Recurrence
I just had surgery for DCIS and IDC. The tumor (I don't even really know if it's a tumor - I had microcalcifications on my annual mammogram) was 1/2 inch long, I had clear lymph nodes and clear margins. I am estrogen positive. Everything is going my way if I have to have breast cancer. I had the surgery on June 16 and I'm already starting to worry about recurrence. I tend to be anxious, but how crazy is this? Somebody told me people tend to do this for the first two years after surgery. Would anybody out there agree?
Comments
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I obsess. I'm hoping that changes soon as I can't keep it from coming back by worrying. I haven't thought about much else since the bad mammogram in mid-December 2015. So, I don't think that you are crazy!
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Hi- I was diagnosed a little over a year ago, and I don't obsess about it. I just went back to the surgeon on Monday, and he told me that my mammogram was totally clear, and he examined my breasts, and he was happy to report that everything was good. He said my incision healed nicely. He wants me to have another mammogram in a year, and then come back to see him. He even gave me the written referral for the mammogram. He is super organized like that. I have been spending a lot less time on breastcancer.org too lately. When you are newly diagnosed, you want to find all the information you can. but since I got the good report recently. I don't feel the need to be here as much. I do have some small side effects from the Femera that I am on, but nothing serious enough to quit taking it. I get a small amount of joint pain from it. When I went to my PCP for a physical a month ago, I expected that my cholesterol would be up, because Femera has a tendency to do that, but my cholesterol was actually lower than it was before I started the meds. I have been on lipitor for at least three years though. My blood sugar was also okay. I have been involved in a weight loss class that just ended at the Cancer Wellness Center in Northbrook two weeks ago, and I have lost a total of 15 pounds since starting the class five months ago. Many people on femera complain about weight gain, and so I feel good.
It helps if you don't spend lots of time on Google researching everything in the beginning. I think it is easy to spend quite a bit of time here, and read the horror stories, and worry that this is going to happen to you. I did follow a standard course of treatment, and dealt with chemo and radiation, and I did obsess more about it then. I try to eat healthy and exercise and take my anti estrogen every day, but since I do that I don't worry that it is going to come back, and my hair has grown back. I had to get a hair cut 7 weeks ago..
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I think how you're feeling is completely normal.
I have found that the further out I get, the less I am thinking about recurrence. I think you will find that others echo those sentiments.
At the end of the day, if it's going to recur then it's going to recur and worrying about it every day isn't going to do anything to prevent it. If you spend day after day full of anxiety and then nothing happens...what a waste of time! And if it does recur...how crappy to have wasted all of those good days worrying. That's how I've wrapped my head around it...I know it's easier said than done...but I think time will help.
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I thought of recurrence every day for a year. Then, after I hit 18 months, I started to breathe easier. I am now almost three years out...and this is the first time I have been back on this board for over a year. It gets better. Allow yourself this time of grief/fear/concern - it's normal. Gentle hugs!
Akitagirl
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Akitagirl ....haven't seen you in a long time on here. How are you doing? I know exactly how you feel only I continue to worry. Don't know how not to!!
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I also worried about recurrance for a few years after my chemo and rads treatments were over. And then as time passed, it was less and less of a concern. I agree that not spending time researching is helpful because I think you are only "poking at the sore" when you do that and making yourself more anxious. At least it is and was for me.
I have also discovered that not talking about it or mentioning it to people who don't know is helpful. Only a handful of people know I have had BC, and this for me is intrusive enough. Everytime I see them I get that look of pity or questions about how I am, or the ever annoying "I can't believe how good you look" or "at least you look great" which implies they expect me to look like I am on deaths door. LOL. When this happens, I can be triggered into feeling sorry for myself and then get anxious. It is refreshing to be with friends who do not know anything about my health issues. I then forget I am a survivor for a while when I am with them and this can carry over for quite awhile so I am not worrying about recurrance.
It is a platitude... but we really only do have today and no one knows the future. The gift of cancer for me has been that life is fragile and you need to absorb and get everything and give everything you can out of life today. I am much more laid back because of it.
Best wishes to you.
wallan
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Wallan, I feel the same way about not wanting to share my diagnosis with people unless I have to. I absolutely HATE it when people look at me with that sad face, or ask, "How are you feeling, hon?" Or start asking about what I'll do if it comes back, or other such talk. I know some people mean well and wouldn't want to hurt me for the world, but I find it's just best to keep things to myself. I know some people share their whole story on Facebook, but not me. I don't mind sharing my story here because you all "get it."
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I agree with everything already said. I am two years out and I have phases of anxiety. I would say what helps me the most is staying off the internet and even not coming to this site too much. As wonderful as it is, it keeps me focused on BC. It is better for me to read things not related....almost like changing the channel on the TV.
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I worry about it a lot. I have taken breaks from BCO at times as well to help get my mind off of it. i think that it's normal to be worried. I know several women who have had to deal with BC twice
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I am so happy to see that others feel the way that I do about sharing their diagnosis. I have only told a handful of people that are close to me. I feel a little guilty every week during church when others want to share everything about their minor illness or issue. I have always been a very private person and so sharing personal medical information is just so foreign to me. I don't know how others with health issues handle the constant questions, well intended as they may be.
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You girls are my people! I haven't even told my parents! I also have a job were I am a contract provider and it wasn't necessary for me to tell them so I didn't! I have a few close friends who know. I had to tell my daughter because she was 7 months pregnant and I wasn't going to be able to help with the toddler or be in the delivery room when she had the baby. She and her husband would be on their own. It's the only labor and birth I wasn't there for. Broke my heart! A few of the pastor's at my church knew as well. I am with you all when it comes to the "looks and comments". I volunteer at several places in our community and actually ran into several people I know while I was doing my radiation. Well, they figured it out...why else would you be at a cancer center....today is my first mammogram since surgery. I'm almost 6 months out! Good vibes are welcomed today!
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Vargadoll, Sending you good vibes. I know this will be a stressful day for you. I am already dreading my first mammogram which will be in November. Looking at your stats, I know you will be just fine.
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Best wishes coming your way, Vargadoll!
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Thanks ladies! I got the all clear looks good! I was able to do the 3D mammogram to! My insurance started paying for the June 1st. The the tech doing my scans said I was very lucky they found the BC and that it was caught so early. I have "dense" breast tissue (don't we all ???) And the BC was so deep and small that it could have been over looked. Thanks be to God!
We are all in this together!
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Yea, Vargadoll! Glad you had a good report! Yes, mine are dense as well and my tumor was small and deep. Upper, outer quadrant where most are located.
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Fear of Cancer Recurrence in an Era of Personalized Medicine
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Tumour size predicts long-term survival among women with lymph node-positive breast cancer.
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I, too, am obsessing about it. Constantly fearing the worst. I put on a brace face in front of everyone, but deep down I'm suffering, big time. I hope it gets easier. I can't fathom going through life like this.
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While I've been told with my profile, lifestyle, weight and not able to be on an AI v Tamoxifen that basically I'm a walking time bomb. So for me it's better I hang here and read up. Knowledge is power for me. I'm not on here 24 hours but I do have this site up among many other sites at the same time and just toggle.
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