Do I have a real chance of dying?!?!?!?

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  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited July 2017

    Very true Brightness. I'm 36, waiting for the test to see if my sister should do the same. She is 32 and 4 small kids.


    I'm very curious to see what the results are. I am triple positive which is a good sign it's not genetic and yet there's all kinds of cancers on my dad side also. We shall see

  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited July 2017

    I might add I'm not worried about dying today. It's only been seven days since I got the diagnosis, feels like a grieving period that changes from one day to the next.

    I really like my surgeon and I'm confident he knows best. All is well.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited July 2017

    Like Shells, I have a relative great-aunt who had BC at a young age, 24. This was in 1912. All they could do was a mastectomy back then.Nobodyknew about hormon receptors, and there was no Tamoxifen. She lived to her 90s and died of dementia.

  • msphil
    msphil Member Posts: 1,536
    edited July 2017

    hello sweetie I was diagnosed at 42 while I was making plans for our 2nd marriage then that was considered young I found the lump in shower that seem to just show up was so scared But had my cry and decided to fight with everything I got included Faith Family n Hope. I went to sleep with medication Ambien saying to my body(cancer u have to leave my body).Long story short we got married between chemo n dad's Praise God I am a 23yr Survivor.msphil. idc stage2 0\3nodes 3 months chemo before n after Lmast dad's n 5 yrs on tamoxifen. God Bless Us All.😘

  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited July 2017

    That is awesome ladies!

  • neatochick917
    neatochick917 Member Posts: 4
    edited August 2017

    hi greeneyes,

    Let me first say that I am sorry this has happened to you. Secondly, I will say that I was 27 when I was diagnosed in 2014. I am 30 now and was JUST diagnosed with recurrence, 3 years later. It is most likely local. Still waiting on a node biopsy.

    I want you to be as informed as possible when it comes to treatment options. I was originally diagnosed with DCIS and IDC in my right breast, no lymph nodes were involved. I chose bilateral nipple/skin sparing mastectomy. Followed by chemo(taxol) and herceptin and a year of tamoxifen (stopped to try for another baby then the new lump popped up). No radiation. I would also like to point out that my original surgery was as performed by a general NOT a breast surgeon. In the process of putting together my team, I switched hospitals. Somewhere along the way the DCIS slipped through the cracks as the IDC was the bigger concern. Radiation wasn't part of my treatment plan since I shouldn't have had any tissue left.

    Coming from the same place of just wanting to live and be here for my little boy, I'm taking the 'more is more' approach with the treatment for this recurrence. I'm having what's left of my breasts removed and my oncologist has recommended chemo followed by radiation.

    My advice is to make sure you have a BREAST surgeon, ask for a second opinion on pathology and treatment plan, and push for radiation.

    Finally, you're going to be fine. Sounds like you caught it early and havethe option to use targeted therapy. Sending you big hugs

  • neatochick917
    neatochick917 Member Posts: 4
    edited August 2017

    You're so right. It is a grieving process. Hit the nail on the head. I replied to you in this thread and just read this comment. I wanted to let you know I'm grieving along side you. I'm 30 and was just diagnosed with what is most likely local recurrence

  • GreenEyes81
    GreenEyes81 Member Posts: 389
    edited August 2017

    Hello all, thank you for the responses. A lot has been happening...I just tried to stay quite and wait for the test results. My genetic testing came back negitive. After my MRI last week two more spots were found, they are also both IDC. Right side mesectomy pending for the 9th.

    I have tried to be strong and positive. I am scared of the emotions of looking down seeing a missing breast and not being able to be as positive and strong for my kids/husband. Seems way worse to have 3 lumps versus the 1 I thought and dealt with.

    I am 8 hours from home for treatment, the good news is after a week my husband is on his way. I just want to see him.

    Off to the mesectomy thread....

  • Ruby3813
    Ruby3813 Member Posts: 96
    edited August 2017

    GreenEyes81 - my circumstances are totally different from yours, but after reading this thread, I just wanted to wish you well. You sound like a very positive and upbeat person and that's exactly what it takes to fight this horrible disease. You'll be just fine!

    Heart


  • fd1
    fd1 Member Posts: 239
    edited August 2017

    Greeneyes81 - I just wanted to pop in and say that I found a lump in August 2011 at the age of 30 but was only diagnosed in January 2012. It was Stage 2B (2.1 cm, ER 100%/PR 98%, 2 involved lymph nodes, HER2-). I am now 36 and healthy as can be. Another girl around my age that I know that had four involved nodes is also doing great. It is terrifying as your mortality becomes very real and I have struggled with anxiety but there is SO much hope.

  • Fiddler
    Fiddler Member Posts: 128
    edited August 2017

    Greeneyes, ONLY your doctor can give you accurate stats on what your personal "survival" percentage is, and it will be based on your total picture: size of tumour, lymph node involvement, hormone/HER2 status, etc. Mine was very honest in outlining this to me.

    You are HER2 positive which means a more aggressive cancer BUT you will be able to be treated with Herceptin (and maybe another drug called Perjeta if you are in the States), this drug has been a total game-changer for us HER2 positive people. You start Herceptin while you are on chemo and then stay on it for a total of one year. It is given every three weeks by infusion at the hospital but for most people does not have the multitude of side effects that chemo does. I have three Herceptin treatments left and am doing well on it.

    I wish you all the best with your surgery and treatment.



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