If you are not Stage IV but have questions, you may post here

Options
1…133134136138139…171

Comments

  • Daczahow
    Daczahow Member Posts: 45
    edited August 2017

    I felt the knot above my right clavicle. It was hard but was not painful. I called my MO went for a pet scan and it lit up like crazy. After that they did a biopsy to check the pathology The only difference in the path was the her2 status changed from my original diagnosis of positive to being her2 negative.

    · Share on FacebookShare on Twitter
  • Artista928
    Artista928 Member Posts: 2,753
    edited August 2017

    Oh man. I just felt around my right clavicle and a couple inches down from it is a hard oval/round ish bump that doesn't move. It's maybe 1/2". Just a rough guess. It's not on the clavicle. I had bmx and have implants (cancer was left side). This is above the implant. Should I worry?

    I'm scheduled for a long awaited revision to my right implant area for symmetry on Sept 1, Labor Day weekend. This is on the right side. I assume I should be seen, but any harm in waiting until I'm done with my sx? I know it sounds off to some but my implants are uneven and it shows. If this is something then I'd like to be done with the ps part as I"m so close to it finally. Thanks

    · Share on FacebookShare on Twitter
  • dlb823
    dlb823 Member Posts: 9,430
    edited August 2017

    Artista, I would report it to your onc and PS now. That way, if they thinkit should be removed and biopsied, it can be done at the same time as your revision surgery. Deanna

    · Share on FacebookShare on Twitter
  • Artista928
    Artista928 Member Posts: 2,753
    edited August 2017

    PS can remove it, doesn't have to be BS? I'm afraid BS will say no to sx if it is something.

    · Share on FacebookShare on Twitter
  • Daczahow
    Daczahow Member Posts: 45
    edited August 2017

    Artista, Joycek,

    I would definitely mention it to your MO. But to be honest it's probably more likely to be caused by lymphedema. At least that is what my MO told m

    · Share on FacebookShare on Twitter
  • Artista928
    Artista928 Member Posts: 2,753
    edited August 2017

    Can you get lymphedema on your non-cancer side? No nodes were taken out on that side.

    · Share on FacebookShare on Twitter
  • Artista928
    Artista928 Member Posts: 2,753
    edited August 2017

    OMG do I feel stupid. I forget sometimes I still have a port, and what I was feeling was my port! I looked in the mirror after being afraid to and yep, that's where it is.

    · Share on FacebookShare on Twitter
  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited August 2017

    Artista... yes, I had mild lymphedema in my non cancerous arm. It was painful, but after several sessions with the PT, it has diminished significantly.

    · Share on FacebookShare on Twitter
  • Daczahow
    Daczahow Member Posts: 45
    edited August 2017

    Artista,

    I'm not 100% sure but if it's not lymphedema it's very possible that it could be from an infection of some sort. Mine increased in size pretty rapidly so just keep an eye on it. When I was originally diagnosed with BC I had an internal mammary node show up on my first pet S

    · Share on FacebookShare on Twitter
  • Artista928
    Artista928 Member Posts: 2,753
    edited August 2017

    Thanks ladies. I be stupid. I forgot about the port I have and was feeling around. Finally went to the mirror and saw duh!!! it's my port I'm feeling. Sorry, but thanks for the responses. :)

    · Share on FacebookShare on Twitter
  • dlb823
    dlb823 Member Posts: 9,430
    edited August 2017

    Glad you figured it out! To answer your earlier question -- even though it's a moot point for you now -- a PS should be able to remove any suspicious new lesion. Very often they're scar tissue or fat necrosis, and taking them out and sending them out for pathology just to be sure is very common during recon followup surgeries.

    · Share on FacebookShare on Twitter
  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited August 2017

    For the past week I've had extreme dizziness when I am laying down. When I wake up in the morning I almost pass out when I sit up and when I'm laying done when I turn my head I get really dizzy. Now it's even to the point that's when I roll over in the night that I feel dizzy and wake up. I only hadstage 1 . I'm scared.

    · Share on FacebookShare on Twitter
  • Freya244117
    Freya244117 Member Posts: 603
    edited August 2017

    BPPV could be a possibility Mom2fourplusmore. Other thoughts are low blood pressure, any new meds? or middle ear infection. Any new symptoms should be checked with your GP, but so many more benign reasons for it than cancer. Best wishes :)

    · Share on FacebookShare on Twitter
  • siddhivinayak
    siddhivinayak Member Posts: 78
    edited August 2017

    hi to all.My mom is having tired legs and sometimes her legs is too tired that she dont walk.I am very afraid is it a sign of cancer reccurence.I am posting on her behalf.Her legs often remains tired.She dont have constant feelings of tired legs.

    · Share on FacebookShare on Twitter
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2017

    Mom, please call your onco. Whether it's cancer or not, it sounds like it's making life difficult for you and identifying the cause will help you treat it. Then you can lie down at night again

    · Share on FacebookShare on Twitter
  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited August 2017

    it's getting worse. By the day. I have an appointment with my GP this afternoon. Didn't want to assume it was something my MO needed to handle. Let's hope they can figure it out. Now I can't even move my eyes without almost passing out. This is really weird. I took 2 Aleve and it did slightly help. MRI is what I need, right

    · Share on FacebookShare on Twitter
  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited August 2017

    My GP just gave meclazine for virtago. She didn't order any test and just said this was the first thing to try. She did say that the Effexor could be doing this.

    · Share on FacebookShare on Twitter
  • Artista928
    Artista928 Member Posts: 2,753
    edited August 2017

    I agree on the Effexor. THE worst one of them all even if you slowly wean off it as instructed. I'd rather have hot flushes than go on that again.

    · Share on FacebookShare on Twitter
  • bevin
    bevin Member Posts: 1,902
    edited August 2017

    on Effexor - it may be individual, I didn't have any withdrawl symptoms from Effexor and quit without tapering off.  didn't bother me at all.  Hope the same for you.

    · Share on FacebookShare on Twitter
  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited August 2017

    Hi all. I have been reading your posts and last ones about Effexor (Venlafaxine it is called in Canada) I would suggest that it is individual. Awhile after I had been on it I brought up wit my doctor at our cancer agency my concerns with the scary withdrawal stories. She said it is actually not as common times comes, we do it with care. Just suggesting that sometimes inadvertently we scare those (like me at one time) who may need whatever the drug is.

    I did not mean to post on Effexor LOL!

    Short story is I am awaiting results from core biopsy yesterday and hope to have them Monday or Tuesday. Lymphedema late April and I had been on a flight though had my sleeve on and never before even on longer flights. I think it was kind of a red herring but luckily I had my usual 6 monthly appts. lined up when I returned from my swan song trek I led in Nepal in May. Physio, RMT, MO, PS and told them all about my LE and also that by then I had some tingling and burning in BC hand. PS agreed that the redo of recon in Dec./16 had not worked so set up surgery ASAP and implants removed June 26. MO was concerned and tests ordered. Since then pain from scapula through axilla and down arm to hands much worse and a month ago hand strength suddenly diminished and right under forearm swollen and numb blah blah. MRI July 31 showed enhancing tissue, Chest CT with contrast Aug. 2 showed lump and core biopsy yesterday showed lump 2.5 cm long and rectangular. Head of of rads at my cancer agency who has been involved for several weeks thinks probable axillary recurrence. My original lump was close to axilla, 6/8 nodes taken during lumpectomy positive and 1 more positive post chemo at mastectomy and axillary dissection. Extensive lymphovascular invasion and am i surprised now? No, but weekend waiting game. Not liking prognosis I am reading about either but it is what it is. Thanks for the venting time.!

    Marian

    · Share on FacebookShare on Twitter
  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited August 2017

    I tried 2 different dosages of Effexor and they both made me dizzy and nauseous. Could not tolerate it. I hope this is a simple solution for you. Mom2.

    · Share on FacebookShare on Twitter
  • Mom2fourplusmore
    Mom2fourplusmore Member Posts: 183
    edited August 2017

    The Meclazine made me sleep for 2 days but does seem to have helped a little. Looks like it could be the Effexor. The bad part is that I liked not being a crazy woman. Lo

    · Share on FacebookShare on Twitter
  • chrissyb
    chrissyb Member Posts: 16,818
    edited August 2017

    Mom2fourplusmore, good to know you are figuring out the cause.

    Love n hugs. Chrissy

    · Share on FacebookShare on Twitter
  • Daczahow
    Daczahow Member Posts: 45
    edited August 2017

    I have been having some pain under my right rib cage for a few months it seems to of gotten worse I spoke to my MO about it and she sent me for a pet scan. The results came back and something is lighting up in the area of the liver called the (Porta hepatis) right now I am waiting for further tests to be scheduled just wondered if anyone had any experience with this area of the liver? I am really praying it is just an infection

    · Share on FacebookShare on Twitter
  • Houston2016
    Houston2016 Member Posts: 317
    edited September 2017

    Hello everyone, the last week or so I started to feel slight weakness on left lower leg and ankle, and some times on right leg. Some feeling in left or right above my butt, it's not pain like weakness. I'm taking Anastrozole since 12/16 and have experienced joint stiffness on wrist, fingers and toes, but no weakness until now. I also have a history of degenerative disk disease and low vitamin D many years ago. Could this be bone Mets symptoms? Thanks everyone.

    · Share on FacebookShare on Twitter
  • dlb823
    dlb823 Member Posts: 9,430
    edited September 2017

    Hi, Houston. The weakness you're describing does not sound like typical mets symptoms at all. I suspect it might be related to Anastrazole, but definitely report it to your onc and maybe your PCP. The degenerative disk disease, if active, might be the culprit, but an MRI would quickly ascertain if it is. Are you taking Vitamin D3 and something to strengthen your bones, such as Xgeva (Prolia)? Try not to worry about mbc, but definitely get it checked out to prevent a possible fall. Hugs, Deanna

    · Share on FacebookShare on Twitter
  • Houston2016
    Houston2016 Member Posts: 317
    edited September 2017

    Thanks Deanna for your reply. Yes I'm taking vitamin D, 5000; and Calcium. I had blood work just done yesterday and CBC was normal. I read about bone Mets symptom and it said weakness in the legs and arms, but you're right it could be Anastrozole, this drug gives me lots of problems. Thank You.

    · Share on FacebookShare on Twitter
  • couragement
    couragement Member Posts: 114
    edited September 2017

    Thank you so much for having this thread. It is so generous and kind of you all. I wanted to touch base as I am unable to take Tamoxifen or any AI's due to contraindications and my MO is thinking of having me try Faslodex. I am waiting to finish off my year of Herceptin (last one in October) and we might try Faslodex. I am curious to know if any of you are on it without any other meds or if it is always in combination with other meds. I am curious to know what kind of side effects folks may have experienced that they are confident are related to Faslodex.

    Thanks for all your time. Sending much love out!


    · Share on FacebookShare on Twitter
  • dlb823
    dlb823 Member Posts: 9,430
    edited September 2017

    courage, I was on Faslodex for 19 mos. I was also on Ibrance (Palbociclib) at the time, but prior to Ibrance's development and approval for use with Faslodex, Faslodex was (and still is for some) given singularly. But RX'ing it for early stage follow up (if your info is up to date) is a bit unusual, as is the chemo it looks like you had for early stage. Can I ask where you're being treated?

    · Share on FacebookShare on Twitter
  • couragement
    couragement Member Posts: 114
    edited September 2017

    Hi dlb!

    Thank you very much for your quick reply! I am being treated in North County San Diego. Indeed, my meds have been very unusual given my stage. I have many comorbidities and thus the use of Gemzar vs the original TCPH, which I couldn't tolerate. I got through 2 out of 6 infusions and my doctors decided on Gemzar in order to at least get chemo. It worked well. I still have a few micromets but otherwise doing well. I am very grateful to have a MO who will think out of the box with me vs just throwing up her hands :). That's why I am searching for any individuals who had just Faslodex, as I am very curious how it went for them.

    Thanks again for your time and care. I send you my very best!

    · Share on FacebookShare on Twitter

Categories