Post Dx Screenings: Type and Frequency?

KH17
KH17 Member Posts: 15
edited July 2017 in Stage I Breast Cancer

I am interested to know what type (ie digital mammogram, 3D mammogram, MR!, ultrasound) and frequency of screenings others with stage 1, ER/PR+, HER2-, Dx are getting going forward? And how soon (following Dx / surgery / radiation?) did you have your first follow up screening?

I have heard a range of experiences from those I know, as well as from my doctors and wondering what others are doing.

Thank you!

Comments

  • Brightness456
    Brightness456 Member Posts: 340
    edited July 2017

    That's a good question regardless of your ER/PR and her2 status. I hope we hear from others. I've been so wrapped up in trying to understand my dx and plan for treatment that I haven't reallygiven any thought to follow up care post treatment. I do suspect I'll be a nervous wreck before every test and definitely until the results come back.

  • KH17
    KH17 Member Posts: 15
    edited July 2017

    I am being told when available 3D mammograms are preferable. Noting this is not the same as the digital mammogram that is used now for most routine screenings, rather often a 3D is what is what is used when there is a follow up. For post Dx patients, it was recommended to me as preferred routine screening going forward.

    MRIs are the thing I am most confused about. I am hearing different things about their benefit in routine post Dx screening. For the most, part my doctors are not recommending it as part of my routine screening going forward, rather they say it should only be used to clarify an issue surfaced by a mammogram. On the other hand, I know someone women who have been advised to alternate mammogram with MRI, and my RO thinks its useful in first few years. The primary concern seems to be false positives that may result in biopsies and added stress. I had this happen during the MRI that was required following my initial Dx so I can understand the concern, but I *thought* MRIs were better for dense breasts and finding DCIS. I've heard doctors say both "yes" and "no" to that!

    Frequency also seems to be an area of differing opinions. The impression I am getting is to a large degree it's a combination of personal and doctor preference. I am generally being told annual is sufficient, however when that clock starts has been all over the map from one year from last mammogram, to first one six months after surgery (or radiation, which was post surgery) and then annual from there? I can accept the rational that with my situation -- for those with more aggressive cancers it may be a different case -- that annual ensures that if anything comes back it will be found reasonably early again.

    Also, interested in how often and by whom clinical breast exams are being done for you as well. Pre Dx, mine were done annually by my GYN, who will presumably continue to do that -- but should one of my oncologists (MO? Surgeon?) also be doing that?

    I would love to know what others are hearing and doing especially regarding MRIs and whether doing more frequent than annual in first few years post Dx.

    Thank you!

Categories