Oncotype score for grade 2?

Kristie - you can go to "all topics" on the left and find lots of active threads with your diagnosis. And lots of discussion about oncotype scores. When you get time, do go to My Profile and post your diagnosis and when you get to that point, your treatment plans.

hi kristie, i wasER 95% stage 1 and my score was 39. So chemo it was for me. My Drs were almost positive my score would be low. They were very surprised. Of course I cried but then knew what I had to do. I hope your score is low fingers crossed. I'm on my 3rd month of tamoxifen and my SE are not bad at all. I get hot flashes but not all day sometimes not even every day

I was grade 2, mitotic rate 1, one Ilc and one idc stage 1. My er was 95% but pr less than 1% oncodx was 34. I chose no chemo did 4 years AI. Almost 6 years NED.

My sig line tells you mine---20. My first onco swore it would be low. As with all of my journey, they were wrong.

My mitotic score was 0-1 and I did not get a percent of ER/PR but rather an "8" for both er and pr, which he explained to me once but at the time, I was too panic stricken to pay attention and now I don't want to go back and know. I'm trying to forget about my path report and I keep hoping all the new information/science/discoveries will be available should I need them.

I skipped chemo. Only a 2% benefit if I recall...but don't quote me. My BS and onco said 4% or less benefit, may not be worth the side effects chemo has.

Tamoxifen side effects started about 8 or 9 months in...i'm sure I posted it somewhere here. Uterine issues continued years after I stopped it. Arimidex also caused horrible weight gain and joint pain. We do what we have to when we have to and hope it is the right decision.

Good luck and i hope your score is low so you have more options!

None of us really know. My oncologist thought low as well. I was 24. You can see my stats. My guess is because I was low by oncotype test no progesterone and having lobular.

Thanks so much for posting this. I'll look at it tomorrow . I'd love some of our very knowledgeable people to check it out. Beesie please

That's very encouraging, letsgogolf, as I'm starting on Arimidex Monday. Glad you and your sister have had such good experiences with it.

MJ

KristieLynn,

My tamoxifen experience has been manageable. I'm a year out from surgery and I've been on tamoxifen for 10 1/2 months. Starting the drug when there are so many other physical and emotional factors makes it difficult to decouple what is really the fault of tamoxifen. My sleep is definitely not as deep. I take melatonin (dual release) which gets me to sleep and the slow release allows me to fall back to sleep, even when I get night sweats, which only come at certain times of my cycle. I think the brain fog and most of the word finding difficulty I had at the beginning can be attributed to the longer term effects of anesthesia. My fatigue has also lifted substantially. One thing that is for sure due to tamoxifen is dryness including eyes (the worst!), mouth and other mucous membranes...I had my first pelvic ultrasound after being on tamoxifen for nine months. It showed fibroids, an ovarian cyst (simple) and a slightly thickened endometrial lining. I'm not hopeful for the future of my uterus, but without having had a baseline US, it's hard to know what can be blamed on the tamoxifen.I just hope that the drug is working.