New to BC, waiting to get started after final tests
It's 37 days since I discovered a lump in my breast. PCP sent me to get a 3D mammogram and ultrasound. The day that I was supposed to get in, all equipment/computers went down at all locations and they couldn't get me in right away. Halfway through that conversation, I went into a fog and hung up the phone. Days later, I found another outfit that could get me in AND also in the insurance network. The radiologist's team did the work (most painful mammogram that I ever had and a scary ultrasound that found lymph node involvement. His report concluded: BIRADS Code 5. Days later, I went in to have US guided core biopsies done. That was on the Friday before 4th of July, so you know it will take longer. I went to my predetermined appointment with the oncologist surgeon the next Friday. The results hadn't appeared until that morning (a couple of days longer than expected.
It was good and bad news. The axillary lymph node that was tested had Metastatic carcinoma and the lump is Invasive ductal carcinoma. Nottingham grade 3 (3,3,2). Her2-NEU FISH Pos 10.8 and 11.8. I can't make out what the rest mean, but that isn't my greatest concern right now. There are more tests to be done: Bloodwork (yes, fairly normal), breast MRI (tonight), PET scan (in a few days), ECHO, etc. (next week). Today I met with the hematology oncologist who ordered most of those tests and went on to lay out the plan, depending on results. For now, it looks like TCHP (Taxotere, Carboplatin with neulasta, Herceptin and Pertuzumab). That for 6 treatments once every 3 weeks. Then surgery (lumpectomy?) to remove what is left (clips according to the optimistic surgeon), followed by Herceptin and Pertuzumab every 3 weeks (no chemo) for the rest of the year. 12 months of treatments in total.
My concern now, is that it may be very difficult to work 4 days on and 3 days off. The work hours aren't terrible and I'll have time on that first day back to work to ramp up, I guess. Call me naive, but I'm hoping to do this. I'm in my mid 50s and all of this came as a complete surprise (thought colon would be a problem by now). Anyone else do this without crashing? Here I go!
Comments
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Hugs, Sweetp6217!
I was also diagnosed as HER2+ (age 46) and had chemo before surgery. However, I had a different chemo regimen (Adriamycin + Cytoxan X 4 and then Taxol X 12 + Herceptin + Perjeta). I was able to keep working full-time, but I met with my boss after diagnosis to reduce a few of my responsibilities.
I had chemo on Wednesdays, and the side-effects would hit Friday/Saturday. Then, I'd be feeling pretty good by Monday, when I'd focus on work again. I was also able to work at home for some of the time, which was helpful.
I ended up with a lumpectomy because chemo wiped out the cancer in my breast and compromised node. The lumpectomy wasn't too bad; I was able to go back to work (part-time) the day after surgery. Working through radiation was OK because it didn't really take too long. Working through Herceptin (alone -- didn't have adjuvant Perjeta) was fine because Herceptin never really gave my serious side-effects.
My case is just my case, though. Everyone reacts to chemo and surgery differently! However, I do think it's doable to work through chemo as long as you listen to your body and you take it easy when necessary. Best wishes!!!
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Wow, sounds like you may have worked on Thursday and Friday, then off on the weekends. Impressive and thank you for sharing.
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I think that it really depends on what your job is like. Are you in an office? Have to be in meetings? On the road much? Have a physically demanding position?
I did the same regimen (TCHP). I quit working during treatment because I was a home care nurse and couldn't tolerate the time on the road, the physical aspects, and the risks of infection. Towards the end, the Perjeta was causing worse and worse diarrhea as well.
I think that if my job had been a desk job with more flexibility - like working from home sometimes or easy access to a bathroom - it would have been doable. And maybe a good distraction from BC!
I also seemed to have just about every SE. Some people do much better. I remain on Herceptin with minimal SE's.
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On my feet most of the time, but could be sitting on a stool for some of it. We have our own private bathroom to share between 4 or 5 peeps at most any given day. I work in a retail pharmacy 4,5 or 6 hour shifts. My new plan would be to take treatment on Wednesday, work 5 hours each on Thursday & Friday, maybe pick up shifts on Saturday & Sunday (4 hours each), Then have Monday and Tuesday to crash. I'm already off on Tuesday. Mondays are usually a 4 hour shift.
After saying all that, I may really be kidding myself since I haven't begun the regimen. P.S. My boss(es) are understanding, but may not have seen it personally in a work setting. One is very Alpha and quick paced, no offense to her.
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Hmmm.... On your feet a lot.... It's doable but you might want to arrange work for the days you feel the best. Many women feel the side effects hit on Day 3 -- which would be Friday if you do treatment on Wednesday. Days 4 and 5 aren't much of a picnic, either. NotVeryBrave is also correct to point out that TCHP is well-known for causing gastrointestinal distress, including diarrhea. I was on Taxol, Taxotere's gentler cousin, and it gave me moderate diarrhea. I took Imodium, but many women end up having to take prescription drugs to control their diarrhea and some even end up getting extra fluids at the infusion center.
One thing I had to compensate for was the mental impact of chemo. Chemo brain left me searching for the right words and thoughts sometimes, and that was a problem because I teach college students. I made sure that I had very detailed notes when I taught. So, if I lost my train of thought or couldn't think of a name, all I had to do was to look down at my notes.
Good luck! You might want to talk to your bosses ahead of time to work out a schedule that will allow you to function at your best.
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Thank you Elaine Therese! My hematologist (who I only met once) mentioned that some women don't enjoy going to the bathroom 4 times a day for diarrhea. 4 times? Is he optimistic? P.S. He's telling me that the TCHP regimen planned for me has a 95% rate of no reoccurrence based on my tests so far. Have yet to have the PET scan to make sure of what is going on.
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sweetp - I had infusions on Thurs, felt ok that day and most of the next, but by Sat was feeling meh. I too had the Big D, but it was not all day, every day - some days just a few times. This lasted for the first 10 days after each infusion. I did not take any anti-D drugs to control it, just tried to stay hydrated and ride it out. I did not feel I had any issues cognitively. My hemoglobin did drop with each tx and by the last infusion (#6 of TCH - I was treated prior to the approval of Perjeta) it was 8.5. My only symptom from that was tiredness, no confusion or dizziness. I did find that the 10 days before the next infusion I felt pretty normal, except that I was tired and no amount of sleep could fix that. For total transparency, I did not work during chemo as I had 5 surgeries in the 14 weeks before beginning, and my work environment was bio-hazardous, in the hospital, so my oncologist preferred that I take FMLA and resume working when treatment was done, which I did. Good luck!
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sweetp - I agree with the suggestions that by Day 3 you will probably feel like crap. I had treatments on Thursday, Was OK Friday but had to go back for Neulasta shots. Totally off Sat & Sun & sat on the pot. Was able to start back again on Monday. Disclosure - like Special I did not work full time at that point so I could float the days. I think standing 5 hours would be hard.
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SpecialK, belated hugs. Thank you so much for sharing.
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MinusTwo, This is helping. I've heard and know that each peep has a different experience, but (crossing fingers) I hope mine is close to yours. My Mondays are usually 3 PM to 7 PM with a chance at leaving a few minutes early (pre chemo o'course). Off on Tuesday but Wednesdays are usually 6 hours, during which time I can opt to take a lunch/break for 30m.
Thank you!
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sweetp - happy to help! You will have to see how you do, it is hard to predict how both the chemo regimen and mitigating medications will make you feel. If you can make a plan with some flexibility with regard to work, that would a bonus. Wishing you the best!
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Yep - I had treatment on Wednesday as well. Tired that night, fine the next two days, iffy by Friday night. Saturday and Sunday were the worst for overall crappy feeling.
The diarrhea was unpredictable. Usually started in the morning. Towards the end, I was sometimes taking 4 doses of Imodium within a couple hours. I don't think it worked at those times so much as there was nothing left to poop!
Everyone is different, though. Working 4-6 hours in a known environment with help around may be fine. You'll probably just have to see how it goes.
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I had a pretty easy chemo of Abraxane weekly and Herceptin and Perjeta every 3 weeks. I took chemo day off (Monday) and quickly learned my side effects schedule. Days 2&3 were some flushing on my face, day 4 was minor bone pain (tramadol) and day 6 "big d" (Imodium), I stayed active and never had fatigue. It's doable
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I would certainly get my FMLA in place. Hoping you work for a firm that qualifies for it. I personally couldn't have worked during Taxotere Herceptin and Perjeta. Many ladies on here have been able to continue working. I had retired at 60 one week prior to diagnosis, so I didn't have this worry
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Thank you Elaine, SpecialK, MinusTwo, NotVeryBrave, Illamae and Beatmon. Your unique experiences give me some encouragement and heads ups for what may come. Hugs all around!
Slight change of plans. My treatments will be on Thursdays, hopefully working Friday for 5 hours in the afternoon. Then off on Saturday and Sunday and most of Monday. My boss is allowing me the flexibility that I may need to take time off here and there. I also told her that it's possible that my hematologist/oncologist (HO) may say stay home. We shall see. The educational one on one (plus hubby) is on the 25th, a few hours after the port gets put in. First infusion is on the 27th.
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I am in Illinois. What part of the state are you from?
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Elaine Therese. Im 43, I'm a recent diagnosed with stage 2 , still waiting on more test to get done but I had a decision to make on whether or not I want to have the mastectomy or the lumpectomy. I'm leaning more towards the lumpectomy. I saw an earlier post about being able to work and I guess I'm concern about that. I'm active duty military and I'm not sure how these treatments with affect my productivity and being able to carry on a full days work. Can someone share some light on what to kind of expect.
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Georgette,
I personally work part time now, no earlier than 11 AM. I have a feeling/guess that you may be working much earlier. Personally, I am married to the bathroom usually early in the morning and I start taking Lomotil and alternating with Colace to keep it bottled up. It can be a battle that begins maybe two days after each chemo treatment. I can't tell what sort of treatments you may be going on other than surgery. So, everyone has different side effects at different times based on numerous factors. I will be having a lumpectomy and some lymph nodes removed, perhaps followed by radiation. Then Herceptin for the rest of the full year beginning from infusion one.
You should be having some meetings, at least one where all of that will be discussed with you. I have completed two chemo/targeted sessions this and late last month, 21 days apart and will be going in for 4 more. The D that the Colace is for is the worst and I hope that you never have to go through that.
You are younger than I by 12 years, so you have that going for you. Also, you've come to the right place where we all pitch in and try to help out whenever we can with opinions and answers and sharing stories.
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