT ALL PLASTIC SURGEONS ARE EQUALLY SKILLED, ESPECIALLY IN THE AREA OF BREAST RECONSTRUCTION.  My 'do over' was the DIEP procedure completed by Dr. Nguyen in Cincinnati Ohio. (refer to that thread)
  • eine
    eine Member Posts: 67
    edited May 2012

    I also had failed recon after a lumpectomy and rads.  Never was I told about the long term effects of radiation, and, at the time of my diagnosis, I didn't know to consider the aesthetic outcome that continues to deteriorate from the rads over time.  I have met with dr. Massey while she was in chicago and am considering a completion mastectomy and DIEP per her recommendation.  Whatever I decide, I would highly recommend her to anyone, and also, in a perfect world, would shout from the rooftops that radiation causes long term damage and that should be a HUGE factor when making a decision about treatment.  Of course it would help if the diagnosis itself wasn't so shocking and paralyzing to the point that a lot of us women just do what our surgeons say.  It is one of my biggest regrets and I have made it my committment to counsel any newly diagnosed women to get as many opinions and as much info as possible, even during a very scary time.

  • ski2
    ski2 Member Posts: 21
    edited May 2012

    Just want to pipe in that I also wish there would be a legal requirements for all surgeons, oncologists, etc to inform women of the long term RADS side effects. I mentioned this to a surgeon who argued that this would scare women too much who are already freaked out that they have cancer.

     That may be, but still, it should be our right to know beforehand. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    I'm surprised with all the legal stuff you have to sign before surgery ..that similiar waivers aren't required before radiation/lumpectomy?  (But then again - who actually reads all that fine print).

    I had a BMX and no radiation...My PS's office is very thorough with overdosing you on information ...I remember clearly some of the wording in the documents I had to sign before surgery.  They even went as far as to write that "I may not be able to breast feed after this procedure".  Really? 

  • sweetbean
    sweetbean Member Posts: 1,931
    edited May 2012

    I had a BMX and rads, and then implants.  I'm not happy - I'm still uncomfortable and I'm asymmetrical.  I'm trying to get approved for a PAP flap procedure in the late summer.  It's a new tissue transfer procedure - I'm not a candidate for any other types of flap surgeries.  Had I known about this procedure before my implant exchange, I would likely have just done the PAP flap. 

  • HGL4969
    HGL4969 Member Posts: 25
    edited May 2012

    I feel compelled to comment on the other side of the radiation picture.  Prior to my BM, it was my understanding that those that had radiation could not have the one-step procedure or implants. I had radiation in '96.  When I was diagnosed with DCIS in 2011 (BRCA1), my breast surgeon referred me to a plastic surgeon who was know for taking on challenging cases.  I did my due diligence, checked out information within my informal area cancer network, online, etc. and moved forward. This was the reconstruction I wanted for many reasons.

    After my initial evaluation / examination with the PS, he thought my skin was in good condition and it was a go.

    I had my BM via the one-step procedure in Nov 1011.  My radiated breast behaved differently and had an infection and needed a scar tissue release revision. The PS and his staff were amazingly proactive when dealing with it - saw me more often then I ever expected and I never doubted for a second they would make it work.  I can't remember when the last time I've felt so cared for in my life.

    Net - I believe there is a vast difference in the PS out there - if you've had radiation - talk to a number of PS and find one that has a successful track record in dealing w/ radiated breast reconstruction and have them assess the condition of your skin.  Having physical therapy is also essential. There are many women who previously had radiation who've successfully had implant reconstruction.

    Good luck -   

  • Jennt28
    Jennt28 Member Posts: 2,021
    edited May 2012

    I'm in Australia. Not one single PS or BS in my city will attempt implants for a woman with a previously radiated breast. They all say flap is the only option. I was surprised because I have read on here about so many women in the USA having them.



    I had lumpectomy with positive nodes and no ALND so need rads definitely. Am now considering BMX with reconstruction for areason too long to describe here. The PS won't even see me until 6mths after rads. I am really interested in the PAP/TUG flaps but it doesn't look like anyone is doing them here in Australia :-(



    Jenn

  • besa
    besa Member Posts: 1,088
    edited May 2012

    http://www.hopkinsbreastcenter.org/services/ask_expert/viewquestions.asp?id=999808342

    This is a question and response on the topic from the Johns Hopkins Hospital "ask the expert"  web site (Of course there are other microvascular free flap options besides DIEP.)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    Another option with a radiated breast is fat graft reconstruction which helps scarring and may be helpfully with lymphedema.

  • SingingSparrow
    SingingSparrow Member Posts: 4
    edited May 2012

    It's me Singingsparrow from Cincinnati.  Just processing all of your wonderful input and comments. (refer to my story above) I failed to mention I'm a twice breast cancer survivor. First time in 2001 and second time late 2009. I had a lumpectomy, chemotherapy and 6 weeks of radiation in 2001. In late 2009 had BMX with immediate reconstruction. So even 8 years out the first time my skin and tissue on the radiated side never did heal properly when the tissue expander was placed.  I wanted to add that I heard one PS explain "plastic surgery is taking a part of the body that is relatively normal in appearance and making it look better. Where as reconstructive surgery is more medical and taking a damaged area whether by surgery or accident and attempting to reconstruct to a normal appearance". That is where my first PS failed, he was trying to fit me in his world of cosmetic plastic surgery and I was left out there on my own attempting to get answers as to why this was happening to my skin and tissue. In the end it was a lose/lose situation for both of us. He should of referred me to a more skilled surgeon who has or can deal with radiated skin. In return he has recieved bad reviews through my family and friends who saw what had happened to me.

    And ladies, if you read the fine print on implants I believe you need either a mammogram or other test every year to check for leakage otherwise the warranty is nullified. And the extended warranty only covers the cost of implant only, not the surgery, hospital, anesthesia and loss of income fees.  Please forgive me if I don't have the information exactly correct, I'm going by total recall but I'm fairly sure most is correct. I know of at least two women where they had implant leakage. The old adage 'don't think it will happen to you' doesn't always apply.

    And in attempt to get 'closer' I requested all my medical records. Wow, what an eye opener with all the fine print and did I really sign that many? A resounding yes. A friend asked me "would I go through the whole experience again for two million dollars?" I hesitated and just could not say yes to that question. Nope, not even two million dollars would cover the cost of the pain and suffering of a failed reconstructive surgery.  Now 2 1/2 years later I wish I had the DIEP or some other skin grafting procedure first.  I just thank God that the DIEP was available right here in Cincinnati. The University Hospital is so much more medical focused and treated me like a patient with medical needs...which essentially all of us breast cancer survivors are.  Take care ladies....I'm finally ready to have my nipple tattoos soon. Smile

  • kittycat
    kittycat Member Posts: 2,144
    edited May 2012

    I am a 2 time bc survivor.  1st time I had DCIS and had a bmx and TE recon and an exchange surgery with silicone implants.  The 2nd time I had IDC and the bc was spreading through my scar capsule.  I had chemo and 33 rounds of radation on my already reconstructed breast.  I develeoped capsular contracture within 3 months of finishing radiation.  I've had 2 surgeries so far to correct it.  There has been some improvement, but I am still not symmetrical.  My skin did okay with the radiation and surgeries, but my tissue wants to harden up right away.  It is very frustrating!!!

  • KatiKay
    KatiKay Member Posts: 13
    edited May 2012

    There is a new procedure that I am interested in.  Fat injections are used for several months or so before they put the implant in.  I am hoping this will become more available soon.

  • Dianarose
    Dianarose Member Posts: 2,407
    edited May 2012

    I had radiation on my left side almost 8 yrs ago and then got bc on the right side and had a bmx in April. I have TE's in both sides and the side that I had previous radiation on is doing great so far. It actually seems to be doing better than the non-radiated side. After chemo I do have to have radiation on the right side, but was told it would be more concentrated under my arm and below and above my collar bone and chest wall. I am really used to the expanders now so If I need to wait after rads to make sure I am healed before the exchange, I will just have to wait. I really only want to do this once. I had skin sparing, but not the nipples. Will get tattoo's at some point. I think everyone should find a ps who has experience in radiated breasts. The first one I went to would not do anything for me. The one I have now is great and has experience with women who have had radiation.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited May 2012

    I agree that all BS should have to inform us of all options available.  That did not happen to me.  I was rushed into an lumpectomy and 7 weeks of rads actually stretched to 8 because of the holidays.  To later find out I was at high risk for local recurrence and would have to have scans every 6 months for life.  What kind of roller coaster ride is that?  Not one I wanted to ride.  I found out at the end of rads that if I had had a MX I would not have had to have radiation.  I was pissed.  At my one year follow up they found another lump so surgery again.  Thankfully this time was B9 but I said no more.  I saw 3 PS before I decided on the one I was to use.  I used Dr. Ledoux with PRMA in San Antonio and all 6 doctors there do nothing but breast reconstruction.  I had a BMX and went with TE's.  I am too thin for DIEP flap.  Even though I had some skin issues during rads my skinned actually healed pretty well but he did say that did not mean the tissue under the skin was in good shape.  He is a micro-vascular surgeon so his big concern was blood flood to my tissue.  Because of the previous rads he did not want a BS doing the BMX and wanted to do it himself so he could salvage what he could of my blood vessels.  Since I was not dealing with active cancer at the time and did not need another SNB he was able to do this for me.  He also was able to save my nipple on my rads breast which I am thrilled with.  I am still in my expansion process and so far everything as gone well.  He is expanding me slowly every 4 weeks. He went over high risk of failure with TE's following rads but felt it was worth trying on me and if it failed we could do another type of flap procedure as long as I understood the risk which I did.  He also said I was not the first one like me he had done and he had never had a failure, not that I could not be his first but he would do everything he could to make it successfully. My BMX was March 26th and I will probably have my exchange the end of August. I know that even though the TE part has gone smoothly I could still have capsular contracture after permant implants are placed.  If I had know all the long term SE from rads I would never have agreed to it.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    KatiKay. I have not heard of fat grafting before implants, only fat grafting after implants and full breast reconstruction with fat grafting. Please elaborate. 

    SherryC, you say what I have heard from SO many. A MX without rads seems to be better than a lumpectomy with rads in terms of reconstruction failures.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    KatiKay,

    Sounds like that procedure may require at least 2 surgeries?

    Here's another study you may be interested in: http://meeting.aaps1921.org/abstracts/2012/35.cgi

  • Pegs
    Pegs Member Posts: 198
    edited June 2012

    I finished rads last january and had implants put in april, didn't work out, incision opened and it had to come out, had expander put in and was to start over, woke up one morning to a big hole , was only expanded once so my only option was a tram flap, had that last november and it looks fine.  i do think if i had waiting longer after finishing rads maybe the implant would have worked out, but who knows.  from what i have read on this site, most wait at least 6 months after finishing rads, i only waited 4, maybe longer is better for skin to heal, maybe it doesn't matter.  My ps did tell me the risk of rads, but 3 different rad docs suggested getting it so I did, i wanted to do everything possible to prevent it from coming back.    hope this helps.

  • MrsMot
    MrsMot Member Posts: 90
    edited July 2012

    I had the DIEP procedure prior to chemo and radiation.  After it was all done, my PS said he wants to wait over a year to clean up the breasts and create a nipple.  He said its not good to do surgery on radiated skin.  He also said I could not have implants because of the radiation.  I feel, from reading all of your inputs, that I did pick the right doctor.  My PS is Board Certified in breast reconstruction after a mastecomy.  My breast surgeon recommended him. 

    Mind you, I really do not like the shape of my new breasts (made with my belly fat), but its a work in progress.  The alternative was to keep them and most likely die.  So I am happy with my misshapped boobs! 

  • Sherryc
    Sherryc Member Posts: 5,938
    edited July 2012

    MrsMot I think waiting a year after rads is a good thing.  give your body time to heal and makes the chances of the next surgeries more successfull.

  • aussielovergirl
    aussielovergirl Member Posts: 46
    edited September 2017

    Is there anyone currently thinking about implants with previously radiated skin ? It looks like everything I read it at least 5 years old - so maybe now there are better procedures and they are having better success with it ?

    Mine was 3 years ago and the skin looks and feels fine to me.  I don't even see any skrinkage.

    I have been dx with DCIS again and would like mx with immediate implants.

    Can anyone please give me some feedback before my meeting with the surgeon ?

    thank you all - for the wealth of information.

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