IDC at 34. Devastated

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  • Kiki6712
    Kiki6712 Member Posts: 22
    edited July 2017

    it wasn't the fact that he was upfront. I mean we're dealing with cancer here not a sore throat so maybe a little compassion. Ok,so this is how the meeting went. I asked how soon can we start the chemo. I mean I was just diagnosed the day before and I have no idea about any of this besides the surgeon recommendation of chemo then surgery. These were his exact words that I will never forget" You are very young, this is a large mass and the cancer is aggressive. I need a PET SCAN to see Where else it is. Chemo is taylored to your cancer and stage. Let's say you're a stage 4 then we're talking a whole different approach so we're going to wait until scans are back " he ordered my scans and I was done in less then 10 minutes. I thought he was rude. My husband said he's going to call around for second opinions but until I have my scans there's really not much They can do either I suppose.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited July 2017

    He certainly could have been more tactful. I switched early on at the suggestion of my DH. Still not sure that was the best move. Delayed things and I felt like the new doc thought I was just being hysterical. Are you happy with his expertise and skill level? I had a Ct scan and a bone scan too. My onc said clean scan would make me feel better . . and they did.

    Told my DH "no need to take off work" for the scans, I can do this by myself. Bawled the entire time. Tech thought I was crazy . . . And I was.

  • Michelle_in_cornland
    Michelle_in_cornland Member Posts: 1,689
    edited July 2017

    I think it was very bold to bring up Stage IV, without all of the information. He gets an "F" in bedside manner. It makes no sense to me, why he would make such a large assumption without all the facts. I would find out the results and get the best medical oncologist you can find. The comprehensive medical center in Michigan sounds like it would be a better choice for treatment.

  • Lula73
    Lula73 Member Posts: 1,824
    edited July 2017

    I work with doctors everyday. I can tell you they each have their own rhythm and style and schedule if how they talk about a diagnosis. I can also tell you that a lot of them are excellent at treating patients but don't have a clue about how their bedside manner comes across to patients (hint: most docs are not people persons.) If they are thrown off course they can get a little flustered and may not communicate as effectively (strange as that may sound). If a patient asks a question that jumps the gun compared to where they are in their spiel or makes a comment that leads them to think the patient is more knowledgeable than most he may skip some things or just dive right into a more in depth conversation scenario (there's a nurse on another thread talking about this and how the oncology and surgery teams all think she should know this stuff because she's a nurse). It's entirely possible that 1 of these scenarios was at play during your visit. Unfortunately I don't know him so I couldn't tell you for sure and I wasn't there with you and don't know what came before your question but just know that there's a good possibility that's the case here.

    On the visit only taking 10 minutes, I'd see if you could access your online medical record which should have your appointments listed and see what length of time the visit was slotted for. My first visit was 30 minutes (keep in mind I had jumped my MOs usual gun and I'd had my scans BMX and all path reports were in his hands and we were putting together the post-BMX treatment plan) and my next visit is only slated for 15 minutes. If the scheduler only allowed 10 or 15 minutes that may be what happened. Without the PET he really can't tell you what's next and he may have assumed from the surgeons notes and your question that you were up to speed on everything.

    Another poster asked about your MOs qualifications, etc. The decision to stay with him or find another is up to you, but if he's extremely well respected it might be worth it to continue seeing him vs switching. My mom will tell you to this day that she could not stand the RO that treated me with my first go round with cancer. They had very different philosophies and he had a big ego. But she wouldn't look for another RO because he was the best RO on the east coast. He was the go to guy every hospital system was contacting to setup their RO clinics and he came highly recommended by St Jude Children's Research Hospital. For that extra peace of mind she was willing to overlook the rest. I wish you luck with your decision and sending you positive thoughts and well wishes on this journey none of us wants to take

  • Lillygreen
    Lillygreen Member Posts: 1
    edited July 2017

    Hi Kiki, I hope you sleep well tonight. 😊

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