PROMPT STUDY
Just wondering if any of you have joined the prompt study? I have , and just received email that they are moving to phase two and will collect saliva specimen and may ask to see if other family members willing to be tested. This would be great for those with immediate family who would like to be tested
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I'm in the study but haven't received an email like that. They are probably doing a subset, my VUS was in MLH1.
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Thanks for responding summer. I heard from them and they told me they were sending a saliva kit to me 2 weeks ago or so, but haven't received it yet. I know they were specifically looking at palb2, but I hope they eventually work on all the other lesser known genes like yours also!
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I received my saliva kit with papers to give consent to get sample of my tumor. They called it stage 2 of the study and may also offer testing to some of the family. I'm excited to take part in something that could help them find out more about palb2
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