Recently Diagnosed, starting Chemo Sept 2017
Hi Everyone, I'm new here and I was recently diagnosed with Invasive Ductal Carcinoma. On July 6th I thought, --hey I have the day off I should go get my mammogram done-- I stopped into the imaging office, told the woman I didn't have an appointment, but needed my routine mammogram. She said "oh, you need an appointment for that, but let me check if they will see you". Thirty minutes later I found out I was one of 252,000 breast cancer cases in 2017.
My oncologist tells me from the pathology of my cancer and that I am hormone positive this is a cancer they know exactly how to treat. Because my oncotype score was high I'm going to need the chemo - 4 months worth and radiation. Last week I had the good news that my nodes were clean and the cancer is contained.
I see all the posts of encouragement & tips and I'm going to peruse through all of it, but I thought that I'd post my own story to introduce myself. My biggest fear through all of this is being able to keep it all together. I'm the glue that holds my family together, I have to elderly parents in poor health, I work for a high-end dental office full time and I am a youth leader at my church. The thought of going through this chemo scares the heck out of me, more for not being able to keep it all together, like i said.
That's my story.. and my concern. I'd love to meet some of you and make some connections.
Comments
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Hi Tina, my name is Michelle and I found out I had IDC in March of this year. The good news is you have a very good survival rate since your lymph nodes had no involvement. Things get a little more complicated when they are in the mix. I too am busy with three kids and a full time job and lots of activities in between. I slowed it all down during chemo and don't regret it. I really needed my rest and I feel it is paying off in spades. I had my last chemo treatment, Aug 3rd, and today feel great! Nearly all of my energy and strength has come back and I'm doing lots of projects and keeping plenty busy. I was very lucky I didn't have to work mostly because my oncologist did not want me around children due to illness (yes, I'm a teacher) and my white blood counts were all over the place. Are you planning to work?
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Hi Michelle. thanks for writing. I am planning on working. I do get time off, but plan on working right through this. We are an adult dental office and I do have the option of some of the days in a closed off office. But for the most part its quite busy there. Everyone there is quite supportive, but Im not sure how this is going to work out. Besides that, my kids are grown, my husband is great and I'll just take a administrative role during my chemo for serving with the youth group.
Did you have anything in your lymph nodes? Any tips during chemo treatment? I like the one post of 20 tips.. did any of those work for you?
Tina
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Hi tina_marie, and welcome to Breastcancer.org! Good idea to create this post and connect here with others starting their chemo around the same time as you, and share experiences and helpful tips! Wishing you a treatment plan that allows you to do many many things you love. If you need help from us, Mods, feel free send a private message, we're always here!
Best wishes,
From the Mods
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Hi Tina, it is nice you are able to work with such supportive people. That will make a big difference because flexibility will be key. There may be some days you may need to rest more so than others. I have a great tip for you---try to get your chemo infusions done on a Wed. or Thursday. The day of infusion, I felt like a million bucks because of the steroids they give. I would come home on those days and get plenty of things caught up. It was the end of the third day of treatment that would hit me like a ton of bricks. Mostly due to the nuesta shot. Twenty four hours after that thing kicked in, I would run a low grade fever for a few days and be achy until Monday or Tuesday. The rest of the week and the following week I was off of chemo, I would feel at my best. Some say take a Claritin prior to your nuesta shot and after in order to feel better. I never tried it though. Super important when you are taking the red devil is to not skip any nausea pills for the first few days because once you get sick it is hard to stop it. I was faithful on my nausea meds and never got sick once. Those are really the most important things to remember. I never had problems with my nails, or my teeth. I kept my mouth moist with lemon sours. The funny taste chemo gives you was weaker than the taste I had when I was pregnant, so it didn't really bother me and I knew eventually it would go away. Try to maintain weight because losing will make you feel a bit weaker and more fatigued during chemo treatments. Feel free to ask me any other questions. Hope all goes well for you!
P.S. I forgot to answer your other question. I do have lymph node involvement. The true extent will not be known until my surgery which is Aug. 30th. I had my chemo prior to surgery. How about you? Are you doing chemo first?
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Thanks for the great info... I hear everybody saying to drink a lot of water during treatment...and I'm not a water drinker so I need to get that going.. I am having my lumpectomy on the 25th.. My treatment plan was originally set to do Chemo first, then lumpectomy as my breast surgeon wanted the best cosmetic result, a smaller cancer that she had to remove. My Oncologist said no way, it's best to do the lumpectomy first then he can get the pathology of the lump and know best what chemo drugs to use.. So I asked my breast surgeon to change her plan and she did. I will start Chemo 3 weeks after.
I'm getting my port placed next Wed, i'm not being knocked out but getting xanax for that. There was a great post on the boards about what that process is like, which eased my mind a lot.
And I am thrilled you said that about Weds because that's my day off. I asked the oncology clinic if we'd be able to schedule my chemo then and they said it should be no problem. Where did you learn all your chemo tricks? From these boards.. I feel like i'm clueless to most of these things. What's Big Red?
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I'm not a big water drinker either. There were some days I just couldn't drink those three quarts. I did try to eat popsicles and/or freeze pops, drink ice tea, to make up for the liquids. I felt I needed some kind of flavor.
I had a local anesthesia with the port placement. It was an easy surgical procedure. It was just a little sore after and took a few days to get use to because I lay on my right side where they placed the port.
As far as my chemo tricks, I learned them along the way. I originally had chemo on Monday and had it changed due to an illness. I much prefer the Wed. schedule because my husband was home from work on the weekends and could help with the kids. Those were my crash days. I wish I had figured that out earlier. An oncology nurse told me about the Claritin and I also read that on here. I just never got around to try it. Red devil is the nickname for A/C chemo. It is a red color and a little devilish.
Sounds like we'll be going through surgery around the same time. I feel a little nervous about being completely knocked out for 3 to 5 hours. Hope all goes well with your lumpectomy!
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