Just need someone to talk to/vent to- new here

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mystic88
mystic88 Member Posts: 155
edited July 2017 in Just Diagnosed

Hi everyone! Thanks in advance for reading and for any advice. Just knowing I am not the only person going through this somehow makes it a little better.

A little background- I am 29 and about a year ago felt a little lump on my right breast. I had just moved to Arizona and didn't have an established GP yet, so I made an appt as soon as I could with someone local. After a brief exam, I was told not to worry. That I was too young for it to be anything concerning. Just monitor and come back if it enlarges. So I diligently palpated and measured and obsessed over my new "little friend." Then 3 months ago it changed from a pea size to almond size, and I went to see my current gyno. She got me in for an ultrasound and assured me it would turn out to be a cyst or plugged duct.

So I went in for the ultrasound a couple days later, and could tell from the tech's face this was not a little cyst at all. Sure enough the radiologist comes in to tell me the mass is very irregular and highly vascular. Got a biopsy scheduled 48 hrs later. Then came the agonizing waiting. Finally results came back, pathologist called it somewhere in the middle between ADH and DCIS but high risk. I do have family history of BC and I am waiting for genetic testing.

I am supposed to be hearing back from a surgeon tomorrow. An oh, did I mention I just found a mass on my other breast as well?

Thanks for reading.

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Comments

  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2017

    So sorry you find yourself here. The good news is you convinced a doctor to investigate and found it early.

    Best of wishes to you.

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  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited July 2017

    I'm so sorry. It must be extra hard when you are young. It sounds like doctors often dismiss concerns in young women.

    Please be sure to mention this new area in the other breast to your surgeon. It may be recommended that an MRI be done to rule out anything else going on.

    Good luck with the testing and decisions ahead.


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  • dtad
    dtad Member Posts: 2,323
    edited July 2017

    mystic88...so sorry you have to be here. However I think you will find the forum both informative and comforting. Just want to add that IMO you should have a MRI. Its the best screening tool for young/dense breasts. Good luck and keep us posted.

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  • MTwoman
    MTwoman Member Posts: 2,704
    edited July 2017

    mystic, "somewhere in between" ADH and DCIS would not be specific enough for me. You might want to consider getting a second opinion on your pathology from an expert, as the differences in treatment could be different. There is an excellent dcis expert who provides just such consultation/second opinoin services. See the link here: http://breastcancerconsultdr.com/

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  • mystic88
    mystic88 Member Posts: 155
    edited July 2017

    Thank you all for your support. I have a consult with sx next week so I feel like I'm moving no forward with things.

    MTWoman-- thanks for that info. I will definitely pursue it!

    I will keep you updated

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  • LisaBS
    LisaBS Member Posts: 16
    edited July 2017

    Hi mystic88

    I live in Arizona too and was just diagnosed with invasive ductal carcinoma July 5th. Would love to talk to You! I have to wait until August 24th for my double mastectomy and lymph node biopsy. I am so stressed.

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  • mystic88
    mystic88 Member Posts: 155
    edited July 2017

    Hi Lisa!

    I am sorry about your diagnosis. It sucks you have to wait so long for your surgery.

    Feel free to send me a private message if you want to talk more, we can definitely help each other out :)

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