Waiting for biopsy results

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PuddlePuffin
PuddlePuffin Member Posts: 5
edited July 2017 in Waiting for Test Results

where to start? I was adopted and 2 or 3 years ago I found a half sister who is almost 22 years younger than me ( I'm 42 in august) she told me about the horrific number of our paternal relatives who had passed away from breast and ovarian cancer and a few who had survived or were fighting cancer at that time.

At the time my now 8 year old was having genetic testing with the 100,000 genomes project as he has severe genetic issues and is severely disabled.

They talked to me about family medical history and offered to test me for the ovarian and breast cancer genes.

Unfortunately we won't get any results back until the project is completed , which could be years and in the mean time I just did self checks every 4 weeks.

Almost 10 weeks ago I discovered my husband was having an affair with a work colleague and my world collapsed. I threw him out the day I found out.

I lost a lot of weight and felt very unwell but put it down to stress, my breast checks went out of the window because I was extremely depressed and I also have a ten year old son with hemiplegia cerebral palsy.

I have a lot on my plate and just didn't think.

Three weeks ago I was in the shower and I felt a very hard, immobile lump on my left breast . Just about an inch above the nipple slightly to the left.

I went to my GP the next day who referred me to the breast clinic and I was seen within two weeks ( a week tomorrow) I saw the consultant breast specialist who was very rude and roughly examined me.

I was on my period and my breasts literally grow a cup size during menstruation.

He said it was just glandular tissue but said I should have a mammogram and ultrasound because of my family history.

Both showed a mass of irregular shape and I had a fine needle biopsy.

The radiographer said she was concerned because the fluid and cells she retrieved were red and the lump was very firm and immobile.

She said it was definitely not a cyst and I needed to see this very rude doctor again.

He told me it was nothing and I shouldn't worry myself but he would send me a letter within another two weeks to come back in and discuss the results.

I know several woman who have been to this breast clinic , including my mother in law and all were told they had cysts or some other issues that were harmless and needed no treatment on the same day.

They only saw the Dr once also.

I also know two women who were told to come back and they both had BC.

The receptionist told me on the way out that if the biopsy came up clear they would ring me by tomorrow and I wouldn't likely need to come in but if I needed treatment they would write to me .

Now my newly found aunt who has BC at the moment ( reaccuring ) told me blood is a very bad sign from a fine needle biopsy ( she's a nurse ) and basically any colour is ok apart from shades of red or pink.

Is this true ?

Also since the biopsy I've been have nasty sharp stabbing pains where my lump is, like being stabbed with a hot needle and it's at random times not just when I'm being active .

I've also had an annoying dry cough for about three months and all kinds of things are going through my mind.

I was diagnosed with a kidney infection on Monday also. So I'm just generally run down .

I'm so tired and just feel awful right now.

I'm trying not to google but it is so hard not too.

Has anyone experienced this and not had BC?

Thanks for reading my post, I'm not one for groups or forums and find it difficult to share private things.

I'm a full time carer to both of my boys , who are only young.

My 8 year old can't speak, has epilepsy also and is so unwell we almost lost him several times last year, he is in nappies still and needs 24/7 care. He is cognitively like a baby less than one year old.

I just can't get sick. Those boys rely on me for everything and now I'm on my own with them.

I'm not worried for myself but I just don't know how I'd get through this with two children with special needs and a selfish , useless husband


Comments

  • Marieq75
    Marieq75 Member Posts: 19
    edited July 2017

    I am also waiting for biopsy result( 42 yrs olds. They removed my nodule and I asked to see the sample. They showed the dish I don't know anything about this, I am new and waiting for biopsy results also. The nodule that was extracted looked like skin bitten around your nails, small skin pieces. I bite my nails so that's what it made me think of. Some were red , some pink tinged ends I have 3 boys and my oldest son is disabled,and I have to be here for him and my other 2 boys. My youngest is 11 :( I know fear you feel for your disabled children Sending good thoughts and prayers to you

  • PuddlePuffin
    PuddlePuffin Member Posts: 5
    edited July 2017

    unfortunately I received a letter today to come in and discuss the findings of the biopsy .

    I was willing the phone to ring all week as it is the practice of the breast clinic I attended to ring and let you know if nothing further needed to be done.

    Even worse my appointment isn't until the 20th of July, that will be exactly 5 weeks since I went to the GP who advised me against going to my local hospital and attending this breast clinic in the nearest city because they could do radiotherapy, chemo and reconstruction in one location.

    She wasn't very reassuring!

    Stupidly I didn't ask any questions at the clinic because I was shaken up.

    My biopsy sample was bright pink watery and lots of blood streaks in it and I didn't think to ask anything.

    I feel so dumb.

    I'm going to ring on Monday because I can't attend the appointment on the 20th due to the time clashing with the school run.

    I'm going to ask if they'll see me asap also because I'm not coping and running myself into the ground with the stress.

    When are you expecting your biopsy results back?

    I will pray for good news for you and a calm wait until you get them.

    July is such a horrible month for my family anyway because it is our daughters birthday on the 15th and unfortunately we lost her 12 years ago.

    I really just need to know now, as I'm sure you do.

    The not knowing is so awful and we look at our extremely vulnerable kids and it is a whole lot worse.

    We need to live to be 100 and stay fit and healthy to take care of them .

    The thought of my youngest ever ending up in a home has caused me sleepless nights for the last 8 years!

    I don't like anyone else caring for him because even though he can't talk when he looks at me I almost always know what he wants and he doesn't have that ability to communicate with anyone else like that. Not even his dad.

    My 10 year old will live independently and live a normal life, he just adapts himself to every hurdle he faces but my little dude needs 24/7 care.

    Good luck , I have everything crossed for you.

    Please let me know how you get on

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