Anyone out there with Occult Amorphic Metastatic?

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Lita57
Lita57 Member Posts: 2,437

I was Dx'd last year with Stage 4 Occult Amorphic IDC, and was wondering if there was anyone else out there like me. My invasive cancer doesn't show up on any mammogram. They did nine during my biopsy, and couldn't find it. They had to do a dye-infused CT and use that to find enough breast tissue to biopsy. They also biopsied a swollen node.

RO said it's not uncommon. Many more women are getting this form, and it can start metastacizing when it's only Stage 1. That's why you can't feel it or see it easily in a mammo. It sends evil little tumor cells out into the body, and those growing tumors are detected first after they start invading other structures (as mine were, in my spine with accompanying nerve compression and fractures).

Mine didn't waste any time either. It's also in my liver, pancreas, adrenals, bladder, colon, abdominal wall, pelvic bones, hips, ribs, and adjacent muscles.

I'm currently on Xeloda. How's everyone else doing?

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