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finallyoverit
finallyoverit Member Posts: 382
edited October 2018 in Just Diagnosed With a Recurrence or Metastasis

Spinal Metastasis with cord compression - To say I'm terrified is an understatement. I have no words.

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  • finallyoverit
    finallyoverit Member Posts: 382
    edited May 2017

    I can't bring myself to update my dx line.. lovely, denial starting already.

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  • sheila888
    sheila888 Member Posts: 25,634
    edited May 2017

    Finallyoverit.....Sending big hugs to you

    💚💛💜

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  • finallyoverit
    finallyoverit Member Posts: 382
    edited May 2017

    Thank you. I'm numb with fear.

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  • Emily2008
    Emily2008 Member Posts: 605
    edited May 2017

    Lord, have mercy. I'm so sorry.

    Deep breath...you'll get a plan in place with your team and start walking through this one step at a time. It's overwhelming now, and we all know what that feels like. But you can do it, one foot forward.

    We've got your back with prayers and good wishes.

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited May 2017

    I'm so sorry.


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  • finallyoverit
    finallyoverit Member Posts: 382
    edited May 2017

    My MO says we have options so that helps a bit but not exactly the news anyone should hear, esp in their early 40s.. like way early. No one deserves this.

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  • melmcbee
    melmcbee Member Posts: 1,119
    edited May 2017

    Finallyoverit. I totally get the numbing fear. Try to get some anxiety meds and know there are many treatments available. Prayers and gentle hugs.

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  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited May 2017

    big hugs to you finallyoverit. I'm so very sorry you got this news. Stupid disease!

    Nancy

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  • Falconer
    Falconer Member Posts: 1,192
    edited May 2017

    holding you in the light. I'm so so sorry to hear your news

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  • finallyoverit
    finallyoverit Member Posts: 382
    edited May 2017

    Thank you ladies. I will post more once I begin to wrap my brain around this but wanted to thank you all for the support. Means more to me right now than I can say.

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  • Rlsteadman
    Rlsteadman Member Posts: 76
    edited May 2017

    sorry to hear of your diagnosis. I was just told I have a recurrence. I also had my first diagnosis in October 2013. I will be praying for tou

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  • finallyoverit
    finallyoverit Member Posts: 382
    edited May 2017

    Thank you ladies. My head is still spinning.. no idea which way is up at this point. Had emergency spinal surgery and just trying to recover. Still numb with fear

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  • Scwilly
    Scwilly Member Posts: 489
    edited May 2017

    I know where you are and I am so sorry you had to join us. Deep breathes and know that its a long game now and that there are many many options and treatments for us. I had thought it would be just like last time - where I had the freight train of chemo hit me - but treatment options are a lot less dramatic, Something I am just getting used to. That pesky strap line can wait too!

    I get a huge amount of support from this board, but I also joined a local support group and find the support and info or just plain nods and understanding I get is invaluable.

    I wish you a comfortable recovery from your surgery. Put some of the stage 4 threads into your favorites - I follow the Ibarance and Liver mets ones closely. I hear there's a great bone mets one too.

    With love and e-hugs

    Sarah

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  • Falconer
    Falconer Member Posts: 1,192
    edited May 2017
    Finallyoverit, wishing you a smooth recovery from surgery. Gentle hugs to you.
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  • pajim
    pajim Member Posts: 2,785
    edited May 2017

    Finallyoverit, I've been where you are. Concentrate on getting well from the surgery, and think long term. You'll feel better once you get over the "shock and awe" period, but it will take some time. I was lucky enough to spend mine under the influence of percocet as I recovered from my fusion.

    Once you start cancer treatment life will return [somewhat] to normal.

    PM me if I can help!

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  • KBeee
    KBeee Member Posts: 5,109
    edited May 2017

    Ack! Stupid disease. I hate cancer. Hoping you recover quickly and have s plan in place soon

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  • pabbie
    pabbie Member Posts: 370
    edited May 2017

    I'm so sorry to hear this. Be kind to yourself during this difficult time.

    My thoughts and prayers are with you. XO

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  • pupmom
    pupmom Member Posts: 5,068
    edited May 2017

    Prayers for treatment to kick those buggers to the curb! Assuming you've been on hormonals, maybe a switch to another one should be in order.

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  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020

    .

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  • Rufhewn
    Rufhewn Member Posts: 45
    edited June 2017

    Finallyoverit So so sorry. Just wanted to share a friend of mine who had been cancer free for a number of years had BC metasasize to her spine so seriously they gave her weeks to live. They aggressively treated the cancer and I remember her telling me she prayed for three years. That was six years ago and she is doing fine with ongoing treatments. Her life is full and there no reason to believe she won't continue to do well. Hugs


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  • bbecksoon
    bbecksoon Member Posts: 6
    edited June 2017

    Finallyoverit...sorry for what you're going through. How are you doing? I just found out Thursday that I have a spinal cord lesion that has been causing horrible neuropathy from waist down. Fortunately, it doesn't look like there is spinal cord compression, but only nerve compression at this time, but surgery will likely come soon. I know little more at this point...will meet with my oncologist on Tuesday and then a neurosurgeon. First thought they could treat with rads, but I already had rads very close to this area on spinal mets last spring. Very scary stuff, indeed! I was humming along with all prior mets to lungs, liver and bones (MANY!) resolved with rads, chemo and hormonal therapy since spring of 2016, but alas, there was an intruder unseen! Rats! Keep us posted on your recovery!

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  • finallyoverit
    finallyoverit Member Posts: 382
    edited July 2017

    Bbecksoon - just seeing your message. I stayed away from the forums for a while. I'm hanging in there.. still a lot of numbness in one of my legs, but I'm able to get around. I hope your docs were able to come up with a treatment plan for you.. I agree, very scary stuff.

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  • finallyoverit
    finallyoverit Member Posts: 382
    edited July 2017

    Thank you everyone for your kind words. They mean more to me than I can say.

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  • new_direction
    new_direction Member Posts: 449
    edited July 2017

    I'm really sorry to read this, sending you hugs, thoughts and best wishes.

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  • peyton3
    peyton3 Member Posts: 43
    edited July 2017

    I am so sorry to hear this, but stay strong and never give in to this hateful disease. Lots of prayers and thoughts your way.


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  • KBeee
    KBeee Member Posts: 5,109
    edited July 2017

    Hoping you tolerate the treatments well and that they get you to NED

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  • Ihopeg
    Ihopeg Member Posts: 399
    edited October 2018
    Hi I was just confirmed too. October 5th . Wishing you the best!
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  • Utopria
    Utopria Member Posts: 204
    edited October 2018

    ihopeg - you and me both! Was confirmed Mets on Oct 5th! Still haven't completely processed the news, I have some good days, and some not great...I have rad consult for my spine met next week...good wishes and best of luck to you! Let's fight this horrible disease!!

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  • JoE777
    JoE777 Member Posts: 628
    edited October 2018

    So sorry for your DX. I had 10 rad treatments to my left sacrum/iliac for pain and 5 tumors. Pain was immediately relieved and tumors have shrunk along with kisqali/letrozole pills. Started treatment in March and will have my 3rd pet/Ct scan in November to monitor my response to treatment. Good luck. Hugs and peace

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  • Jojobird
    Jojobird Member Posts: 203
    edited October 2018

    finallyoverit,

    I'm so sorry. I'm thinking of you and sending you healing and courage. This is the toughest time, this shock.

    Love to you.

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