Nipple discharge, now waiting for surgery
A few months back I started noticing brown spots in my bra only on the left side. At first I didn't know why, I figured I spilled something and it rolled into my bra. I wear a lot of black and darker colored bras, so it really took me some time to figure out the spots were actually coming from me, not something I was spilling. When getting dressed or undressed, my hands would get sticky and again, I figured I got into something sticky, wash my hands and move on. So I did a self breast exam and was able to express some of the discharge on to a tissue. When it first comes out it's clear, then when it dries it turns dark brown. I'm 46 and have never breast feed, so, I knew something wasn't right, so I told my husband what was going on and he told me to go to the doctor. I'll admit, I didn't want to, I was scared, stuff shouldn't be coming out of there.
So I called my PCP and she did a breast exam and was also able to express some of the discharge during her exam and collected samples of it to send into pathology. She didn't seem too concerned, she said usually its papillomas, that are benign, but will require surgery to remove. She ordered a Dx mammogram and ultrasound and also referred me to a breast surgeon. She told me that the breast surgeon office would call me to schedule, but its really no hurry and not to worry. So that same day I called to schedule the mammogram and ultrasound, they had to schedule me out a few weeks so they could receive records from my from Minnesota, we had recently relocated to South Carolina. So I waited for my appointment. Days before I was scheduled for my mammogram and ultrasound I received a call from the breast surgeons office, she wants to see me right away. I told the scheduler I hadn't had the mammogram or ultrasound done yet, so we scheduled the appointment with the surgeon for a few days after I was scheduled for the mammogram and ultrasound.
The waiting is driving me crazy at this point, but I finally saw the breast surgeon. Turns out the breast surgeon had received a copy of the pathology report from the sample my PCP had taken. The pathology report was positive for A-typical cells, both blood and carcinoma. The breast surgeon did an exam and of course the discharge came out, and wouldn't stop, I ended up having to hold a gauze on it to get it to stop. She reviewed the mammogram and ultrasound. The mammogram came back normal, the ultrasound showed debris in the ducts, so she ordered a breast MRI.
A week later I was having a breast MRI, then a few days later I was back at the breast surgeons office to discuss the results. The breast surgeon can see something in the duct, but says the only way to know for sure what it is, is to remove the duct and send the entire duct into pathology. So now I'm scheduled for surgery in September for terminal duct excision. The breast surgeon doesn't seem rushed at this point, but my mind is racing. She says once the surgeries completed they will send the entire duct into pathology, then it takes another week to get those results back, once the results are back, she will see me again to discuss and give me the final diagnosis and then discuss future surgeries if needed.
So now I wait until September, my mind just races. If the discharge pathology report came back positive for A-typical cells, both blood and carcinoma how can it be anything benign? The breast surgeon said it could be 1 of 3 things, intraductal papilloma, intraductal carcinoma in situ, or breast cancer. So the way I see it 66% chance it is cancer, but here I wait.
Thank you for taking the time to read my story! I know it's long, but it's been locked up inside me now for months, I had to let it out to let my mind have some peace. Thanks again and God bless!
Comments
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SC - That stupid discharge can be so troubling. It took two years for my docs to find out my right breast was up to no good, after several years of bloody discharge. I'm glad your docs are being proactive. I had duct excisions twice. Don't be alarmed when you read the path report and it says partial mastectomy. That is just the doctor lingo. I have not researched exact percentages, but I'm thinking that the chances of it being a intraductal papilloma are greater than the other options, thus I'd try not to dwell on that 33% 33% 33% calculation. Take things a step at a time. Whatever it is you will deal with it.
I am grateful I had the discharge. It was the only thing that pushed me into some heavy decisions. Oh and by the way, I had papillomas, atypical cells, and breast cancer in there.
Chances are good you'll have benign findings. I certainly hope so. Take care and let us know, ok? It is a total pain. Gentle hug to you.
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Lucy,
Thank you so much for your kind words and support! I too am hoping for the best, but my mind is also preparing for the worst. I am truly grateful I found this community and the support it offers.
It's difficult to talk with friends and family about it. As soon as you explain what's been happening and all doctors appointments you've had, everyone gives you the face. No one talks about breast disease, all you hear about it breast cancer, so everyone jumps right to it. They try to be supportive, but you can still see that look in their eyes. At this point I just want to be prepared and I'd like them to be too.
Thank you for your gentle hug, these days gentle hugs are needed! Besides, if you squeeze me too hard right now you may get wet
SC
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SCgirl, if it's any help to you, when I had liquid sent in (actually it was aspirated liquid) to cytology (pathology is for tissue, cytology is for liquid and is less specific) it came back as "adenocarcinoma" so they knew I had bc, but not what kind (that is where the less specific comes in). So there are some differences in what your cytology report stated from mine. Hopefully farmerlucy is right and you've got an intraductal papilloma. Hoping for good news for you!
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Thank you, yes, that does help. My fingers and toes are so crossed it's good news.
I really am trying to stay positive and praying that it is papillomas. But my mind keeps going back to that report and the word carcinoma. I just can't shake it. The hard part is going into surgery not knowing and then still having to wait another week post surgery for the final diagnosis.
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That would be difficult for anyone! The not knowing and waiting is just awful. I have a thread with tips for managing anxiety and addressing sleep issues for those who are stuck in the worried and waiting stage. If you're interested, the thread is here: https://community.breastcancer.org/forum/83/topics/855477?page=1
Sorry you're having to wait so long for answers. Hoping you get b9 results!
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Hi SCgirl26,
I'm in the same boat as you (kind of) but I am waiting to see what type of biopsy I will have. I will know next week when I see my surgeon! This forum has been wonderful for me. I have read (I think) the entire internet and when you do that you find that you have every known disease out there ! LOL!!! So I keep coming back here for "real live" people that have gone through the same things as me!
For some reason I keep telling myself that my problem is very minor. Not sure why I keep saying that, maybe because I have only seen my nipple discharge three or four times and it does not excrete when you try. But maybe I just caught it early, and its just a clogged duct. Maybe yours is the same! prayers that it is! I know waiting until September seems like a lifetime! But hang in there, maybe they are just giving you a longer wait time but will come back with the results much sooner!
Do you mind me asking how often you would see the discharge? I keep seeing posts where most women have it daily, or all day. I was just curious! and remember to think positive thoughts and hang in there! hugs from me too!
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MTwoman,
Thank you for the link. I read it and found it well written and incredibly informative! I'm trying my best to stay busy, both mentally and physically. The last few days have been good days and my mind has come to a place of peace. I've accepted that it is what is what it is and I'll cross the bridges as they come my way.
((Hugs))
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Britt,
I agree with you about this forum. It's really comforting to have a place to discuss issues like ours. It's hard to discuss with friends and family because they haven't experienced what we are going through. Some days I just want to talk it all out, other days I just hold it in to myself. It really varies day to day, sometimes, it's different hour by hour. Here I can read the stories and not feel so alone with what I'm going through.
My discharge happens daily, multiple times a day. It's clear, watery and sticky when it comes out. Once it dries, it turns to a dark brown color (kinda looks like a Diet Coke spill, that's what I thought it was the first time I saw it). My PCP said it turns brown, from the blood cells. I can't feel it when it comes out. It just leaks all on its own. Some days it's more than others. I notice it more when I wear lighter colored clothes. It's kinda hard to ignore a big brown spot in a nude colored bra. My breast surgeon suggested cutting a panty liner in half and placing it inside the cup of my bra. I've tried that, but it's too itchy, so a little Spray n Wash and into the laundry they go.
Please keep me posted how your biopsy goes. I'm sending prayers your way for good news!!
S
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SCgirl, so glad you're feeling more comfortable as you wait for September. Keep doing what you're doing!
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Hi,
It's been a while since I've posted, so I thought I'd give you a mini update. My surgery is still on for this Friday, and, yes, the discharge continues. I have been staying busy and doing my best to stay away from google. My mind has come to peace with whatever my diagnosis is, since there is nothing I can do to change it. I will cross each bridge as I come to it. My friends and family have been very supportive and understanding. I've got my ice packs ready and I'll let you know how it goes both with surgery and a week later once I get the pathology report.
S
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Good luck SCgirl. Crossing my fingers and toes for only B9 results!
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Thinking about you SCgirl. Good luc
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Had my surgery on Friday. The surgery went well and the surgeon was able to get the duct fully out and off the pathology it goes. She prescribed Vicodin for the pain. Friday I was beyond nauseous and started noticing swelling in my right hand, my fingers looked like little sausages. By Friday evening I had a rash on my left hand. Wake up Saturday to two swollen and rash covered hands. I stopped the Vicodin and switched to Advil for the pain, the nausea stopped. Today I wake up to not only my 2 swollen hands but feet and torso too. Off to the ER we went, turns out I'm allergic to Vicodin, doctor gave me shot of prednisone and also wrote RX for 12 more days of prednisone. Now I've been told to just take Tylenol for the pain and no more Vicodin. The rashes itch like crazy, but it taking my mind off the incision, so that's a good thing. I'll call my surgeon tomorrow to give her an update on my weekend and she if she wants to see me sooner than my post op , which is scheduled for the 26th. Both of my breasts are covered by the rash, so she may want to check them out. The doc today checked my incision said it looked good. So I'll see what she says tomorrow.
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Oh man! That stinks. Glad you figured it out. Waiting with you.
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Had my post-op follow up appointment today with my breast surgeon. Surgical site looks good and is healing as to be expected. Pathology report came back BENIGN! It was a large papilloma measuring 2.5 x 1.2 X 1.2 cm. My surgeon claims it was the largest one she's seen in a while. When I asked about the original cytology report, which showed atypical cells, blood and carcinoma, she said that it was a false positive and they see those with nipple discharge. The only report that matters at this point is the pathology report from surgery. So, it sounds like I'm good to go for now. She does however want to see me for a follow up in 2 months and then we'll take it from there
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yay! Great news!
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Im so glad it was benign! Sending u hugs♡
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Thank you
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