Unilateral vs bilateral, how'd you decide

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Jnnmn7
Jnnmn7 Member Posts: 66

I had my MRI today to see what my response to chemo was but looking like mastectomy. So now I'm facing the decision of doing both, with expanders to implants. Just curious how you decided either way.

I have a 10-15% chance in the healthy breast which is reduced to 8ish?% after tamoxifen. Wasn't wanting to have surgery on the healthy breast but had the thought today that I've done chemo, will be doing rads, maybe I should go all the way with surgery too...

Also, I have PASH in my right breast with another questionable spot that is next to tumor so a surgical clip was placed. AndI have very dense tissue.

I know this is a very personal topic but still would love feedback.

Comments

  • Freya244117
    Freya244117 Member Posts: 603
    edited August 2017

    This post written by Beesie, you may need to scroll down a bit, is very comprehensive and explains pros and cons of your options very well. Perhaps read that and then ask any more questions.

    Good luck :)

  • beach2beach
    beach2beach Member Posts: 996
    edited August 2017

    Hi,

    I had a BMX on 8/7. I was dx with breast cancer on the 7/28. My sister had BC @48. I always thought since then that if it happened to me I would do a mastectomy, but you never know until you face it. Im 51, When my dr told me, she said I could do a lumpectomy with rads. I told her flat out, I wanted a bilateral. I have dense breasts and have numerous biopsies which until now were always benign. I also knew I would be riddled with more anxiety having to be monitored every 6mths alternating between MRI and Mammo/Sono. My left had always been the troublesome one with biopsies, yet the right popped up with cancer out of the blue. I had enough anxiety once a year. Funny thing is after my sister was dx I was told I was higher risk so i was approved for MRI's which i did and alternated every 6mths. After 3 years my ins said I was no longer high risk, go figure. 2yrs later I was dx. Perhaps had they let me continue I could have been dx"d earlier. Anyway, it is a very personal decision. It may sound strange but I had no attachment to my boobs. I went into survival mode and felt I was doing the most I could do to make me feel better mentally.. Due to lack of fat to use and tight skin I could not do expanders or Diep. My ps used the smallest implant he had(similar to my former size anyway) and had it done at time of surgery.

    I have no regrets, it is what worked for me mentally. You will figure out what works for you.

  • Lula73
    Lula73 Member Posts: 1,824
    edited August 2017

    I went with bilateral mx and immediate DIEP recon. I had rads for Hodgkin's lymphoma as a child so my risk for BC was high, already had microcalcifications in a clustered comet shape in the left breast when I was diagnosed with IDC in the right. If nothing else it gave me peace of mind. And DIEP recon gave me breasts as close to my originals as possible.

    I'd say it's about 50/50 for those of us that choose to take both breasts vs just the one. Symmetry, if you're going to have to have surgery in the other breast for symmetry why not just go with BMX, desire to have a matching set, testing positive for any of the genetic mutations for breast cancer, desire to avoid having mammos and the accompanying stress every 6 months with hypervigilance from now on, having other things going on in the other breast (dense tissue, lumps, calcifications, microcalcifications), and greater peace of mind are the most commonly cited reasons for BMX when cancer was diagnosed in only one breast.

    Hope this helps

  • debiann
    debiann Member Posts: 1,200
    edited August 2017

    Have your consulted with a PS yet? Understanding your cosmetic outcome may help you decide. When I met with the PS he said if I did a uni, he would do a breast lift to the other side so they would match. I thought if I'm having surgery on the natural breast anyway, I might as well do the double because a breast lift would leave me with scar tissue and I'd lose sensation to the nipple anyway. Of course I could have turned down the breast lift, but that would have looked really funny. My BS recommended the double to achieve symmetry. I had immediate DIEP recon. I'm pleased with the results.

    As a bonus, with a bmx i no longer need mammograms. I just had a breast mri, three years out from dx and I guess that will continue every three years, but better than mammograms every six months.

  • dtad
    dtad Member Posts: 2,323
    edited August 2017

    Hi everyone. I agree you should consult with a PS before deciding. To answer the original question I'll give you my reasons that I decided to have BMX. The most important reason was that I had both IDC and ILC in the left breast. My other breast had some abnormal cells in it. However the ILC did not show up on the 3D mammo or u/s, only on a preoperative MRI. So if I didn't have the IDC I never would have known I had the ILC. So difficulty in screening was a huge consideration. The other thing that convinced me is that I wanted symmetry. Also I knew I was going to refuse anti hormone therapy so I wanted to most aggressive surgery. I had direct to implant reconstruction and I have never been sorry I made these decisions. Good luck to all navigating this complicated disease.

  • melmcbee
    melmcbee Member Posts: 1,119
    edited August 2017

    I was 42 and had ilc. I was told the chance for it to show up in other breast was high. So I did the bilat mastectomy. Gentle hugs to you.

  • debiann
    debiann Member Posts: 1,200
    edited August 2017

    BosumBlues,

    When I was in the decision making process, my bs told me that if I start with a uni, but later want the other breast removed insurance will cover it. It is difficult to decide between taking 1 or 2. Some issues that I have seen uni's report include back trouble down the road from being lopsided, difficulty finding a prosthetic in a size that matches their natural breast (large breasted women), tiring of the frequent screening of the remaining breast or beginning to have areas of concern and decide they just want it off. It is good to know that if you start as a uni and are unhappy with your decision in the future you can always remove the other breast.

  • Bliss58
    Bliss58 Member Posts: 1,154
    edited August 2017

    I am a uni who never had reconstruction. My (kept, right) breast is fairly large, but I didn't have a problem finding a prosthetic to match my size and I have the appearance of symmetry in clothing. It's very important to find a good fitter. My BS advised a BMX if I planned to do reconstruction. I was pretty certain the PS would advise that as well, but I didn't want additional surgery, recovery, and months more in the process plus potential problems, so I never did consult with the PS. I just wanted surgery over and done. Maybe it was because I was 56 at dx and I would have felt differently if I had been 40, but now I'm over two years from dx and still happy with my decision. The BS prescribed a mammo every 6 mos. for the first year, but after two all clears, I'm now on a yearly schedule. At the time of dx a growth in my kept breast was biopsied, but found to be benign. So far, I haven't considered mammos a drawback. The BS said I may experience back problems, and of course it's only been two years, but so far I haven't had any trouble. I wear the prosthetic, which is weighted, most of the time, so I really don't anticipate an issue. IMO, it all depends on your unique situation and your gut feeling about what's right for you.

  • Beachmama
    Beachmama Member Posts: 42
    edited August 2017

    After two lumpectomies on my left breast still did not produce clean margins, we started talking about mx. I was pretty sure I wanted a bmx for symmetry. After additional testing and biopsies showed cancer hiding in the right side, too, I felt relieved to no longer have a decision to make. After 4 biopsies, I knew I did not want any more of those ever again! Hoping you are able to be at peace with your decision as well.

  • Lanne2389
    Lanne2389 Member Posts: 229
    edited August 2017

    hi - I chose BMX because 1) didn't ever want to go through chemo again, 2) was told/ read that matching breasts during recon was better, 3) although my genetics testing indicated no increased familial risk, my mom and both of her sisters had BC and all 3 of them had at least one recurrence and I decided not to take any chances. My surgeon, PS and radiologist all advocated for a lumpectomy - and I initially agreed but was uncomfortable with that decision and changed to BMX two days before surgery. I don't regret it.

  • EvaGor
    EvaGor Member Posts: 41
    edited August 2017

    I chose an uni since my breasts play an important part in my sex life and I was worried about the lack of sensation with a BMX. I had a discussion with my oncologist and she did not feel that a bilateral mastectomy would make a huge difference in terms of recurrence/survival. Symmetry is not that important to me as long as my boob and foob are not drastically different. It probably helps that my breasts were never large to begin with. My left breast was removed in July with a TE placed, and I had a right breast lift at the same time. I currently have full sensation in my right nipple.

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited August 2017

    I chose BMX mainly because there were areas that they wanted to continue to watch in the "good" breast and symmetry was important to me as well. I also felt like having similar sensation on both sides would be easier to adjust to.


  • Leapfrog
    Leapfrog Member Posts: 464
    edited August 2017

    Hi NotVeryBrave, I had BMX because my BS told me it was necessary due to primary tumours in both breasts. On the left the tumour was only 2cm but on the right it was 10cm before it was discovered. But as soon as I saw my biopsy results and before I saw the BS, I knew that I would have BMX. My operation was on 2nd November, 2016. Not having to make the decision myself made it easier but I grieved the loss of my breasts for a long time. I chose not to have reconstruction because I was very ill and didn't want the operation to be any longer and I don't want to go back for more. I doubt whether I would have been a candidate for reconstruction anyway as I don't have any flesh to spare! I've now become used to it and, being slight of build, it's not terribly noticeable and I can dress to disguise it or, if I want to, wear my prosthesis bra. I'm ER+/PR+HER2- so chemo is not the treatment for me, hormonal treatment for life is my treatment but, if I'd had a choice of BMX and no chemo or conservation of my breasts with chemo, I would have chosen BMX.

  • IntegraGirl
    IntegraGirl Member Posts: 147
    edited August 2017

    I was on the fence about this decision until today when the US on my "healthy" breast showed that it most likely wants to kill me too. My surgeon told me Friday that he only wanted to do the one breast because there was only a 2% risk of the other breast getting cancer. I said I wanted up to date information on the healthy breast before I made the decision so went for US today. I am very glad I asked. While I haven't had a biopsy, given what's happening on the other breast, it's a very good chance that it's the same thing.

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