ROM exercises causing more tightness?

Pepper01
Pepper01 Member Posts: 19
edited August 2017 in Pain

I feel like the more I stretch the tighter things are getting in my underarms. Is this normal? I just had bilateral mastectomy with TE placed on 8/11/17 and am getting worried and frustrated. I'm not going to be able to afford and can't get to PT and I want my ROM back. Am I being too impatient and worrying too much?

Comments

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited August 2017

    You should check with your surgeon about what exercises are safe to do. I was told to not raise my arms above shoulder level for two weeks.

    The exercises that PT gave me were pretty simple. Their mantra was to work slowly and only to the point of feeling some "pulling" and then hold it there for a bit longer each time.

  • Falconer
    Falconer Member Posts: 1,192
    edited August 2017
    Hi Pepper,
    it is quite early from your BMX to be fully restored to what you were before. Besides, my experience was that the tissue expander limited my ROM, as it was behind my pectoral muscle. Now that it's out and I am recovering from DIEP, my ROM is slowly improving. Women here report months or even years before they return to Normal. Don't fret. Give it lots of time.
  • Pepper01
    Pepper01 Member Posts: 19
    edited August 2017

    thank you! I also feel like the tissue expanders are limiting me as well. So its good to hear another person say that too. I guess time will tell!

  • beach2beach
    beach2beach Member Posts: 996
    edited August 2017

    Hi Pepper,

    I had a BMX with direct implants on 8/7. I still have tightness in my armpits even though I can raise my arms overhead. Between nerves regeneration, swelling and nodes(if you had any taken out) I'd say is pretty normal. My PS told me to stand near a wall and put your hand on it and run your fingers up the wall. Told me to do it till I felt stretch. Hope you can picture it.

  • Pepper01
    Pepper01 Member Posts: 19
    edited August 2017

    thank you! I am trying to be patient. I guess I'm trying to figure out how much progress I should be making...

  • beach2beach
    beach2beach Member Posts: 996
    edited August 2017

    Just want to feel "normal" again, I get it. You'll start to get hit with the moments when you realize, "Wow, I just did this and it didn't hurt" along with the ones at times, "oh I shouldn't have done that" lol . But more of the "Wows" will happen. I'm not ready to swing a bat, or do the breaststroke, and something you would think is so simple like pushing a sponge mop would be easy, I found out the other day when I did that, it felt weird, I guess because of the implant and flexing that pec muscle. Nope, that floor couldn't wait,,some things never change, like if I don't do it, no one else will! :)

  • exercise_guru
    exercise_guru Member Posts: 716
    edited August 2017

    Sorry I don't have a lot of advice but they put me in water therapy rather than ROM therapy and over 6 weeks it was life changing. I felt significant improvement. I plan on continuing for the next year. Maybe I will become a good swimmer after all.

    The first exercises were moving my arms in the water and walking. Basically all the exercises you are doing on land but under shoulder height water.

  • Pepper01
    Pepper01 Member Posts: 19
    edited August 2017

    Thank you for replying- anything is helpful.

  • exercise_guru
    exercise_guru Member Posts: 716
    edited August 2017

    your welcome

    I can share my story maybe you might find some of it helpful. I had a DBL mastectomy with TE then implants. They placed the biggest implant they could because I had a wide chest. It was tight and I had very little guidance on what to do about it. I did the wall clock exercise etc. Well once things healed it was still crazy tight and I had plans to go to PE. Then with the oophrectomy and arimidex both of my arms went numb and I had neuropathy in both my foot and my forearms and hands.

    So in hindsight I should have just went and gotten in the water but I had very little advice. They sent me to hand therapy with exercises that even with diligence just make the tingling worse. So at that point I went to a neurologist and they performed Carpal Tunnel and D'quervaines surgery.

    That removed most of the numbness but my chest and arms were very tight and my foot was numb at times and my knee was creaky from the arimidex.

    They sent me to the cancer center PT and they tried to give me bands and all kinds of ROM exercises. When I did them it just made things tighter and caused the numbness to come back.

    So they sent me to water therapy. They were the easiest silliest exercises but after diligently going to the pool and performing the exercises I had significant improvement.

    I warm up by walking in the water many different ways forward backwards sideways. Then I go and move my arms through the water. Especially when it is shoulder height.

    I take a break if I have numbness but it quickly goes away after one day.

    Over time I now have most of my ROM back and no pain/tightness in my arms, chest or knees and feet. I wish they would have sent me there at the beginnning. I now added exercises laying on my back floating so I can work to extend my arms in a full range of motion through the water. This allows me to extend my back muscles and trapezius to strengthen them.

    I plan on trying a swim coach to help me find ways to do swim strokes that will not hurt me but further improve my range of motion. For now I just turn farther to breath and my back stroke exits early and wider but it keeps improving.

    I truly believe water therapy is the best as it supports the joints and ensures gently improvement but it takes a pool and time. Though it annoying and slow going I made incremental gains over time and I am so happy I found this modality.

  • Pepper01
    Pepper01 Member Posts: 19
    edited August 2017

    thank you for sharing your story! It gives me some hope that this won't be permanent. I think I am being extra sensitive because I was so flexible before so it feels like I can't do anything now. I keep on doing exercises and I think I just need to be a little more patient because things have gotten a little better...

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