Just over 5 years

Anonymous
Anonymous Member Posts: 1,376
edited August 2017 in ILC (Invasive Lobular Carcinoma)
Just over 5 years
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  • melmcbee
    melmcbee Member Posts: 1,119
    edited August 2017

    I just realized that today marks 5 years since lymphnode dissection. I had the bilat mastectomy july of 2012. At the first of this year I started having abnormal scans. I was on arimidex but didnt take it religiously. I am now. Being treated for mets to bone. I am doing well on ibrance and faslodex. I work full time. I have every intention of fighting this and feel reasonably healthy. I was lucky my mo sent ne an order in December for a scan. I thought I didnt need it fill April. Turns out he was right and it gave me a jumpstart on treatment. Best of luck and prayers for all.

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  • MmeJ
    MmeJ Member Posts: 167
    edited August 2017

    melmcbee, I am sorry to read about your news but glad that you are doing/feeling reasonably well. Hope the treatments you are getting now will do the trick!

    May I ask - were you symptomatic when your scans were ordered, did you ask for them, or was it a matter of how your MO operates? Mine won't do anything unless I am (become) symptomatic.

    I wish you the best.

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  • melmcbee
    melmcbee Member Posts: 1,119
    edited August 2017

    i didnt think I had symptoms. It was a yearly scan. I always have back pain but I work in healthcare and pull patients alot. I have mets in my spine and pelvis but they are small. My radiologist friend told me they were too small to biopsy. Another radiologist said he could get it and he did. He is my hero. He gave me a 6 month head start. I didnt know that my tumor markers were elevated. Good luck. Ask for a ct scan showed mine

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  • MmeJ
    MmeJ Member Posts: 167
    edited August 2017

    Yeah, I don't get it when they tell us no scans unless symptomatic because it doesn't change the outcome. Well, I think knowing our true status makes a big psychological difference, don't you? I realize many others are happy to assume NED unless found otherwise and why go looking, but since my cancers were missed for at least 10 years and neither were found via regular mammos, I really can't roll with that.

    I'm glad the second radiologist was able to get the biopsies. How else would you and your MO know if the mets had changed hormonal or HER status? Hero, indeed!



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