Brown Discharge on tamoxifen?

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Sallibrux
Sallibrux Member Posts: 3

hey ladies, I've posted here before but can't access my account for some reason, it won't let me retrieve my password with email either...

Anyway, I'm 37 years old, been on tamoxifen for 1 month shy of 5 years. I've had some irregular periods off and on over the years, some a little heavier , some a little lighter, cycles from 3 weeks to almost 5 weeks. Last November I had surgery to remove a benign ovarian cyst and also had my tubes tied.  Since then I've been super regular 28 days on the nose. I should've had my period on Tuesday, yesterday I started having done brown spotting, not uncommon for the first few hours for me, however it lasted all day yesterday and now all day today. It's super light. Mild cramping that feels like I should have my period.  Something to stress about?  I generally jump to a million conclusions and of course need to step away from google and stop freaking out. 

Comments

  • coraleliz
    coraleliz Member Posts: 1,523
    edited July 2014

    I'm older & perimenopausal. For me the brown spotting with cramping has always meant a polyp. So far, always benign(usually the case from my reading). But need to be removed. I had one removed just last week.

     "one month shy of 5 years" congrats!!

  • vlnrph
    vlnrph Member Posts: 1,632
    edited July 2014

    Either give it another couple days to see what happens or call for an appointment, especially if you're due for a follow-up soon anyway. At least talk to a nurse so this will be noted in your chart. Things may become more irregular as perimenopause enters the scene but this medication clouds the situation. Hope it resolves quickly!

  • Sallibrux
    Sallibrux Member Posts: 3
    edited July 2014

    Saw my dr yesterday.  He didn't see anything concerning but did a biopsy just to be safe.  You'd think after everything else I've been through that a biopsy like that would be a piece of cake but sheesh!  That is not comfortable in the least!  He thinks he'll have biopsy results by Friday but at this point I've decided if he's not worried I'm not going to worry!

  • susansfca
    susansfca Member Posts: 8
    edited July 2017

    Hi Ladies


    I have been reading this and other threads for the last week. I had some very very minor brownish discharge ( really like 1/4 teaspoon) I called my Dr and had the worlds most painful uterine biopsy. Came back inconclusive due to having such a thin lining it was hard to get a sample. Dr said that she is confident that the possibility of missing any cancer is nest to zero. Cancerous lining is usually very think, mine is VERY thin.Because of that I am taking a long time to heal and stop spotting. I go in for an ultra sound Monday am and talk to my onc Tuesday about changing to AI and off T. I would love to know what happened to the ladies who went in for biopsys and ultra sounds. Most say that all was negative but what about polyps and fibroids? Im almost 53 , been on T for 16 months with additional Lupron shots every three months.

    Any follow up stories to share?

    Thanks

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited July 2017

    I had spotting post meno on Tamoxifen due to a polyp. Instead of continuing to go to appt after appt I had a hysterectomy. Should have done it years ago.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited July 2017

    Hi, susansfca! I think I'm in the same sitch as you are. I've been on Tamoxifen since 12/2012, and I'm on the "10-year plan" because of my dx (Stage III with node involvement). About a month ago, I had a routine physical and the PA did a Pap smear. I've only had one since chemopause in 2012, and while it was very uncomfortable, I didn't have any other issues with it. I had what was, to me, a surprising amount of bleeding after this most recent one. The PA assured me that bleeding after a Pap isn't uncommon in general. I spotted just a little after the appointment for a couple of days, and that was that. A few days ago, all of a sudden, I had some mild cramping and heavy feeling, just like the good ole days - and some more mild spotting. I went to the doc today, same thing, uterine biopsy. She tried 3 times to get a sample, got very little, and said that if it's inconclusive, they'll do an ultrasound. I'm feeling optimistic about the fact that I too have very little lining. Only thing is... if there really is something not right, I just want to be done with it! We're counting down to my son's wedding at the end of September. And I'm crossing my fingers that this doesn't affect my ability to continue with Tamoxifen. I frankly never even thought about polyps. Hmm.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited July 2017

    Wow, well, I got the results already on the biopsy. Just as I thought, it didn't show any uterine cancer, but it also didn't show any endometrial tissue at all. So I have a referral for ultrasound, but this is adding to the thought that I just don't have any tissue left to speak of. You would think I'd have learned to take these things one step at a time, but now I'm wondering if I'll ever know what caused the spotting. Ugh, lady parts, nothing but trouble! How are you doing, susansfca?

  • iatigger
    iatigger Member Posts: 447
    edited August 2017

    Hi all, I had been on Tamox since 2012. Back in June started spotting after almost a year of no periods. Had a hysteroscopy that found polyps, biopsy done and all came back good. So a D & C scheduled and done to get rid of the polyps. Few days later got a call that the pathology showed endometrial cancer. Even the doctor was surprised. Had a hysterectomy last week and pathology shows cancer was contained to endometrial lining and had not invaded the uterus so all should be good now. Just having a hard time understanding how something that has been proven to cause cancer is still a viable drug option. And another BCO sister has cataracts from it as well. Waiting to see what the oncologist says, but going to have a big discussion if she expects me to jump onto the AI bandwagon after all of this. Those side effects don't sound doable for a good quality of life.


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