Pain and tightness after lat flap getting worse 16mo out!

I thought I would start a new topic to see if anyone has had somewhat similar circumstances. Below are some of the basics to my story.

"I was first diagnosed in 2007 and had L side mastectomy. No lymph nodes involved but because of tumor size I had 4 rounds of AC. A little over 5 years later in Jan 2013 had a very small recurrence in chest wall. No chemo but I did have radiation after the surgery. Fast forward to summer of 2014 I was really noticing that the left implant was changing shape. I ended up in the hospital at the end of June (2014) with cellulitis on the same left side. After 5 days in the hospital I went home and the infection cleared up. I met with the PS (my original one retired) and he explained that because of the radiation the choices for reconstruction revision are now very limited and PS I was told I have a stage 4 capsular contracture.

I had surgery March 2nd (2016). Three weeks later I was back in the hospital for an infection at two spots on my my new breast flap. Suture knots were the source. Gladly they infection cleared! I am scheduled to start PT on 5/10 (earliest date I could get in with the breast reconstruction specialist). I have good range of motion and can function fairly well in the morning and early afternoon although I do feel constant tightness in my back/side. Rib pain is pretty bad as the day continues and by the end of the day I am in agony. Last week I noticed a lump under my shoulder blade. When I saw my PS last Friday I told him it feels like a bone sticking out. He looked at it and felt it and said "You're exactly right, It is your rib sticking out." He said the muscles are extremely tight and will/should relax over time. I am praying that the PT can help!! One of the surgeons that was present during my surgery told me that when my PS cut the radiated skin on my "breast" it snapped back so fast that they were taken back by it. Followed by, "You must have been really uncomfortable." I felt like saying No Kidding!! I was also told that my rib pain on my side is from radiation damage. Also, still having shooting pains where I have radiated tissue in the front."

I am now 16 months out from my lat flap surgery and still in physical therapy which at this point is largely myofascial release, stretching, and taping my back in various ways. Also, I have been seeing a physiatrist for trigger point injections. I don't know how much they are helping. When she puts the needs in the muscles jump and on my side she says that it feels very gritty from the scar tissues and adhesions. My pain is getting worse and the tightness in my back and around my side is also increasing. I honestly feel like I'm trapped in my own body!! I have read recently about HBOT helping with delayed radiation damage and my insurance company does pay for it so I would like to try it. I feel so frustrated and desperate for an answer at this point!! So sick of being in pain every day. I have Tramadol and it does take a little of the edge off in the afternoon but that's about it. Any suggestions or just commiseration would be appreciated.

Thanks,

Lorene