Daughter, 55, biopsy results cancer-architectural distortion

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Teacher18
Teacher18 Member Posts: 11
edited December 2017 in Just Diagnosed

Please!!! My daughter is the sweetest, kindest, most caring person I have ever known. She's the best daughter in the world, and such a caring and sentimental person. She is married and has two children at home. If anyone can give me any information about cancer seen in an Architectural Distortion, Please, Please let me know. She just got the results today. Her daughter, my grand-daughter, is another sweetie, and her birthday is Thursday. My daughter doesn't want her daughter to know anything about it until she has to be told (when surgery time). That's my daughter. She always puts everyone else first, including me. My daughter is going for an MRI this Thursday morning and seeing the Breast Surgeon Friday morning. If know we will have more information at that time and it is only a few days, but each hour is a torture. I know prognosis about possible outcomes in Stages of breast cancer, but I can't find anything about Architectural Distortion. Does that mean it is a early diagnosis, or not. Please answer if you can. As soon as possible.

Comments

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited August 2017

    I'm confused, because "architectural distortion" is a description when describing the appearance of something on mammogram or ultrasound. It is not a biopsy diagnosis. Has she had a biopsy yet-I'm not clear on that

  • beach2beach
    beach2beach Member Posts: 996
    edited August 2017

    Hi,

    I echo what MelissaDallas said. It's a description of what they see but does not necessarily mean anything ominous until they do further screening or biopsy. They did not give her further information other than they see a distortion? A Bi-rads # on her report?

  • Kicks
    Kicks Member Posts: 4,131
    edited August 2017

    I'll 3rd it. Unless she has had a biopsy(s) of the area that is of concern, it can not be called BC (DCIS/IDC/ILC/IBC or the incredibly rare BCs) until the pathology report says there is cancer there. It can be highly suspected (as mine was) but it takes the path. report to make a DX.

    Added: You said that you had checked on the prognosis of different Stages but the Type is perhaps more important with what the prognosis is. The '5year Survival Rate' varies drastically (90% down to 25%) with the different types.

  • Teacher18
    Teacher18 Member Posts: 11
    edited August 2017

    I am so sorry to confuse everyone. I just got the bad news yesterday and I was not clear-minded at all! My daughter DID have a biopsy. She had gone to the 21st Century Oncology Comprehensive Breast Center. That's where we go for our yearly mammograms. It's a small place, just the breast surgeon and one other doctor who does special tests, and the assistants to do the mammograms. We went for our yearly mammograms, and she also had a ultrasound because she has dense breasts. They called her afterward and told her they had seen an architectural distortion and she needed to come in for a biopsy, which she had done last Wednesday. They called her at work yesterday, and told her the biopsy found cancer. She is a kindergarten teacher, and the call was in the middle of the day with all the kids around. The only thing she knows at this point is that she will need surgery, and the recovery period would be from one week to two. She needs to go for an MRI tomorrow morning (Thursday) and to the office to see the breast surgeon on Friday morning. It may seem strange that I am writing instead of her, but she is just not the type to open up like this. We are very close, and I am making sure I keep calm and positive around her. It's a good thing I can act, because I really want to scream. I took care of my mother for ten years in my home, then my other daughter has OCD and she was bad for 5 years till we found a wonderful psychiatrist that gave her the right medication and she was fully functional and met someone and is now happily married. My husband, who was with me fully helping for those 15 years got Parkinsons and only was able to get around the house. A few months later, he fell in the bathroom and got a brain bleed (like Natasha Richardson skiing). But he didn't die. After 4 months in the hospital, I brought him home and took care of him for 5 1/2 years. He was in a hospital bed in my living room with a feeding tube, oxygen, and a trach. He couldn't turn, diapers, mind going, and the whole thing. I stayed in my house for 5 1/2 years, could not leave him to get the mail or go in the backyard. He would choke, and I would have to suction him. It was a very slow gradual deterioration. The last year I wouldn't even sleep on the couch, I stayed up all night, and slept a couple of hours when one daughter came from work, and then in the evening when THE daughter came. She never missed one night in those 5 1/2 years. She made me dinner, and took care of her father, and stayed till 11:00 or midnight before she went home, even though she had to get up before 6:00 am. It is not a year yet from my husband, the love of my life, and then I found out my dog has aggressive advanced cancer. It's been two months and I've been taking care of him. He gets 7 pills a day and I have to cook for him. I again can't leave the house because he has bleeding attacks from his nose, and between shaking his head and sneezing, it gets over everything unless I am home to give him epinephrine, confine him, and keep him calm till it stops. Now I get this news about my daughter which is the worst thing that has ever happened to me. And I live alone, and haven't adjusted to that yet. My dear women, I am so sorry. I have put my history out here for you when you all have your own heartaches. My grandmother used to say that if everyone threw their troubles into a pile, one would choose back their own. Please forgive me. I am the opposite of my daughter, and seem to need to tell everyone my story. But now, unless she ends up being okay, I regret that I am still alive. It's just a lot happening at one time. And I just found our yesterday. Again, I ask all of you for your forgiveness for my loose tongue, but I have no one else to talk to. I promise I will keep further posts strictly on topic. I am just very vulnerable right now. I know that things could always be much worse. Thank you all for answering and needing further clarification. And please, please forgive me.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited August 2017

    Teacher, it does sound like you are overwhelmed! So, to start, just knowing that your dear daughter was "diagnosed", without knowing what type of bc (as Kicks indicated, there are many types) and what grade (how aggressive it is) other particulars (hormone receptor status, etc) and if it is in her lymph nodes or other distant sites, makes it hard for us to really give you any specific information. If you get more details, there will be women here who've been through similar and who can speak to the current treatment options so you have a better understanding of what may come for your DD. The other thing that may be helpful is the forum for family members/friends and caregivers. There will certainly be other Moms there who are worried about their DDs and they may have some comforting words for you. https://community.breastcancer.org/forum/16

    So sorry for your DD!

  • Teddy88
    Teddy88 Member Posts: 102
    edited August 2017

    Hi Teacher 18 -

    I think you just used the board in a good way - you told your story and shared your worries.

    Take the next few days / weeks in steps - don't panic. The doctor will do the MRI to see if there may be any other spot of interest to get a whole picture of your daughter's health. A standard check. You will learn much more on Friday. Will you be going to the appt? You can collect all the information you have and come back here and gain more insights.

    One breath, and one step at a time. You have already proven that you are strong, and you will continue to be that way with your beloved daughter at your side.

    I hope you will keep us posted.

    Love,

    Belle xx

  • Icietla
    Icietla Member Posts: 1,265
    edited August 2017

    Welcome, Teacher18. We all understand about what an anxious time this is for you. All the waiting times for procedures and results will feel like very long times. I can fairly assure you that your present feeling that time is dragging is a nearly-universal part of (at least the early days of) breast cancer experience. As you get more information and your daughter gets a treatment plan, you will both feel better -- feel that things are more under control, feel that the rest of what must be done about it is proceeding, moving right along.

    I know you are traumatized from having lost close dear family members, and that you anticipate loss of your doggie to cancer. Please do not envision or assume those outcomes for your daughter's case. All around you -- all around all of us, and in our daily lives -- are persons who have or have had breast cancer. They are living their lives.

    When she goes back to the Breast Health Center, she can get a copy of her Pathology Report in which her breast cancer diagnosis was made. The biopsy report will have information about the tumor and cell characteristics that would be some of the numerous factors having bearing on the treatment/s to be recommended for her case. After her MRI evaluation, there may be provisional/estimated Staging, or not -- but any Stage guesstimate at this time would be subject to change, depending on the Pathology Report from her (next) Surgery and any other relevant findings.

    As for others in her life -- in her Community/Communities --, the decisions of whether to share any information -- about her diagnosis, her condition, her treatment/s, any of that -- should be entirely up to your daughter. There are persons theretofore considered Friends who might avoid/shun her. [There are several possible explanations for "Friends" and acquaintances responding that way, but to a cancer patient wishing for and expecting support, it is a big disappointment, apparent abandonment, very hurtful.] There are persons who might blame her for having breast cancer. There are persons who might diminish (or make light of) her feelings, fears, concerns. There are persons who might ridicule or condemn her for having conventional Medical Care. There are persons who might ridicule or condemn her for her surgical treatment, whether or not she has options among the Surgery types. There are persons whose morbid or otherwise hurtful assumptions and gossip might reach her children or might reach her through its hurting her children. Etc. It is all very personal, and she should not be put on the defensive for anything about it.

    Wishes for Peace, Comfort, and Strength for you and your family..

  • beach2beach
    beach2beach Member Posts: 996
    edited August 2017

    Teacher,

    Sorry for all that you have gone through. You are a strong woman and you are being that for you DD right now. Everyone here has given wonderful advice. Until you know exactly what she is dealing with, type, grade, size etc.,, it is a waiting game. It is hard and nerve wracking. I am more like your DD in that I kept it primarily to myself. I told my sis. Did not tell my kids until I had as much info as I could get from my biopsy, the prognostic factors etc., then told my kids I was having surgery. Did not tell my parents until 2 days before, and my friends until day of. Call me strange but I did not want anyone giving me the "oh you poor thing". I think it is great you opened up here for yourself and to better help you understand and maybe even your daughter. Everyone processes differently.

    Would be helpful if she does have someone with her when she meets with the surgeon, someone who can take notes and even ask questions. I know it helped me. You are present but you don't always really hear because you are still in shock.

    Please let us know how it goes. Once you know more there will be even more members to talk with.

  • Teacher18
    Teacher18 Member Posts: 11
    edited August 2017

    MTwoman, thank you so much for answering and understanding and for your good advice. I will definitely check out the other forum. Thank you for the link. I do have more information which I will post separately below.

    Hi Belle, I appreciatIe the kind words so much, but I'm afraid my strength is used up. I will be going with my daughter to the breast surgeon on Friday. I am fighting to act normal, but do not feel normal. Can't eat. Found out more info which I will post separately.

    To Icietla, You have given me lots of good advice, and I appreciate it. We did go to pick up the CD for the MRI and made sure we got a copy of the biopsy as you said. I act all right around my daughter, but inside I am not positive at all, just horrified. Thank you for the heads up about reactions from other people. it was very helpful. Pray for her.


  • Teacher18
    Teacher18 Member Posts: 11
    edited August 2017

    Dear Beach2Beach,

    Yes, you remind me a lot of my daughter. She told her husband and she told me, but we are very close and I depend on her in certain ways, and she depends on me. Her kids she won't tell until a few days before she is scheduled for surgery. She is a kindergarten teacher and this is the first week of school here, so since she will be off, she had to tell her team (other kindergarten teachers) because there is interaction between them.But even though a school is like a small town, she also didn't want anyone else to know. I don't think you are strange at all, I understand perfectly. I will definitely be going with her. Her husband unfortunately will not be able to go just on that day. But I already have some information I will post separately. Thanks for caring and for your story.

  • Teacher18
    Teacher18 Member Posts: 11
    edited August 2017

    To everyone,

    Today we went pick up the CD to bring to the MRI place, and asked for a copy of the biopsy report. From what I've read about, I don't think it is great news. I will copy it here:

    Invasive mammary carcinoma with mixed ductal and lobular features. Longest tumor fragment: 0.8 cm (Remember, she does not have a mass. This is architectural distortion, a disruption in the pattern of the threads (?) in the breast.) Nottingham Score: 3+2+2=7(Grade II). Focal adjacent ductal carcinoma in situ. Comment: Breast cancer profile studies have been ordered, and results will follow in an addendum report when available. Gross Description: Received are multiple irregularly-shaped fragments of tissue measuring up to 2.5 cm in maximum dimension. The larger portions are transversely sectioned and the entire specimen; is submitted in five blocks.

    So, I've been told that some members are extremely knowledgeable. If anyone can give me a little more info, it would be really appreciated. I realize that we should get a lot of info from the breast surgeon on Friday, but that is still two days off, and right now, it seems so very far away. I also believe that until she has any surgery, they still won't have complete information. But I read enough to get petrified at the first word of the report -- Invasive. That's it for now. Having really bad trouble trying to eat. My daughter and I are both can use it, but what a hell of a way to lose weight. Please everyone, say a prayer for her. I believe so much in the power of the mind when praying. Her name is Randi. I just can't believe this is real.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited August 2017

    Teacher18 - I am so sorry you and your daughter are going through this recent diagnosis. It is a shock to all...

    You have been through a lot in life and it is so hard to go through this now. But you can do it!

    My mom was 78 when I was diagnosed also at age 55. It killed her, but she was there for me all the way. Then little

    did she know, she would be diagnosed herself 2 years later!! On top of that, one year after that,

    my sister, mom's only other child, was also diagnosed.

    But mom made it - she is now 84 and doing great!! We are all alive after my sister and I had Stage 3 diagnoses

    and mom's was Stage 1. We've been through so much, but we are stronger as a family!!

    You and your daughter have been through so much! IT IS SO HARD, but you will both get through it.


  • Teacher18
    Teacher18 Member Posts: 11
    edited August 2017

    Denise, I can't thank you enough. I am 79, so it is so close to your situation. I can't tell you how I feel. We are seeing the breast surgeon tomorrow morning. I've been check the history of everyone here, and they all seem to be stage 0, or stage 1. And I'm thinking that means the others are all dead already. I am losing my mind. You have given me a little bit of hope. But right now I can't stand it. I don't know what to do. A slept all day till 5:00 because I couldn't face being awake and knowing this is really happening. I can't eat since she got the results. I'm falling apart. I pretend and I can act good, so I do when she's around. But right now I'm alone, and I don't know if I can take this. Please, can I write to you on your website? Will you write to me again? Please, please.

  • beach2beach
    beach2beach Member Posts: 996
    edited August 2017

    Teacher,

    Oh no please don't think that! There are other forums on here for Stage 1, 2, 3 and 4. Forums for certain types of cancers and within them you will see women/men with different stages and grades. My Sister is a 9 year survivor of Stage IIIB Inflammatory Breast Cancer.

  • Kicks
    Kicks Member Posts: 4,131
    edited August 2017

    You may have 'checked' a few who post at this site but absolutely not all! Also - Not everyone posts on every Thread that is started. There are Forums for Stage I, Stage II, Stage III and Stage IV all of which are very active. Just scroll down the list of Forums and you will find them.

    There are many who come to this site who have a lot more years since DX than I have and I'm 8 yrs since DX with IBC Stage IIIc and still NED (No Evidence e of Disease - the best we can get). I posted on this Thread earlier so you saw my stats as they show at the bottom of each post.

    I do realize that seeing ones Daughter dealing with something like a BC is traumatic. A very dear WAC friend of mine had to bury her Daughter with bizarre BC and then 4 yrs later she lost her 25+ yr battle with BC She had been an Army Nurse in 'Nam and exposed to Agent Orange which caused the nasty mutations.

    Perhaps you might want to seek counseling with a Dr, Therapist or your Clergy if you have one.

  • Teacher18
    Teacher18 Member Posts: 11
    edited August 2017

    Beach2Beach

    Your postings have been so kind and helpful to me. I just lost it yesterday. I think it was the 5 1/2 years with my husband in my living room, and me being strong, never breaking down, not even when he died nor since them. everything (including my dying dog with advanced aggressive cancer) and then the absolute horror of my daughter's survival just got to me. I could not accept what was happening and the encouragement and kindness of you and others actually precipitated the only breakdown I've had in 20 years. I was home alone, and I started crying hysterically, and then I heard myself screaming. That has never happened to me before. I couldn't control it, just one scream after another. It finally stopped after maybe ten minutes, and some more crying. As strange and horrible and painful as it was, I think it was worth it. Later that night, I was finally able to eat, and accept the fact that my daughter had cancer, and that it wasn't a absolute outcome that she would die. Before, I could not. You are going through your own hell now, and yet you've used your time to try and help me. What you told me about your sister made such a difference. Yes, I'm still afraid of what the surgery might show. I'm still worried about her bone scan and Pet scan, but at least I can face it now knowing that it is real. I couldn't face it, I couldn't think about it, they must have made a mistake!! It's impossible for that to be true. Now I'm sick at heart, I'm terribly concerned, but I feel I'm reacting normally, not like a totally bonkers crazy lady. I wish there was something I could do for you. I'm good on the computer, writing name-poems, baking. Let me know. I'll keep you posted on my daughter's tests.

  • Teacher18
    Teacher18 Member Posts: 11
    edited August 2017

    To Kicks,

    First I want to thank you so much for your kindness and concern. I hope it's okay if I refer you to the posting above I sent to Beach2Beach so I just don't get repetitive about what happened yesterday. Your posting telling me about the different forums (as Beach2Beach also said) really made the difference. I always thought I was pretty smart, but I was so terror-filled that I actually forgot about the other forums. I was lost in a nightmare of my making. And the relief of realizing your accurate statement triggered the release of me finally being able to sob and scream out the pain. And it actually helped me to finally think straight. I did check your stats now. I feel ashamed for carrying on like I did, but my state of mind was not normal. I read about a 27 year old and a 28 year old and my heart hurts for them. I read about your WAC friend's daughter and I don't know which generation hurts me more. I honestly don't know how any parent can go through the death of a child. Your advice was sound. I am so happy that you are doing so well. Thank you again for caring so much about strangers and for help. You're a special lady.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited August 2017

    Hi Teacher- I just wanted to chime in because your post made me so sad for my own mom and everythi g she must have felt when I was diagnosed at 34. Here's the deal. You are one tough mama, and I bet your daughter inherited that. And lucky her! At this point, tough is half the battle. It seems like a death sentence, but clearly it isnt, or there would be one on these boards! You need to care for yourself, because soon your daughter will need you. You know that from losing your dear husband. I'd like to echo the suggestion you find a doctor friend therapist clergymember or maybe some Ativan for yourself- you must rest as well. For now, sending lots of love to you and your daughter...from a 3 year TN survivor.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited August 2017

    Good for you. You know, sometimes screaming is cathartic. There's something visceral about throwing yourself down, rolling around, kicking your feet, hugging yourself and screaming until you get it all out. And then you're ready to get up and get on with things.

  • Susug
    Susug Member Posts: 193
    edited August 2017

    Teacher- My heart aches for you. You daughter is so blessed to have you. My mother and twin sister are deceased.so it was tough without them. Please continue to post and let us know how she is doing. It doesn't matter what forum you post on. Hugs Susu

  • edwards750
    edwards750 Member Posts: 3,761
    edited August 2017

    Teacher - you are such a survivor. Please don't ever apologize to us or anyone else for sharing. You are on an emotional roller coaster. What a loving wife and mother you are. It can't have been easy being a caregiver to your husband. Of course you loved him that is obvious but I know caring for him consumed you emotionally and physically. My FIL cared for my MIL when she was DX with Alzheimer's. It took its toll. It was heartbreaking. She passed away 2 years ago.
    Your poor doggie. Bless you for loving him too. So sorry he is ill.
    As the others have said wait and see with your daughter's DX. I'm 6 years out this month. Lots of success stories out there.
    Most of all take care of yourself. We are all here to help you any way we can. You are never really alone.
    Keep the faith and keep us posted.

    Diane

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited August 2017

    Go to a junk store and get some chipped mismatched dishes. Then go out to someplace where there’s an abandoned wall or boulder to safely throw them against, screaming as you throw each one. (Or if you have a gun license and access to a shooting range, use them as skeet). Every dish you smash (or if you’re of a more peaceful persuasion, stone you throw into the water) is one of your daughter's tumor cells. Focus your rage on them. And it’s okay to cuss.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited August 2017

    LOL, definitely okay to cuss. I highly recommend it.

  • beach2beach
    beach2beach Member Posts: 996
    edited September 2017

    Have not heard anything from Teacher18. If you are still around on here, let us know how it is going with your daughter and how you are holding up.

  • Kicks
    Kicks Member Posts: 4,131
    edited September 2017

    Teacher18 has not been back to BCO since Aug 26.

  • Concerned2018
    Concerned2018 Member Posts: 65
    edited December 2017

    I just posted a question regarding architectural distortion because I bought Dr. Susan Love's Breast Book and so far haven't found any information in the book about this diagnosis. Is this a new distinction due to the high tech 3-D machines that are picking things up earlier? And if so, is this indicative that someone with architectural distortion but no other clear masses or lumps may be finding it in in an extremely early time

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