The betrayal of my body but mostly my mind

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Skbell
Skbell Member Posts: 1
edited July 2017 in Waiting for Test Results

I had severe breast pain in my right breast. I then went to the doctor and told her my symptoms; I told her my grandmother and aunt on my father's side both died in their 50's of breast cancer. 5 minutes later I was out of her office with a diagnosis of it not being breast cancer, blah, blah, blah.... I didn't hear much because it wasn't breast cancer but something to do with hormones. A skip and a jump I was out of there without another thought.

But I did have another thought. I felt that was quick, I totally felt like I was dismissed. I also thought of my friend's sister who died at 41 of breast cancer. She was told on four different occasions that she was too young to have breast cancer and that breast cancer doesn't hurt. But I don't rock boats and I'm 39 and the doctor knows.

The breast pain was severe but I wasn't really worried because it was hormonal, right? Then I began to feel a hard mass by my nipple. It took a couple of weeks of thoughts that this is hormonal and cyclical. But it wasn't cyclical because it hurt all the time so I made another Dr's appointment. I saw a different Dr. and she told me just to be safe she would send me for a mammogram and an ultrasound. Thank god for her because if she has told me not to worry about it I would have left.

A mammogram and an ultrasound later I have a 2.5 cm lump with a birads 5 rating and another smaller tumour. My doctor didn't mince words, she phoned me and told me that I have breast cancer and that I needed to come in to see her. I'm sure some would say she doesn't know for certain until the biopsy but I appreciate how candid she was.

I've gone for my biopsy and should get my results tomorrow. This is modern day torture. I just want the cancer cut out of me. I feel like it is growing as I sit here. Spreading to the other parts of my body. What a total betrayal to me from my body. My inner thoughts take over my life.....Some days I cry and think that I can tell I am in stage 4 cancer that has metastasized throughout my body. Sometimes I don't have cancer and it could be fibrocystic breast disease. I self diagnose and think it is at least stage 2 because it is bigger than 2 cm but probably stage 3. Wouldn't it be great to be stage one. AGHH...how to turn off my brain.

I read everything on the internet. Then I tell myself to stop reading and wait for the results of the biopsy. You should see my search engine.... breast pain, how often is a Birad 5 reading wrong, painful breast cancer, what stage is 2.5cm breast tumour, survival rates of breast cancer, inflammatory breast cancer and on and on and on.

I'm writing this because I like reading about other people's symptoms to compare them to mine especially when I read a favourable diagnosis. I am not really in-tuned with my body so I didn't notice the little things but now they make sense. It began up to a year ago with night sweats, I would wake up with a soaked t-shirt. I thought I was premenopausal. My nipple became really itchy. I would look at it in the mirror and it looked totally normal. Then I got severe stabbing breast pair. So painful that I couldn't really tell where it was radiating from. I should have charted it but I didn't. Some days weren't bad and other days the pain was constant. There was the stabbing pain that would happen out of the blue but also aching in certain spots when I touched them. Then I felt like my breast had a hard mass under my nipple that was sore to touch. I didn't feel like it was a lump it felt more like a hard spot. My shoulders and neck were sore after work. They ached and felt tight. And now today my breast became inflamed and has a red rash a couple inches long. Definitely inflammatory breast cancer my mind tells me.

Since my diagnosis (that is probably cancer but hopefully not) my neck, shoulders and shoulder blades are hurting and aching something fierce. Is this from the stress? The headaches are awful. Maybe it is the cancer metastasizing slowly into my brain. My poor husband has to hear all this and try to stay upbeat. I told him the other day I am dying and that he needs to make sure he lives to take care of our kids. Our kids....the worst part of this...I am worried about dying but I'm more worried about dying and leaving them. All kids need their mom. I want to be with them every minute to absorb the love and appreciate how great my life is.... but at the same time be alone and cry.

Oh and before I die I need to get on those photo books I have been putting off because that will be my six year olds only memory of me. If thoughts could kill I would be dead, but tomorrow I'll know for sure.

Comments

  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited July 2017

    Steffiebell, I'm so sorry you're torturing yourself. It is so easy to do that. But there is nothing else you can do right now. You've seen your docs, they've done the screening and diagnostic tests. There's nothing else to do while you're waiting for results...worrying won't change the results. So why be miserable?

    It's soon enough to worry about "what to do next" when you get your biopsy results. You could be finding out how to follow up on your B9 result (and try to sort out the pain you're feeling). Or you could be dealing w/ a BC diagnosis. But if you do w/ a BC diagnosis, you'll also get more details so you can start putting together your medical team, learning about your kind of BC (there are lots and lots of types and they're all different) and making treatment plans. And if you get bad results, we'll help you work through those details then.

    And, BTW, almost no BC patient dies immediately. So don't spend time overnight trying to learn what an oncologist spends years learning.

    My suggestion? Hug your husband, tell him you're scared and you need his help distracting you. Watch a movie, get a babysitter for the rest of the evening. Do something that will occupy your mind pleasantly. And ask him to go w/ you to your appointment in the morning. Ask your doc if you can record the consultation (on your phone or a recorder). It can be helpful to re-listen to it later because it can be hard to focus when they start talking.

    Don't borrow trouble...wait for your biopsy results before you spend another second worrying about the results.

    Best wishes for a B9 result!

    LisaAlissa

  • mommakat
    mommakat Member Posts: 147
    edited July 2017

    I hear you Skbell! I am waiting on biopsy results too, and am making myself crazy with reading and researching, and self diagnosing. I am glued to my cell phone and jump anytime it lights up or makes a noise. I just want to know. I think I have to wait at least another day, or maybe until Monday or Tuesday. Trying to stay busy, and LIsaAlissa you're 100% right! I shouldn't spend an ounce of time or energy worrying and overthinking, but it's nearly impossible. I've talked myself in and out of every scenario.


    Good luck Skbell! Hoping for good results for you!

  • Marieq75
    Marieq75 Member Posts: 19
    edited July 2017

    I too am waiting on results and I feel like you are in my head! Same range of emotions. One second I'm fine, next minute I'm bawling convinced I have BC. I know 80% are benign, but some have to be in the 20% and I think it's me. This waiting is really messing with my head. Just know you're not alone! Sending prayers for great results


  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited July 2017

    For those of you still waiting on results...one reason people think "they probably have it," is because almost all the posts here are from people who do! That represents what statisticians call a "sampling error."

    Almost all of the women who have gotten B9 results don't post here anymore (they're off living their non-BC lives!) and often don't even come back here to tell us their good news. So you see post after post after post from the people who do post here, who were in the 20%.

    There's no reason to think you won't be getting B9 results as well, and we'll be in your rear view window very soon.

    Hang in there,

    LisaAlissa

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited July 2017

    Right on LisaAlissa. Yup - most of the people with B-9 results have moved on. As the lady says, hang in there.

  • jennifer8476
    jennifer8476 Member Posts: 1
    edited July 2017

    I am also waiting results of a biospy . I had two masses removed from left breast . I now have two masses one that has gotten bigger and the second one they just biopsied . I am at a high risk because my mom my aunt and my grandmother had breast cancer . I'm nervous to the point that I am making my self sick .

  • NotVeryBrave
    NotVeryBrave Member Posts: 1,287
    edited July 2017

    To all of you lovely ladies who are stressing out while waiting to find answers - I hear you!

    I have no real words of advice. I was much the same - one minute hopeful and the next hopeless. It's a horrible and consuming time. There's no way around it.

    Try not to go to the darkest place, though. Most diagnosed with BC don't end up there anyway. We will hope for benign results for you. And know that if that doesn't happen - we'll be here to walk through the plan with you, too.


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