Is a big trip one week after a lx a good idea?

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Linwentz
Linwentz Member Posts: 133
edited August 2017 in Just Diagnosed

I retired from teaching this past June and will be celebrating my (our) 40th Anniversary on Sunday (July 23) Two major milestones in my life and I was so happy. Then on Monday, July 17th I learned that I have DCIS stage 0 Level 3. As you all know so well, life changes on a dime.

We are scheduled for a Viking River Cruise on August 4 and I didn't want to cancel. Also, the Insurance I have from the school district (better coverage than my husband's) expires at the end of August. My BS said he could expedite things and perform a lx on Friday, July 28. He assures me that I will be okay to travel within a week. Note: I contacted my school district and will now be taking Cobra. it will cost me more monthly but is a much better plan. Big sigh of relief! But originally I think the insurance thing factored in on rushing things a bit.

So my question is, will I be up to a trip?I don't want to be foolish and take on more than I can handle, but I have read that many of you return to work only a couple of days after a lx. And more than the trip...I want some feeling of normalcy, if that is possible. Any advise or suggestions would be appreciated.

This has been a whirlwind for me. Within 3 weeks I will have been biopsied, tested (multiple mammos, an MRI, an ultrasound) diagnosed and will be operated on (July 28) And from what I have deduced, this is the calm before the storm. Pathology will eventually tell me what we are up against and there might be more procedures, worries andconcerns. And then there's rads. Oh yes, I think it will only get worse after surgery (temporarily, of course!)

So, what do you think, brave and wise warriors. Is a trip to Europe a good idea one week after a lx? I respect your experiences, knowledge and wisdom.

Comments

  • illimae
    illimae Member Posts: 5,710
    edited July 2017

    You could read some of the surgery threads (June, July, etc) but I personally wouldn't do it. I am almost 4 weeks out from my lumpectomy and ALND and I still have a pesky drain hanging off my body and some nerve pain. The first week is rough and such a hassle but of course you know best what you can handle.

  • Beesie
    Beesie Member Posts: 12,240
    edited July 2017

    With a DCIS diagnosis, I assume that you will not be having any lymph nodes removed, i.e. no SNB (sentinel node biopsy) and certainly no ALND (axillary node dissection - a bigger surgery absolutely not required for DCIS), which makes the lumpectomy alone a pretty simple surgery. Most women do not get drains after a lumpectomy. So assuming no SNB and no drains, I think you should be perfectly fine to go on your vacation, and you should!



  • Linwentz
    Linwentz Member Posts: 133
    edited July 2017

    Thanks for your input. The truth is I don't know what I can handle! I have never gone through anything like this before. I probably am in some sort of denial... not that I have bc... but how bad it will actually be. And as I mentioned, I desperately want things to be sort of/kind of normal.

    But I must have some reservations or I would not have asked for guidance.

    I am sorry that after 4 weeks you are still dealing with drain & pain. My wish is that soon, your ordeal will be nothing but a memory. Warmest wishes

  • Linwentz
    Linwentz Member Posts: 133
    edited July 2017

    Thank you, Beesie! That is just the reassurance I have been after! I have read many of your posts and respect your knowledge and experience. And you are right, I won't have SNB or drains so my lx is a little different from lllimae's. Due to the findings on the MRI my lx will be larger than originally planned, but my bsdidn't think that should make too much difference. Again, thanks for the encouragement and positivity

  • Beesie
    Beesie Member Posts: 12,240
    edited July 2017

    Linwentz, glad to help!

    I never actually had a lumpectomy but I've had 3 surgical biopsies, which is pretty much the same surgery, particularly when no SNB is being done together with the lumpectomy. The first was when I was 16 and I missed all of one day of school - with no one knowing I'd had surgery. The second was when I was in my mid-20s, and it was done on a Friday and I was back at work on Monday, again with no one knowing I'd had surgery. The third was 12 years ago at the time of my breast cancer diagnosis. This was a pretty major surgical biopsy, involving two different areas of my breast and removing large areas of breast tissue in both areas. I was advised to rest for the remainder of the day, and avoid heavy lifting and strenuous activity for 24 hours. I needed nothing more than a couple of extra strength Tylenols and within a couple of days, I was back to my regular routine, simply being careful not to do anything to strain the stitches (definitely get your husband to carry all the luggage!).

    Of course everyone's experience is different; some women do have a harder time and in rare cases, women may experience complications. But my experience was not unusual, which I'm sure is why your surgeon is assuring you that you will be okay.

  • Italychick
    Italychick Member Posts: 2,343
    edited July 2017

    that's what I was going to say too, just be careful carrying luggage. I had my lumpectomy and went back to work, exercise, everything normal except sloshing around in the surgical site, that was pretty weird. But it resolved. Never had to take pain meds. There was soreness, but the day of my lumpectomy I did a two mile walk when I got home. You may want to ask for an antibiotic prescription to take with you, just in case, something heavy duty like Keflex or whatever works best for you. If Iwere in your shoes, I would go on the trip and just be careful not to overtax the surgical site. Everybody has a different experience, but my lumpectomy wasn't that bad, and I had 8 cm x 8 cm x 4 cm removed, and three lymph nodes which you won't be having removed.

    Oh, and I'm 55 if age comparison helps at all.



  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited July 2017

    if your doc is ok with it, then definitely go. I had no problems post lumpectomy. I did have a reduced range of arm motion for a few days, but that's it

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited July 2017

    Hi!

    I went back to work the day after my lumpectomy. I also went back to the pool shortly thereafter. I did indeed have reduced range of motion in my arm for awhile, but after I started the stretching exercises recommended by my surgeon, that went away.

    If I were you, I'd go on the trip but take it easy. Our bodies need time to recover from surgery, and that requires rest. Ten years ago, I had my gallbladder removed in a non-invasive procedure, and I remember being tired from that four weeks later.

    Best wishes for an optimal surgical outcome!

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited July 2017

    I would have been just fine to go, and in fact resumed cycling 10 days post surgery. I had complete range of motion and walked 3 miles the day after surgery, although I did need a nap. Nothing stronger than horse pill ibuprofen.

    Because you don't want to be sitting home feeling just fine and kicking yourself.

    Have a blast and congrats on your new life. The surgery should be no more than a speed bump. - Claire 

  • Pi-Xi
    Pi-Xi Member Posts: 348
    edited July 2017

    I went on a four-day shopping trip one week after the excisional biopsy (lumpectomy). My energy was definitely compromised, but I still had fun. I had to rest and I avoided carrying luggage. Everyone is different though. Apparently, anesthesia and sedation hit me very hard. It took me nearly a year after BMX/reconstruction to get near-normal energy back despite an excellent diet and daily exercise.

  • Freya244117
    Freya244117 Member Posts: 603
    edited July 2017

    I would go. You are on a cruise, so don't need to change hotels, catch trains and drag luggage around every couple of days. If you feel tired then it is easy to skip a day excursion. If it is your first trip to Europe then the excitement will counteract any tiredness.

    Have a wonderful time and Happy Anniversary.

  • gb2115
    gb2115 Member Posts: 1,894
    edited July 2017

    I don't know...I read the title of your post and was like nope!! But then I see you're not getting SNB. But honestly I can't imagine traveling like that...a week after my lumpectomy I was just getting pathology back, just having surgical follow up, not yet back to work, still taking Percocet at times, and not even cleared to do post surgery stretches yet. I regret not taking more than a week off work. I don't understand the lucky women who bounced back so quickly (maybe because of my personal hematoma hell--might have been a setback) and I was young and otherwise healthy and active. I guess you just never know how your body will react.

    However I had the standard SNB which makes your armpit hurt pretty darn bad for awhile so maybe your surgery will be easier. But being only a week out make --completely--sure you have access to health care wherever you are going just in case you get infection (doesn't show itself right away all the time--my surgeon actually said it tends to delay) or seroma gushing open or problems with your incision. Because you know, Murphy's law...

    Not trying to be a downer, just sharing experience!


  • debiann
    debiann Member Posts: 1,200
    edited July 2017

    You will likely be fine to go on the trip, but you may not feel entirely like yourself and hopefully your travel companions will understand that. You may be tired (anesthesia stays in your system for awhile), you may not be able to participate in the same activities you normally would (maybe no swimming to avoid infection) and you may still have some pain.

    A trip may be a good distraction, but you may also have some overwhelming thoughts about what's going on. Even if you change your surgery till after the trip, its hard to stop worrying about your upcoming treatments, so you may feel like you are on an emotional roller coaster.


  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited July 2017

    Linwentz, you must stay in bed for many weeks and pass your lovely tickets along to a random stranger on this website; how about me?

    On another, less ridiculous note, my hubs and I celebrated our 40th in June, so welcome to the club!

    I had a lumpectomy and an axillary dissection (they took out a lot of lymph nodes under my arm) on a Monday and went back to work Thursday. It was a little nutso because I still had a drain, but I felt OK and didn't want to use more sick/vacation days. The drain was removed Friday. The pain wasn't bad, and what pain I had was from my armpit, not the little lumpectomy incision.

    My opinion, for what it's worth, is this--put on your sneakers, give your bag to your hubs to carry, and get thee to the airport.

    I absolutely would not have missed a trip like this, but like others have said, everyone's different. I tend to be on the forward edge of "heck with it, I'm pressing on" and I have friends who needed a lot of time for rest and recovery. Both are normal.

    Also my own opinion, completely unsupported by science, is that our experiences tend to be closely related to what we believe they're going to be. Again...we're all different. It's just an observation from an old, old nurse.

    Take it easy, but go have fun. Bring us photos. Gentle hugs.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited July 2017

    Linwentz, I went on a small family vacation shortly after LX, that had been planned for a while. I was a bit tired, but managed to hike. I enjoyed myself and I think it helped me mentally and emotionally, to get away from the turmoil I was feeling and keep my mind off of BC. Just be careful not to lift anything, either way. If you get tired, rest...just as you would if you were at home. I think you should go! Make some happy memories:). Enjoy yourself!

  • ceanna
    ceanna Member Posts: 5,270
    edited July 2017

    Please go, and do pamper yourself. Let others carry luggage, rest on the ship if you need to, and enjoy the cruise!! Since you're not having a SNB, you should be okay, especially since the surgeon is confident you can do it. Do ask for an antibiotic just in case something pops up overseas. Glad you choose the COBRA option (at least while you complete treatment). Happy anniversary!!! Don't worry about the pathology reports from the surgery. They'll be available to you when you return. Enjoy, relax, and have the time of your life as you enter retirement!!!

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited July 2017

    They cut a golfball sized chunk out of me as a surgical biopsy and I would have been fine to go to work the next day. I took one pain pill, then took Aleve for a day or so- I had little discomfort

  • TarheelMichelle
    TarheelMichelle Member Posts: 871
    edited July 2017

    If you are traveling to Europe, you will be out of reach of your doctor's care. Make sure you ask for, and pack, more pain medicine than you think you will need. If you accidentally strain yourself, or find the pain a week out stronger than you expected, you will not be able to get heavy pain relief easily. Also, your cruise ship will have a doctor onboard, but you will pay out of pocket initially if ANY problem arises. For instance, upset tummy or the flu. Reimbursement can be another headache. However, if you want normalcy, you should go! You will be on a cruise with people who won't know a thing about your health, unless you tell them. That freedom can be very refreshing, after spending so much time immersed in cancer diagnostics. You will probably see passengers who appear to be far weaker than yourself. Bon voyage

  • Annette47
    Annette47 Member Posts: 957
    edited July 2017

    I had a lumpectomy and SNB (but no drains) and was back to running a week after, so I’d think you could manage a cruise. Go ahead and HAVE FUN!!


  • Beatmon
    Beatmon Member Posts: 1,562
    edited July 2017

    Not out of the country, but I went to Las Vegas 10'days after bilateral mastectomy! Could I do it now at 65 that soon after surgery....not on your life. I still had drains but took them out in Las Vegas. ( it was only 5 years ago but much has changed since then)

    I just took a River Cruise in France....there was not a ships Dr. Take everything imaginable that you could need...I needed an ace wrap after I fell in Bordeaux for my poor ankle. ...Their pharmacies are not like the ones you read about in Mexico where you can get drugs over the counter. The food and wine was unforgettable.

    I still say buy the shoes, eat the chocolate and dance like no one is watching.

  • Linwentz
    Linwentz Member Posts: 133
    edited July 2017

    Thanks for all the kind thoughts, humor, (s Elizabeth, you crack me up!) encouragement and advise. What I have taken away from all of your feedback is that is critical to to take a well stocked first aid kit with all the pain meds, antibiotics and any other prescription from my doctor as well as Tylenol and an ace wrap...good call, Beat-mom! So yes, I will buy the shoes, eat the chocolate & dance like no one is watching!

    As of now it looks like there will be no SNB or pesky drains to fuss with so that should make things easier. But the reality is I will still have just had a procedure to remove bc. Just writing it still feels surreal. So, I need to listen to my body, rest when I need to & let hubs do all the heavy lifting! Bon voyage

  • Tappermom383
    Tappermom383 Member Posts: 643
    edited July 2017

    I didn't go on a cruise but my DH and I went to our time share in the San Diego area (two hours away) a week after my LX. I figured I could rest there as well as at home! Now I wasn't in Europe but I was away from home. It was delightful! We went for a walk, went to the theater, went out to dinner - all things you can do on a cruise ship. As everyone else has said, just remember to take it easy. Let yourself be pampered a bit. If you have your doctor's blessing, go!

    MJ


  • ICanDoThis
    ICanDoThis Member Posts: 1,473
    edited July 2017

    tooka viking river cruse. Your luggage and everything will be taken care f without having g to worry. The tour company is Swiss, and everything is lerfectly organized. If you ae tited, tell gour tour guide, and they will dropyou off at the most convenient stop. You picked a great post surgery trip. Go, have a wonderful time, dont worry. 9.5yrs out now, was back at work the next day. Milked it a bit to get teenaer to help, but I was, and remain, just fine

  • Sitti
    Sitti Member Posts: 230
    edited July 2017

    Linwentz, I hope your LX went well and you have been resting comfortably. Everyone is different but I had what I thought was large LX (at least for my smallish breasts, IMO) but recovery was very easy. I think I took one pain pill, which was for a headache/neckache, and then maybe an ibuprofen once. I hope you are finding recovery easy and are encouraged about taking your up coming trip. I do think if your BS has given you the go ahead that is a good sign. Wishing you the very best! Oh, congratulations on 40 yrs and on your retirement!

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2017

    i went on a cruise off the coast of maine

    Took my mine off of all the stuff going on, i had 3 lumpies

  • Linwentz
    Linwentz Member Posts: 133
    edited August 2017

    Thanks to all for the encouraging words. Now that the lx is behind me I can honestly say it wasn't that bad. A few days before surgery the ultra sound showed more microcalcs & a suspicious area , so they combined the surgeries since the spots were close together. My incision is almost 3 inches but is healing ok. I am bruised and a little sore but nothing extra strength Tylenol can't take care of. Tomorrow I get the report. I am hoping for the best but prepared for hiccups. More microcalcs were found, I am ER/PR - (I am hoping not triple negative) I have Fibrocystic disease and my nipples are flat! So, even if the pathology report isn'twhat I would hope, I am looking forward to our trip. I am going to go and have a blast and deal with things when I get back!

  • ceanna
    ceanna Member Posts: 5,270
    edited August 2017

    Linwentz, you go girl!!!! I'm glad you're doing well following the LX. Enjoy the cruise, relax, and don't overdo!!!!

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