CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited July 2017

    Weather turned mild and lovely in Boston today. Our vacation (save for Bob's bleeding foot blisters he got in Chicago the night before we left) has been great. Hot Friday & yesterday, but not awful; no rain.

    Rain, it sucks that your mom is battling both dementia and stage IV lung cancer. I think it would be counterproductive for her to have chemo--she probably wouldn't understand why she was being put through that. My mom had all her marbles, but knew she was already going downhill with both COPD and CHF when a chest x-ray for a bout of bacterial bronchitis led to a CT scan that revealed a 6cm lesion "highly suspicious for malignancy." At nearly 85, she refused to have it biopsied, because she'd seen friends her age go through chemo to no avail. She hung on for 7 months (was discharged from home hospice at 6 months) before succumbing to a sudden heart attack. She made the most of those 7 months, going out with us and friends, shopping, to movies and her favorite restaurants--with a bout with Hurricane Wilma in between. You are correct in your assessment of Alzheimer's being crueler than cancer.

    Poppy, glad Wiley is back home, though he should be "in the doghouse" for running away to party while you were worried sick!

    (((Iris))).

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited July 2017

    Poppy, have fun on your vacation.

    Finally woke up to cooler temps and some rain!!!!!!


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  • Cubbie2015
    Cubbie2015 Member Posts: 875
    edited July 2017

    Rainny, I'm so sorry to hear about your Mom. I hope you can get a plan in place for her soon.

    I have been spending a lot of time in Crazy Town. I've been seeing a counselor once a week. We're going to try anxiety medications again (we had problems finding something that doesn't interact with the Lupron the last time we tried). She also suggested I go to my dermatologist about this bump that I had checked by my BS and MO. I just cannot stop worrying about it, despite both my BS and MO saying it was fine, and since it's a "skin thing" as my BS said, maybe my dermatologist can put a name to it. I can't get into there for a couple of weeks, though. I've also got my regular annual physical coming up next week, which always makes me worry about what else they will find.

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2017

    thanks for allthe offers of hats and stuff. May take you up on the scarfs, i have a big head so wigs not likely to workfor me

    Dang, long hair just fell on my notepad

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  • octogirl
    octogirl Member Posts: 2,804
    edited July 2017

    Iris, I have a big head too...and so many scarves it is ridiculous. Happy to send, let me know. More hugs!

    Mommy, yay for cooler weather! That won't happen where I am until October. So..taking the cowards way out; will be traveling to hopefully cooler climes most of August...

    Octogirl

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2017

    thankd

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  • WenchLori
    WenchLori Member Posts: 1,558
    edited July 2017

    I'm coming out of my air conditioned cave to wave hello to everyone. I had a busy week with my DS and his family visiting, then I took a few days to recover.

    Poppy, I'm so happy Willy made it home safely. Have a wonderful vacation.

    Iris, I'm so sorry to hear that your losing your hair. Chemo suckes! Prayers...

    Mommy and Sandy, I'm still sending prayers your way. Praying they figure out what is going on with both of you.

    Cubbie and 7, I'm doing the happy dance that you both got great results on mammos etc

    Lucy, any news on your DGS?

    We got 5" of rain Saturday night, we haven't had rain in weeks. My pool runith over!! Hubby and I are researching and planning a trip to Ireland and Italy early next year and then to Australia later next year. It would be great if we could all fly into NY and get on the same flights from there to Ireland, Italy and places in the same area. I had my last follow up appt with my RO, after a lot pushing and poking he said there were no new lumps, bumps or signs of scar tissue.

    Waving hello to anyone I missed! 👋


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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited July 2017

    PET scan has been approved and scheduled finally, which is a load off my mind. Which lead me to having another stress filled call with my mom.

    Called to tell her that it got approved and she jumped all over me. She started with the usual garbage that my doctors are incompetent and that it should have been done already. When I tried to explain to her that my insurance has to approve any testing, she said that the insurance does not have to approve it, just pay for it. I told her that is not how my insurance works, that all testing has to be pre-approved, she got more nasty with me before she hung up on me about how my hubby had picked bad insurance through his job and that he doesn't really care about me or my health and if I don't get on better healthcare like hers I'll be dead by the time I am in my mid-40's. Told her as calmly as I could that the cost of the PET scan is more than I can afford out of pocket and that I am not putting myself in debt like she wants me to be just to get all the testing done. The final kicker to the call that made me break down and sit sobbing at my kitchen table was her telling me she hates my husband and she wished that she had found a way to destroy my relationship with him before I got married So I would still besingle and still living at home so I would be under her control.

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited July 2017

    Mommy......so sad.......

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited July 2017

    Yes it is. That is how manipulative my mom is. I never though she would go that far and it hurt deeply. I wish my daddy was still alive, he would have put her in her place years ago. Tired of being stressed out from her hatefulness.

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  • Molly50
    Molly50 Member Posts: 3,773
    edited July 2017

    ((((M0mmy))))) maybe it's time to put mom on silence. Text message only?

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2017

    oh mommy, so sorry for your moms attitude

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  • octogirl
    octogirl Member Posts: 2,804
    edited July 2017

    (((Mommy)))

    but glad you stood up to her and let her know you are going to handle this crap your way. She has no business interfering with your health decisions and her comments about your hubby are just plain mean. Try to ignore them. I know it is hard.

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited July 2017

    Yes, it hurts and last night after this latest issue with her I told hubby I don't want to speak with her by phone other in person for a few weeks. I need to create a stress free bubble to exist in until the tests are behind me and treatment is underway.

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  • PoppyK
    PoppyK Member Posts: 1,805
    edited July 2017

    Hi Mommy, My mom pulls the same crap, which is why I didn't talk to her for years. It was just too hurtful. Some of my mom's hate was fueled by alcohol, so I told her I wouldn't have contact with her until she stopped drinking. I cried for months after I broke off contact, but then a sense of peace from the lack of drama slowly set in. I'm so sorry. Everyone deserves a mom... a real mom. She sounds like she's miserable and just wants to make you join her. My mom made similar comments about my DH. You have great advice from the wise women here in CT. ((((Hugs))))

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited July 2017

    Everyone needs their Mother........but no one needs that kind of pressure......or stress....I would just avoid any contact and especially phone conversations where you can be hung up on....not worth it....I am 82, and a long time Mom of 6.......I never do anything to hurt my kds.....I don't know how any truly loving mother could......just so sad.....None of us have "The Brady Bunch" family.......but you do whatever you can to keep your sanity....even if it means avoiding people who bring nothing but drama to you life.............and that includes Moms..........as horrible as it is........

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  • Cubbie2015
    Cubbie2015 Member Posts: 875
    edited July 2017

    M0mmy, I had to put my mom on a need-to-know basis - she doesn't need to know! She was telling people how she didn't really believe I had cancer and was just making it up. Some people just aren't good for us, even when they are family.

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited July 2017

    Decided to not talk to mom for at least a week or so. I plan on trying to go up to see my niece to drop off her birthday present and to see my step-grandfather and step-uncle soon.


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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited July 2017

    Echo is done. Now on to the PET Scan and port placement

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  • RobinLK
    RobinLK Member Posts: 840
    edited July 2017

    In your pocket.

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited July 2017

    There in spirit Mommy......

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  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2017

    hang in girl

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited July 2017

    Make room in your pocket...

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  • pennsygal
    pennsygal Member Posts: 346
    edited July 2017

    Thinking of you M0mm

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited July 2017

    Mommy ..love and prayers ..

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited July 2017

    Pockets have plenty of room for everyone to come along. Just happy that the process has finally started.

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  • Molly50
    Molly50 Member Posts: 3,773
    edited July 2017

    I am in your pocket too.

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  • octogirl
    octogirl Member Posts: 2,804
    edited July 2017

    me too!!! ((((hugs))))

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  • Tomboy
    Tomboy Member Posts: 3,945
    edited July 2017

    And me!

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  • rainnyc
    rainnyc Member Posts: 1,289
    edited July 2017

    Me too. Always a relief to get things underway.

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