When does the surreal feeling end?
Long story.. but I'll try the condensed version. I was rushed into emergency spinal surgery about 2 months ago because of a tumor on my spine that was compressing my spinal cord. My MO told me if surgery had been delayed another week, I would likely be in a wheelchair.
So, with less than 24 hour notice, I had major spinal surgery. Of course we knew from the MRI that it was spinal mets.
The last 2 months have been consumed with healing and getting a treatment plan in place. For some reason it all still feels surreal. I'm not in denial, I fully understand what this means but I have yet to break down about it. For some odd reason, when I went through this crap years ago, I had a feeling it wouldn't be my last go around with it. Maybe that's why I'm not so surprised or have had any sort of reaction? Not sure.. totally sucks at any age, but definitely not what you expect at 42.
We don't know how long we have left, but ry surreal to me that I likely won't see my 60s. That just flat out sucks.
Sorry ladies, just had to get that off my chest tonight.
Comments
-
I think I really understand what you are saying. When I was first diagnosed in 09, somehow I knew that it was coming back. Four years later when it did come back, I also had no reaction and still haven't. It was no surprise to me and in a way, I sorta relaxed about it. I know that is strange but it was like the stress of when and where it was coming back had been answered. I worked in the medical field for over 30 years, it still seems like I'm talking about a patient and not talking about myself. Really strange feelings. But I do agree, totally sucks. Wishing you the best.
-
finallyoverit, I've been exactly where you are only I had 4 days notice before the spinal surgery at age 44. I didn't break down either and here's the reason -- percocet.
The first few months of a mets diagnosis seem to be what I would call a "shock and awe" period. Except I never experienced it. It was the week in the hospital and eight weeks on the opioids. It gave me a sort of buffer between me and reality. By the time I came out of it, I was used to this whole idea.
FYI I turn 50 next year and am planning to play golf on my birthday. [I don't expect to see 60 either and yes it sucks]
-
Thanks for the validation, ladies. Truly means a lot.
-
Hi Finallyoverit,
I have also had a similar experience since being diagnosed with mets in January. I've had a few moments but have really had little reaction to the news beyond trying to wrap my head around how best to plan/live my abbreviated future. I cried my tears in 2001 when I was originally diagnosed (at 38) as I also knew that it would come back to bite me some day. I had a good run but here we are. Now, at 55, I'm hoping to make 60 but all those years of retirement I saved for have evaporated
The biggest issue for me is trying to find a way to cope with life's demands while ticking off the bucket list given the side effects of treatment. I'm still working full time but Ibrance is wiping me out, I'm just so tired by the end of the day and I have issues with my pleural effusion. Played a couple of rounds of golf last week while on vacation but had to use a cart and got winded getting out of a bunker!
-
I do want to say for the people reading this thread that everyone is different. Some women cry for three months straight. There is absolutely nothing wrong with that. Others don't cry at all. Nothing wrong with that either.
The entire continuum of reactions to the diagnosis of this disease are valid. None is 'better' than another. We each experience life differently.
-
It has only been two years since my diagnosis and it still feels surreal! I have never cried and don't know why since the rest of my family has. I survived chemo, radiation and now am on Tamoxifen after a year of Aromasin. I feel good and happy to be seen by the staff at Dana Farber. God bless all of us!
-
It has only been two years since my diagnosis and it still feels surreal! I have never cried and don't know why since the rest of my family has. I survived chemo, radiation and now am on Tamoxifen after a year of Aromasin. I feel good and happy to be seen by the staff at Dana Farber. God bless all of us!
-
Hi Marionsgirl,
I'm not sure if you realized but you are posting on a Stage IV only thread.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team