Childhood trauma, inflammation, cancer?

Options

Comments

  • MTwoman
    MTwoman Member Posts: 2,704
    edited August 2017

    farmerlucy, I worked for several years as the Behavioral Health Consultant at a (federally funded) Community Clinic and was routinely referred to see patients that the providers were having difficulties treating. The most common comorbid condition that I diagnosed was PTSD. When we fully addressed that (along with other mental health diagnoses like mood or other anxiety disorders) then they were more likely to be able to get better response to their physical health treatment. There is a really well written book that discusses the long term effects of stress hormones in the body. The author is one of those really smart people who can actually explain complex phenomenon in an approachable way. The book is Why Zebras Don't Get Ulcers by Robert Supolsky.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2017

    Very interesting MTwoman. One of the good things to come out of my dx was the chance to finally grieve loses from decades before. I make it a point to watch these boards for folks who are crashing/have crashed from PTSD - like symptoms. At least I can help them identify what might be going on.

    Thanks for being an incredible resource on these boards. I've been meaning to look into the mindfulness info. Thank you again. I'm going to check into that book.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited August 2017

    It is a very interesting read, I hope you like it! It provides another layer in understanding the mind body connection, which we in the western world have undervalued IMO. I think women reaching out to other women is so powerful (whether it be bc or ptsd), bravo you!

  • Whirlaway
    Whirlaway Member Posts: 64
    edited August 2017

    Thanks for posting this! Really interesting. I will order both books.

  • Rudekremlincat
    Rudekremlincat Member Posts: 8
    edited August 2017

    hello

    I have PTSD from childhood and adult events. I've had both breasts removed and reconstructed, 2 years apart. One had IDC and DCIS, one had lobular. I also have severe IBSD and complex regional pain syndrome in my left hand following a severe dog bite and infection.

    I'm having a hard time functioning and feel like a burden. My entire life before this I was superwoman. Hubs helps but is tired and I don't blame him. I don't know what to do next. He threatened leaving me today

  • MTwoman
    MTwoman Member Posts: 2,704
    edited August 2017

    Oh my goodness Rudekremlincat! What kind of support do you have? It sounds like a good time to activate your entire system. Family, friends, coworkers, neighbors etc. There is a role for all levels. When I was going through treatment, I complained to my therapist that people kept saying "what can I do for you?" She asked me how I responded and I told her "I tell them, nothing, but thanks. I got it." She then challenged me (in a nice gentle way) to think about things that might be nice for others to do for me. Not that I couldn't do them myself, just what would be nice. She asked me to make a list including small things all the way up to larger ones. Once I did that, she suggested I break out the list anytime someone asked me "the question" and let them pick something that felt good to them (based on their time/abilities and our relationship). You see, not letting people help me was actually robbing them of an opportunity to do something that made both of us feel good and actually make our relationship (whatever it was) closer. It felt awkward at first, but after I could tell it actually felt good to people, it got easier.

    While being superwoman can feel great, it isn't sustainable for most of us. Life happens and besides, being superwoman gets too darn lonely. 2 rounds of bc (diagnosis and treatment), IBS-D and now regional pain syndrome is an overflowing plate of stress! Do you have a therapist and/or support group? What about medication support?

    And it sounds like you're both tired! Have you gotten help with your PTSD? If not, it really can just be debilitating and rob you of your much needed sleep and rest. It can be manageable when things are going well (and superwoman is flying around saving the world), but typically rears it's ugly head when stress increases (or superwoman is grounded by life events).

    So let me ask you, what can we do to help? Sending you warm thoughts and gentle ((hugs))

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited August 2017

    Rudekremlinca - I'm thinking that tough times makes people say things they don't mean. I hope you husband has calmed down. I understand about feeling like a burden. When I was in the pit, I told my husband "You chose poorly" with regard to me being his wife. Only when I could see more clearly I understood how preposterous that was. One thing my counselor said to me was, "If roles were reversed, would you want to be there for your husband." Of course I would. Of course you would. It is so hard to see out of the pit right now. I hope you can find someone to talk to. MTwoman gave you incredible advice. My counselor gave me another tip - she said to come up with a mantra of sorts to say to myself when things get bad. Mine was "keep on keeping on". I still use it.

    Do you have a nurse navigator through your hospital? She probably can refer you to a local support group that might help. I hope that each day gets a little better. Gentle hug.

  • marijen
    marijen Member Posts: 3,731
    edited August 2017

    Here's an excerpt from Zebras don't get ulcers book:


    You sit in your chair not moving a muscle, and simply think a thought, a thought having to do with feeling angry or sad or euphoric or lustful, and suddenly your pancreas secretes some hormone. Your pancreas? How did you manage to do that with your pancreas? You don't even know where your pancreas is. Your liver is making an enzyme that wasn't there before, your spleen is text-messaging something to your thymus gland, blood flow in little capillaries in your ankles has just changed. All from thinking a thought.

    We all understand intellectually that the brain can regulate functions throughout the rest of the body, but it is still surprising to be reminded of how far-reaching those effects can be. The purpose of this chapter is to learn a bit about the lines of communication between the brain and elsewhere, in order to see which sites are activated and which are quieted when you are sitting in your chair and feeling severely stressed. This is a prerequisite for seeing how the stress-response can save your neck during a sprint across the savanna, but make you sick during months of worry.

  • MTwoman
    MTwoman Member Posts: 2,704
    edited August 2017

    Yay, marijen, you're reading Zebras! I found it so helpful in understanding the physiology of stress and anxiety.

  • marijen
    marijen Member Posts: 3,731
    edited October 2017

    MTwoman. I especially like the idea of our cells and organs " text messaging " each other. Puts a different light on things. The soul color I'm thinking of it a bright whitish blue that makes those cancer cells shrivel and go poof! Maybe add some classic thundering music to that! Dun da ta dun. F' them! Microscopic machine guns! BOOM! Explosions in red and orange. Ha ha. Hey let's getthe fat and sugar cells too

  • MTwoman
    MTwoman Member Posts: 2,704
    edited August 2017
  • Rudekremlincat
    Rudekremlincat Member Posts: 8
    edited September 2017

    thank you guys so much for the warmth and support! Wow, I should've posted sooner! You have wonderful suggestions and reminders...stress...hormones...getting well.

    Update, hubs and I are working on working on the relationship. New territory.

    My support system is far and wide, and since the cancer was last found 2 years ago, there are few offers for help from coworkers and such is minimal, family live far away. Geez. I'm complaining.

    I have a job I mostly love and am getting ready to go there. Thank you all

  • MTwoman
    MTwoman Member Posts: 2,704
    edited September 2017

    Not complaining, realizing. So it may be time to ask (which is quite hard for many of us). Maybe reach out to people just for going for coffee, to increase your feeling of connection? Or see if there is a support group near you?

    I am glad that you and your DH are working on working on it. Tough work, but could leave you closer than ever!

    You aren't alone, Rudekremlincat!

  • Rudekremlincat
    Rudekremlincat Member Posts: 8
    edited September 2017

    MT woman, more good ideas! I'm very socially introverted but going for coffee is a good idea. I even have someone in mind to ask.

    Hubs and I have some very reasonable homework and so far that is going well.

    So many ups and downs. I don't remember being like this before cancer

  • MTwoman
    MTwoman Member Posts: 2,704
    edited September 2017

    rudekremlincat, things change for many of us when we get the diagnosis. Some have a sense of vulnerability that sort of lingers in the background and 'flavors' many of our experiences, others have a sense that time is short and they don't want to put up with bulls** that they would have before, some learn everything they can to feel a sense of power again and still others answer with a rallying cry and come out swinging. But whatever the response, it is a "normal" response to an absolutely life-changing event. Be gentle with yourself. You'll figure out your new normal, it just takes some time. so glad you're going to reach out!!

  • Sweet_Pea
    Sweet_Pea Member Posts: 178
    edited May 2018

    So many wise words in this thread, I hope to bring it back to life by writing in it now, many, many months later!

    I have PTSD from childhood trauma and it seems to have been re-activated in me with the breast cáncer diagnosis and surgeries. I've had it relatively easy compared to many on these threads in terms of the cáncer and its treatment, but somehow I've ended up with this unshakeable feeling of vulnerability that, I suspect, stems back to my childhood trauma.

    Eating has been my coping mechanism for much of my life, and I've gained weight steadily during the cáncer journey. Now I'm the heaviest I've ever been before, feeling like a total failure, and I just had my exchange surgery a month ago tomorrow. I feel like I should be feeling GOOD, not so bad and sad and down all the time.

    I'm on meds and am talking to a therapist, but somehow it doesn't seem like enough. I have a lovely little daughter who I don't want to grow up with a depressed mom...what can I do?

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited May 2018

    I’m in a similar boat. Stepping up to the plate again. Fitbit, reading “Younger Next Year”, cutting out bread and sugar when I can, listening to Podcasts called Weight Loss Made Real (so good), 7 to 7 fasting. My JOB has to be taking care on my earthy vessel. Hugs

  • Sweet_Pea
    Sweet_Pea Member Posts: 178
    edited May 2018

    Oh, I'm going to look into that podcast and book! Thanks FarmerLucy.

Categories