Sex during chemo?

Options
VL22
VL22 Member Posts: 851
edited October 2017 in Sex & Relationship Matters

Just wondering if women are having sex during chemo? My husband and I have a great sexual relationship. Throughout diagnosis and surgery things stayed the same, however I just had my first infusion of AC a week ago and I am just now feeling normal. I guessed I'm just afraid to go from a sexual being to ...I don't know. My husband is supportive no matter what, but I just wonder. Chemo for 5 months seems like forever and I just want to have things be as normal as possible. Thank

Comments

  • pupmom
    pupmom Member Posts: 5,068
    edited August 2017

    I never had chemo, but I think it would involve how you physically feel.

  • 70charger
    70charger Member Posts: 963
    edited August 2017

    If u feel up to it Why not? I did as much as I could. It helps to keep things as normal as possible during this crap. May bring u even closer emotionally.

  • Freya244117
    Freya244117 Member Posts: 603
    edited August 2017

    We usually wait for 72 hours after chemo before sex. That goes back to when I was having chemo the first time 9 yrs ago, and that is what we were told then. If we wanted to do it earlier, it was suggested to double condom. The body excretes chemo for a few days and they said it might irritate his penis. Practices change, so I'm not sure if this is still suggested now.

    The other thing to consider is if you are still able to get pregnant, to take extra precautions to exclude that chance.

  • VL22
    VL22 Member Posts: 851
    edited August 2017

    Thanks all. I tend to think too far ahead, instead of taking things day by day. It is the fear of feeling non sexual that has me thinking. But why dwell on? If I want it, I want it! If not, then I don't! This disease just morphs into all aspects of your life that you don't see coming

  • ml143333
    ml143333 Member Posts: 658
    edited August 2017

    I was told to wait 72 hours as well and if I felt up to it before then 72 hours was up to use double condoms as well. Honestly, I was not up to it at 72 hours so there was no need for double condoms.

  • amylsp
    amylsp Member Posts: 188
    edited August 2017

    Another suggestion - even if you do feel up for it, you might need to use more lube and go more slowly than usual. Chemo kills off fast growing cells (including the vaginal mucus membranes). So things might be a bit raw and sore down below.

  • debiann
    debiann Member Posts: 1,200
    edited August 2017

    We tried once or twice during chemo, but it was very painful. I'm now on Arimidex, and don't have much desire for sex. It's sad. I have found inserting some coconut oil routinely has helped with the dryness, but I don' t get the same urges that I used to.

  • bravepoint
    bravepoint Member Posts: 404
    edited August 2017

    We were also told to wait 72 hours after chemo. On AC, I felt awful for about 5 days so it wasn't an issue to wait the 72 hours. If you feel up to it, go for it. As others have said you will probably need more lube. My husband was very supportive as well and never pushed but was always there for a cuddle, hug or whatever I needed through 6 months of chemo then rads. Your sex life may be different than it was before but you can still have one!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited August 2017

    Yes to sex during chemo. Be aware that with lowered immunity, urinary tract infections are a risk. Don't NOT have sex because of this, but drink lots of water to dilute/drown/flush the bacteria, and be sure to pee before and after. Move the bugs downstream.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited August 2017

    Here's some info for men undergoing chemo.

    A few chemo drugs can be present in small amounts in semen, so you should use condoms while you are getting chemo and for about rwo weeks afterwards.

    Be careful to avoid causing pregnancy during and for some time after treatment because chemo may damage the DNA in sperm cells, and this could lead to birth defects.


  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited August 2017

    Goliatas, I'm not following the direction of your post. Can you try to state your opinion again?

  • Freya244117
    Freya244117 Member Posts: 603
    edited August 2017

    Goliatlas, do you have BC or are you just here to advertise?

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited August 2017

    Welp, she's gone. Thanks, Freya.

  • Shenanigans08
    Shenanigans08 Member Posts: 16
    edited August 2017

    I'm new to sharing online in general and especially about intimate issues such as these.

    debiann, I'm having a similar painful experience even with lube. I'm frustrated because I'm finally feeling good and want to but keep getting a stinging uncomfortable feeling with penetration. Any thoughts?

  • TarheelMichelle
    TarheelMichelle Member Posts: 871
    edited August 2017

    shenanigans I totally get what you mean, about not being comfortable discussing how your lady parts hurt when you do things with your husband that you would not usually discuss even with your best friend. This is important stuff, and the best way to get answers is to talk to others going through it, so we have to "put it out there" even if we are a bit shy.

    That's why I try to help as much as I can here, this is hard to get through without outside help!

    Lube can help make you slippery, but your internal and external tissues can be more sensitive, for a lot of reasons. So even with the "slip," the back and forth motion of intercourse can hurt. If you've had your ovaries removed, or any number of things done in the course of breast cancer treatment to shut down your hormones, you will notice a change in how intercourse feels. For me, I noticed a change even in how I look "down there" -- I shrank. (!!!!!)

    You can try different lubes. You can try moisturizing all the time, not just before intercourse. Key-E is a brand of coconut oil moisturizer, in a suppository form. It's not as messy as other lubes. You can use it any time. Buy it throughAmazon and Whole Foods.

    Some women with vaginal atrophy (fancy word for tissue weakness) can get help by using topical estrogen. It does not appear to increase breast cancer recurrence, but for many years doctors believed it did. There are stories on this website about research that shows it is safe, so don't let your doctor tell you otherwise. I've used it, and it does increase "plumpness" of tissues.

    Some women who want to be intimate with their husband substitute their mouth or hands for the vagina. It seems that some women do nothing but oral sex because penetration is painful. That doesn't mean your vagina can't be touched during intimate times but it might be that temporarily or permanently, penetration might be off limits.

    I hope this helps. Sex helps us feel human and normal at a time when we don't feel either.

  • Shenanigans08
    Shenanigans08 Member Posts: 16
    edited August 2017

    TarheeMichelle, Thank you so much for you candid response.

    It's a relief to have a resource to turn to for issues like these that I don't necessarily want to google. I know my husband and I have been feeling a little lost trying to figure this all out as things occur. It's only been two months (exactly today) since my diagnoses.

    To give you some details I'm 40 yrs. with invasive ductal carcinoma. I don't have kids or plan to. I'm on TCH once every 3 weeks. So far I've only had one round of chemo and was horrible with some reactions that my doctor did not expect. Round two is tomorrow with a recalibrated prescription. Fingers crossed it will go better.

    Thanks again for your help! :)


  • MakeupLover
    MakeupLover Member Posts: 64
    edited August 2017

    thank god someone asked this question lol

    i was worried about this too, since chemo is so toxic im afraid to somehow harm my husband if we attempt to have sex. and also we hate condoms.

  • TarheelMichelle
    TarheelMichelle Member Posts: 871
    edited September 2017

    shenanigans I hope round2 of chemo was OK. I'm well known among my doctors as being the patient who has bizarre side effects no one else has, so I can sympathize. That's what we are here for, to help.

  • Shenanigans08
    Shenanigans08 Member Posts: 16
    edited September 2017

    TarheelMichelle Yes, round 2 of chem went much better. Still was out of it for a few days but kept my appetite and taste buds! I really appreciate the support. There some normalcy to reading posts here.

  • Outfield
    Outfield Member Posts: 1,109
    edited September 2017

    I had severe irritation of the genital area during chemo, which you will definitely know if you have, but I also had extremely low white counts. It might be good to know where your white blood cell count would be expected to be before doing anything that might cause a lot of breaks in the mucosa. There are times during the chemo cycle when you're predicted to be at your lowest. For me, "lowest" was so low that I was relying on my skin and mucosal membranes as my immune system.

  • mjbp
    mjbp Member Posts: 2
    edited September 2017

    Lots of good info here. For me, vaginal dryness was a serious problem. I ended up using Replens, which is a vaginal moisturizer (that is to say, it is meant to moisturize and soften for several days vs. lube, which just makes things slippery). It is available at Target, CVS, etc. During my AC, I used it as often as the box said was allowed (I think every 3 days?) and it really helped, since itching and dryness were a problem even independent of sex. During my Taxol, my saliva, mucus, and other moisture-generating systems seemed to come back online so I used it less frequently.

    It sounds like you have the same chemo I just finished - 8 weeks of AC every other week followed by 12 weeks of taxol? I just want to say you can do it! When I started, 5 months seemed like an impossibly epic length of time, especially when the AC started to really suck around cycle 3. I know it's different for everybody, but please take heart in knowing that for me (as for many), taxol was much, much easier than the AC. Just keep moving forward, and one day you'll find yourself at the end.

  • Superwoman326
    Superwoman326 Member Posts: 6
    edited October 2017

    So what all did you do while on chemo, as far as sex? Did you have restrictions? Or could you do everything/anything? I just started AC last week and am I little worried about the whole germ thing.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited October 2017

    Speaking as a man who was advised to use condoms during my chemo, I'd suggest that you protect your partner to avoid transference of the toxic chemical infused bodily fluids. As for infections, it is paramount that you don't get one. I made the mistake of having some dental work done between chemo two and three and got a free trip to the ER to get Iv antibiotics which fortunately had me better by the start of chemo 4.


Categories