Am I over reacting?

So you only had surgery, but no radiation or hormonal therapy (if er/pr positive)?

I believe those additional therapies are the standard of care for high grade DCIS treated by lumpectomy. I'd seek a referral to a medical oncologist and a radiation oncologist.

I agree with MTwoman's advice.

I'll add that for my DCIS side, I had surgery only. That was the only recommendation until the IDC was found in the other breast.

I take Tamoxifen, which was added because of my ER+ IDC side, on which I also had radiation because of a positive node, and for which I received chemo.

Just for comparison, my mom had DCIS 2.5 cm tumor ER/PR+ (have no idea on her2) and she had lumpectomy, rads and is choosing to do an AI. Rads is to kill off what may have been left behind by the lumpectomy. She too had to go twice for lumpectomy for clean margins. She was 72.

Get the copy of your pathology and surgical reports. You can go to the center and sign a release and they hand over a copy in about 5 minutes usually. If it is just a few pages my hospital doesn't charge. Otherwise sometimes it is 50 cents a page. Do you have any friends that have BC? They could give you the names of an oncologist they liked. Or call the hospital and ask for the Breast Navigator

This report doesn't mention your receptor status. Sometimes, that will come later and be an addendum. Why don't you call the Path lab and ask them when they expect your receptor results will be ready and make sure they send you a copy.

The above report appears to be a supplementary or "amended" pathology report regarding the tissue removed by re-excision, per line 2 of the text.

There is a prior pathology report from the lumpectomy, which should be obtained. The prior pathology report on lumpectomy tissue may contain the receptor status information (estrogen receptor ("ER") and progesterone receptor ("PR")). Per line 4 in the above report, the prior pathology report was assigned a case reference number: "associated case SFXX-XXX" (see report for numerals), which could be used to request a copy of the report and all related test results.

I recently noticed that google captured images of pathology reports that others had posted here in the past, which I found disturbing and may raise privacy concerns. Therefore, I would recommend deleting the above report from this website today because it includes such specific information, like the actual case reference number and doctor's name, which could be used to obtain personal information via phishing.

BarredOwl

Fortysomething, it looks as if your local tumor board wanted an expert opinion on your case, and therefore the Mayo clinic consultation should take precedence, however you should ask for a consultation with someone on your team to confirm this. It does look like their recommendation was the same, wide local excision with negative margins. What is confusing is that your final path report does not reflect the Mayo opinion. That would be confusing and frustrating. I'd schedule an appointment to discuss.